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Frustrated and confused
My Husband was diagnosed with EC stage IIB on 11/12/10 at Self Regional Healthcare, Greenwood, SC. Self Regional Healthcare stated he would not need surgery, just Chemo and Rad., would need a Port, and a feeding tube (he can still swallow), and would start treatments on 12/01/10. He had an Abd. CT and a shadow was on the…
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Is Surgery after ChemoRadiation Stage III a good idea?
Good day, This is my first time posting. My dad was diagnosed with stage III Adenocarcinoma. He has finished his chemo and radiation and is scheduled to have surgery to remove his esophagus on Dec 8th. The surgeon explained that she will use his stomach to make the connection from the throat to the small intestines. My…
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Staged and Treatment
Just got back from the Dr's. office for a consultation on the stage and treatment that he recommends. Stage is a T1 maybe just starting out stage T2. Oncologist recommends surgery to remove area and follow up treatments. This will be done in a Green Bay, Wi hospital. When I asked about the MIE procedure he wasn't familiar…
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Post Surgery Chemo
Hello Everyone, I have not written in a while. My Mom (age 54) was diagnosed with Stage 3B EC in June 2010. The original plan was that she would have 3 cycles of ECF Chemotherapy (epirubicin, cisplatin and fluorouracil 5FU). However, half-way through her second cycle she got really sick, to the point where she was…
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i didn't want to hear that
thank you william for replying. I did not have any chemo or radiation treatments and supposedly I am cancer free. My bloodwork has been good but the only real nagging problem is the feet.I never had any problems before and thought it was awful coincidental that this started 5 months after my surgery. My doctor didn't say…
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Made it through holiday and moms bday
Not sure how exactly, but we did. I have never made the entire Thanksgiving dinner, until now. I did pretty good, even on the age old family tradition of homemade noodles! It was sad and different without mom. Even more so, my brother decided to go out of town to our step sisters for the holiday and my stepdad wanted to…
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foot problems after esophagectomy
i had a eshagealectomy in feb. I was in icu for 38 days and then oncology ward for 3 more weeks. After a few weeks rehabbing at home I got back on my feet and got back to work.(i am an electrician) It took some time but I feel like I am back. My greatest issue is the fact that now I am having these weird foot afflictions.…
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foot problems after esophagectomy
i had a eshagealectomy in feb. I was in icu for 38 days and then oncology ward for 3 more weeks. After a few weeks rehabbing at home I got back on my feet and got back to work.(i am an electrician) It took some time but I feel like I am back. My greatest issue is the fact that now I am having these weird foot afflictions.…
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Mayo Clinic in Minnesota
Thinking about getting a second from here and be treated at Mayo Clininc in Minnesota. Anybody have any pro's or con's on this clinic?
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Hi! New to this site!!
Hi everyone!! I am a new member if this site. My husband was diagnosed with esophageal cancer last October at the age of 38. He has been cancer free since last January 6th!! Almost a full year! I looked at the site frequently at that time and just came across it tonight! Wanted to encourage those of you still going through…
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Surgery Dec 14
I have a surgery date for MIE on December 14, 2010. I'll be traveling to Los Angeles to USC University Hospital on 12/6 to get a place for family to stay. Dr. Steve Demeester will do the operation. Appreciate any thoughts from those who have gone through this before me. God Bless you all!! John Haynes
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Asking Doctors for Options
I just replied to Bob's Wife's post and it got me thinking. Wouldn't it be great if EC doctors would read our board sometime and see what is working for the patients and families here? Almost every single medication and things that have helped my dad's quality of life came from recommendations from this board. Thanks to…
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Good CT Scan!
Bob had his first CT since surgery 3 months ago and the results were good! No cancer detected. He will be starting post op chemo on Dec 7 of Xeloda & Oxiplatin. We had a great Thanksgiving and are truly counting our blessings, which are many! He hasn't had this chemo regimen before, so if anyone has any helpful advise, we…
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Giving Thanks
If you are on this board, Esophageal Cancer has touched your life in some way. Last year at this time, I had little to no knowledge of Esophageal Cancer, in April 2010, an "abnormality" was found, in May I got my diagnosis of, in July I got my MIE Esophagectomy. Today, my recovery continues, hopefully 1 final trip to…
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Clinics or Hospitals
After recently joining this forum I have been reading a lot of the posts. I would like to know how or where I would go to find out where the best clinics or hospitals are in my area. I'm located in Northern Wisconsin, and am especially interested in the MIE if I qualify, but would have to know where to go. Will find out…
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Feeding Tube - when is it time?
