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6 week follow-up appointment after hysterectomy
I was very worried that my doctor would say something wasn't looking right or healing right but she checked my incisions and said the worst looking one wasn't infected, just inflamed. She removed my one little stitch from the incision above my belly button and that looks a lot better. She did a quick pelvic exam and said…
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Anniversary of my Surgery is the 24th of March
One year ago, I had my big surgery on the 24th of March. I'd just like to say it's been one hell of an experience. Thank you all for your ongoing support and all of your help. love, Deb
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FDA Approves Pembrolizumab for Advanced MSI-H/dMMR Endometrial Cancer
The link above says: Pembrolizumab has been approved by the FDA for the use in advanced microsatellite instability–high/mismatch repair–deficient endometrial cancer following prior systemic therapy. The FDA has approved pembrolizumab (Keytruda) for advanced microsatellite instability–high (MSI-H) or mismatch…
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Selinexor (Xpovio) for advanced or recurrent endo cancer
"Researchers announce the first results of a Phase 3 clinical study of selinexor as maintenance therapy for advanced or recurrent endometrial cancer following complete or partial response to induction combination platinum/taxane chemotherapy. Compared with the placebo-controlled group, patients receiving the treatment…
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Verzenio + aromatase inhibitor for recurrent ER+ endo cancer
The results of a trial were posted recently, thought I'd share. "A combination therapy that targets cancer cells from within and without caused tumors to shrink or stabilize in 75% of patients with recurrent or persistent estrogen receptor- (ER-) positive endometrial cancer, results from a recent clinical trial show." ...…
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Ringing the Bell
Today we finally got a win!! And I say WE because my husband is with me every step of the way. I don't know what the future may hold, but today I got to ring the bell after completing my last scheduled Chemo!!! I'll still be going back as I participate in the RUBY Clinical Trial with immunotherapy. But today, we reached a…
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Possible EC
Hello, Ladies! My name is Ryan. My mother named me after "Ryan's Hope", the 70s soap opera. I just turned 43 this past Monday. I have one biological child, an amazing 15-year-old daughter. I live in Baton Rouge. I have been married for almost 18 years. A little backstory to my current situation: In June 2002, I had my…
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Building up WBCs
My care team has started to order me either Neulasta or Udenyca for my upcoming treatments since my WBCs are already on rhe "low" end. Anyone have any up front info for educating me on these drugs? I already have been briefed that I will most likely get BONE PAIN for days after the injection is given cause the wbcs are…
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Caught My Dress In My Panty Hose! Whee! (just for fun)
Love you all. Do make sure and give MissTaylor some love too. She's doing better, now five weeks post op! Here's a link to my latest story, ladies. Enjoy!
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5 Weeks post-hysterectomy
Tomorrow marks 5 weeks since I had my surgery. Hopefully only a few more weeks or maybe sooner before all my restrictions are lifted. I see my doctor in Atlanta on the 23rd. Overall the last couple weeks I have felt pretty good. Not normal, but definitely better. I don't have much pain from what I'm guessing is my cuff,…
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Choose your Dr. and facility wisely.
I just feel like I have to comment on this. Especially since reading about lack of compassion and a Dr who was not a good match. After my diagnosis, I researched treatment facilities and Drs. I didn’t want to go to our nearest large town, Salem, OR. (I try to avoid Salem whenever possible. Lol) I knew I wanted a female Dr.…
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Cancer and a Cooper's Hawk
You'll appreciate this story! I blended my cancer experience with rescuing a fledgling hawk.
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Relief from painful neuropathy in feet, legs, and hands.
I've heard some people talk about some cold therapy right before or during chemo, specifically on the feet. Any suggestions? I am in a lot of pain and I have lots more chemo treatments to get past. Once pain meds do nothing, so I had to get my big ice pack out the freezer, dig out my massager used for joint pain, and plug…
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Another Story Just for Funsies :)
Here you go, ladies! Hope it's fun to read.