My father was diagnosed with EC Stage IV last December. The treatments have been able to clear up all of his mets except for one stubborn tumor in his liver. This one seems to be causing the biggest havoc on his body!! He's had a lot of pain which is now under control thank goodness; however, he's not been able to eat as…
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Thank you all!!
Hi, Just wanted to thank all of you for the support and advice and love and prayers all of you have given me and my family this past year. It has been a year full of ups and downs but now instead of walking around with an NG tube hanging out of my nose and not being able to swallow, I am doing the Thanksgiving dinner for…
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a little hello and have a great holiday
Hello All, I spoke with Lori and she wanted me to post something. I know that I havent been around much. I read and it just takes too much out of me to post. But today I am. I know that life must go on and Ive been doing well. So heres an update. Yesterday was a year ago since my dad went for his scope to find out that he…
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Dr. James Luketich
I now know why The Marshalls are always saying what a wonderful man Dr. Luketich from UPMC is. Per their recommendation I Fed-Exed all of my husbands records to Dr. Luketich along with CT and PET scans on Cd's. He phoned me yesterday and I don't think ever in my life I have spoken to a more generous, caring,compassionat…
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Newbie
I'm a newbie to this board so, please bare with me. A little info about me 56 year old male and just received the news about having this cancer. We(my wife &I) meet with the surgeon yesterday, and let me tell you he scared the HELL out me, with the treatment plan. So, now I'm trying to find out more and what I should do.…
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Update on Diana and I
Hi everyone, first I would like to wish everyone a Happy Thanksgiving and second, to let all of you know who has been in touch with us since last year when we first went on this website, that we are doing ok. The holidays are going to be especially tough after losing Eddie and my mom. We are going to my sisters today, it…
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white blood cells at zero
Dad in hospital after first cycle of carboplatin and 5FU. White blood cell count zero and platelets at 7. Getting antibiotics, platelets and nutrients via IV. Also in sterile environment. I'm told this is not uncommon with chemo. Any idea how long it takes for WBC count to rebound?
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This may interest some.....
My hubby is constantly low on magnesium and has to get infusions regularly. I was curous as to what role this mineral has to the body, how to replace it and why is may become low. I was amazed on how much this mineral does for us and that many humans may be low and not know it. I thought maybe you all might find this…
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Does Avastin Drug Work for EC?
My dad has EC and he is at stage IV. Currently he is on his 2nd cycle of his chemo threatment out of 6. I found out on internet that Avastin can help with Esophycas Cancer. http://www.cancercare.org/pdf/booklets/ASCO-Guide/Stomach&Esophageal_ASCO.pdf I had asked his oncologist last time we met to include Avastin in his…
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Staging Question
I have been looking at this sight under staging and I have a question. When my husband wae originally diagnosed with esophageal cancer in Feb 2009 his stage was IIB. In Sept his cancercame back and now the dr said it is Stage IV. According to this sight Under "IN TREATMENT" There is an area on staging. It says that even if…
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Wishing ALL a Happy and Blessed Thanksgiving
Though we share heartbreak on this board and sometimes struggle to find things to be thankful for in the midst of this dreaded disease, one thing I can be thankful for is the support and encouragement I've found on this board! I thank God and all of you for sharing your stories, both good and bad, and will be thinking of…
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Has anyone had the tumor come back to the stomach area after surgery, radiation and chemo?
My daughter is having problems swallowing again one year after radiation, chemo, and the Ivor Lewis operation. She has had chemo within the last six weeks and this did not change anything. Two weeks ago she began having trouble swallowing and coughs during eating. Has anyone had this happen after all these steps? In…
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cleared it
hi, I e-mailed csn about the hacker and they have cleared it before he got too wild. SAndra
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Oxaliplatin+oral 5-FU for EC
Hello All: My father has been a patient of Esophageal cancer for almost last two years. He had his lower esophagus operated in Feb, 2009. His tumor was in stage 3B. After that he received TCF for a cycle. Due to grade 4 GI toxicity in cycle 1, he received TC for next 4 cycles and then he had a Myocardial Infraction. After…
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hacker
Hello All, Looks like we have another hacker, trying to interrupt again. I've checked some other topics and they are also on there. Sandra