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Follow-Ups and Putting My Foot Down
I also second-guess myself but I put my foot down today and hope I made the right decision. I had my surgery last June and 5 brachy treatments too follow. I started my 3-month follow-up with my gynecologist oncologist last October (although she saw me a couple of times after surgery) and saw her in late January and will…
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Cold Capping
I have had 2 chemo treatments (Taxol-Carboplatin) and it feels I have had 3 treatments😄. I experienced some hair loss and now have balding spots on the top of my head. I am so glad I bought some nice wigs in advance. I know I will lose more hair and cannot wait until the treatments are over! Just wondering how others are…
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Serous cell treatment
Hi, I am new here, had robotic hysterectomy Jan. 14, 2022. Med onc recommending 3 brachytherapy radiation only, no chemotherapy. I am Stage 1A mixed serous and endometrioid, no myometrial invasion. Seems most people are getting chemotherapy too. I am nerovus about recurrence. I'd love to hear from long term survivors with…
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First chemo session
On Friday, March 4th I went in for my first ever chemo session of Taxol and Carboplatin. I was a "fast track" on that day because my labs were done the previous week. Anyways after the team got me settled in and explained all the procedures that would be happening, then I put my sig on the forms. I just thanked God I was…
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Beginning Keytruda and Lenvima
Hello! I had 4 Taxol/Carboplatin sessions and had mixed results. After 3rd, the doctor ordered another CT because my CA125 was stabilizing in the low 200's. The results were mixed. Some grew, couple shrunk, and no new tumors. The doctor decided to move to Keytruda and Lenvima. I did have one more session of chemo. I go…
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Uterine Cancer Mortality Now Neck and Neck With Ovarian Cancer
I just came across this recent article (Feb. 9, 2022), which I thought I would share: https://www.medpagetoday.com/hematologyoncology/othercancers/97107 Good news for ovarian cancer, not so much for uterine cancer, but important information to be aware of nonetheless. I also thought it might be food for thought for some of…
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A Cheerful Diversion from the 2
I told you I'd been accepted as a writer for "Crow's Feet," a publication for older adults (mostly). Here is my first published article!
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Undergoing second hysteroscopy w D&C
Hi all, I am curious if anyone has had this happen and whether there is anything more I should know or advocate for myself. I am undergoing my second Hysteroscopy w d/c for suspected polyp removal. I am 53 peri menopausal w recent irregular bleeding (spotting for 2 weeks right after period x2, and one or more bleeding…
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Two Bits of News
Oh, my....I've got two positive pieces of news! I've been accepted as a contributing writer for "Crow's Feet," which is an online magazine that publishes on Medium, a great website I belong to with articles from thousands of writers. This is a wonderful thing, as I had routinely written and had articles published before…
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Treatments with Niraparib or Kaytruda
My mom was diagnosed with Stage 3c carcinosarcoma of endometrium, underwent the surgery and now waiting for radiation and chemo. I’ve been looking for what kind of new treatments are out there and found out about these 2 medications: - Kaytruda - Niraparib Niraparib (ZEJULA) is a PARP inhibitor, I saw a video from 2017…
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Sex after radiation
For those that have had external beam radiation and brachytherapy how long afterwards did it take before you were able to have sex? I'm concerned about vaginal stenosis. After those radiation treatments is a relatively normal sex life possible? I'm currently going through radiation treatments now and I'm concerned about…
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Normal wound healing??
Yesterday I removed the steri strips since today marks 3 weeks since surgery and last week when I talked to the after-hours nurse he told me if they hadn't started coming off by this week to let them know. Well 2 out of 5 look awesome, can't even hardly tell they did anything there. I have just a small bump under the skin.…
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I Ditched my Dirty Doctor (you ladies heard this story informally last year)
Well, I'm now writing again! How 'bout that! Enjoy.
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Just a little laugh.
Just thought this might give someone a little smile. I had Neulasta after 5 of my 6 chemo infusions. I had that little thing they attach to you. They put mine on my belly, said that was less intrusive than my arm,🤷♀️. Anyway after they stick it on you, it counts down a few seconds and then you get a tiny prick. I have a…
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March Birthdays?
Today is March 1st and I am going to blazenly say, It is My Birthday! I am so happy to celebrate this day feeling good! I walked an extended walk this beautiful morning just to prove I could. As always, I think today how fortunate I am and of all the ladies here with first dx and starting various treatments...particulatly…
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Did anyone else receive a private message from Silverfox2022?
Hi, Ladies I was just curious…it freaked me out a little…like, where did he come from? and now he seems to have vanished. We are very close here, and are pretty adept at sniffing a “fox in the henhouse.” Pun intended! I don’t think a more apropos pun exists! 😂 So this guy, Silverfox2022…Had some “red flags”…1) he’s a…