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Carol Werner's Passing "Pinky"
Dear Ladies: I just wanted to let you know that Pinky a/k/a Carol Werner passed away on Saturday, April 27th. You can see her obituary under Google as Carol Werner obituary under Schenectady, NY. I will always remember her as a good friend on the Uterine Board website. Cheerful a/k/a Jane
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Sandwich Treatment
I had debulking surgery on April 19 for my recurrence. My surgeons removed the vaginal lesion along with a lesion that was initially thought to be on the liver but instead was on the membrane that covered the diaphragm. The PET scan that I had on 2/14 detected these two lit up areas and the CT scan only saw the one on the…
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Recurrence Symptoms
Hello fellow members...hoping everyone is staying strong, and well. It has been sometime since my last posting. I have a question and hoping to get some insight. I was wondering what are the recurrence symptoms of endometrial cancer. I have been experiencing pain and burning sensations up in my vaginal canal area, same…
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Great story about decision making after dx.
https://whatsthefix.info/a-scientific-approach-to-being-a-patient-asking-questions-making-decisions-and-helping-others/#author She had a brain tumor but faced the same decisions we all do. Also makes a good point that most people don't know the questions to ask, don't get second opinions and don't have her expertise to…
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I bought some CBD oil
A few of the ladies here at our 55+ community here in Florida are using the CBD oil or cream for everything from sciatica, arthritis, insomnia, and shoulder pain AND, they all report it's working! So, I got the name of the place they bought theirs at and went there this afternoon. The lady behind the counter at the…
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More Insurance Mother May I
This is getting really old, really fast. My insurance company decided to reject the Vitrakvi, claiming they need proof I have the NTRK fusion and that there are no conflicting mutations. Errr .... isn't the Foundation One report proof of that? The ... blank? I am pretty darn sure the doctor is going to appeal the crud out…
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Hyperbarics oxygen
hello ladies, just wondering have any of you been referred to or heard of Hyperbarics oxygen treatment for after effects of radiation? I have been dx with radiation cystitis and pelvic radiation disease. I know nothing about this intervention. My quality of life has suffered greatly since radiation and it only gets worse.…
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Fever
Any of you ladies experience fevers after chemo ? After both chemo treatment, I have developed a fever 5-7 days later. No source of infection found the first time. Treated with antibiotics and went away in a few days. Currently have fever again, after second treatment. Initial tests ok, waiting on blood cultures to come…
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What and when- hormonal maintenance therapy?
Stage 4B. Scan after 3 carbo taxol NED. Scan after 6 carbo taxol NED. 6th cycle completed March. ER positive and PR positive. MSI stable. Grade 2. Type 1. Please advise per your experience: 1. Should hormone therapy begin now or later? When? 2. What medicines?
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MD Anderson
Hello All, My mother is experiencing a recurrence of her UPSC (originally stage 1a with no adjuvant therapy recommended after radical hysterectomy). Fourteen months after surgery, her CA125 jumped to 240 and the resulting pet scan showed widespread metastasis to multiple lymph nodes, mostly around her lungs, and nodules to…
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Stage IV Survivorship
This article nicely summarizes what some of us have been saying for awhile re: similarities w/ Stage IV and HIV (back in the old days). Given all the losses we've had recently, I figured some hope was in order. God knows you never see "IV" and "Survivor" used in the same sentence where I come from.…
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Test results. What does "not identified" mean?
I had a radical hysterectomy on April 15. I got some test results, although I'm supposed to wait for final results to discuss with my gyno oncol. I'm just trying to make sense of some of the reults and a lot of the lines have "not identified." Tumor site: endometrium, less than 1cm in diameter, on posterior wall, close to…
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Pelvic lymph node
my mom Is on her second recurrence of Anal cancer, tumor In vagina. Starts chemo next week they are optimistic but the pesky pelvic lymph node is really the issue there not sure how to handle. Anyones input on tearment for a pelvic lymph node? I asked why they move it they said it’s in a tough area, like really today in…
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UPSC survivors
Hi all. Secons post ;) 7 months ago, I got diagnoses with UPSC stage 4.... didn’t realize how serious serous cancer was, for quite some time. It dawnes on my, as i made the connection between serous and UPSC.... Stage 4 because it spread to distant lymph nodes.. I could be facing a reccurance already now, before first line…
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Study: Pelvic radiation vs. chemo + brachytherapy
I came across this new study and thought I'd post it here in case it helps someone down the road. "Superiority of VCB/C compared with pelvic RT was not demonstrated. Acute toxicity was greater with VCB/C; late toxicity was similar. Pelvic RT alone remains an effective, well-tolerated, and appropriate adjuvant treatment in…
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Rouleaux?
Anyone had a test for this? Apparently, it's a type of RBC disorder where at least some of the RBCs clump, looklng like coins. It can be seen in anything from infections to cancer. Well, we KNOW I have cancer. No question about that. It may not be the only thing going on in my body, but it IS in there. I looked in other…
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Re: Sad news about Pinky's UPSC cancer
Dear Ladies: I have been a very close and personal friend of Pinky's for the past 6 years. I met her through this Board at least through e-mails although I never met her personally and we shared a lot of things in common. We both live in different states and I live in PA and she lives in NY. I know she has posted…
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Biotene
i am not sure if i read about this on here or some place else. But i started using Biotene last night and it has made a difference already. It has helped with the dry mouth and weird food tastes. Maybe this will help someone else too.
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Mets to spleen (in UPSC)?
Hi all. First post here. In September I got diagnosed UPSC stage 4. Spread to distant lymph nodes. So, the doctors offered me 3 times chemo taxol/carboplatin. If this helped, they would offer me surgery, and finish of with 3 more chemo. Luckily it did. Have finished treatment now. CT Scan showed somethin in my spleen so…
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VISION ISSUES
Has anyone had trouble with their vision during chemo? My last treatment on the 15th was with Taxotere and Carbo. My vision has been fuzzy since a couple of days afterwards. I know vision issues are a possibilty. Any tips on how to deal with it ?? Thanks Ladies !!!!
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Interesting development; Metformin potentially credited
I am now 20 months post-chemo for the 2d recurrence of my endometrioid adenocarcinoma, orginally diagnosed in 2005 as Stage IC, Grade 2. Radical, open hysterectomy and pelvic radiation followed. First recurrence treated in 2012 with further radiation and high-dose progesterone. Second recurrence treated in 2017 with…
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It Just Keeps Going
I had an aggressive form of Uterine cancer. I had a total hysterectomy, six rounds of chemo (Paxlitaxel and Carboplatin), and three rounds of brachytherapy, and I'm a little more than a year out from those things. It was the hardest thing I have ever endured---and I've been through some serious stuff, but I know my ordeal…
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I want to take the holiday weekend off as a holiday from cancer!
I'm taking a weekend off from cancer! Sure, I'm in radiation and the side effects suck. But it's the holiday, my daughter came home from college with a gang of friends for the Seder. I cannot believe I did it, but I made the entire seder meal, and we had a wonderful time. She came home sporting a buzz cut. I was so upset -…
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Sometimes, life is not only about cancer
I can remember when Uterine cancer was all that I could attend to. After all, my gyn onc thought I would have a life-threatening recurrence. Well, by God’s grace, I never did and I am still alive and healthy after being diagnosed with stage 3a Serous Uterine carcinoma 5.5 years ago. The last two months of my life have…
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Radiation cystitis
hi all, just wondering if everyone has any treatment suggestions for radiation cystitits? happy holidays and best wishes to everyone
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Good news
Hi, I reached my 5 years clear for my MMMt Uterine cancer but the horrible breast cancer has spread again to the lining of the stomach and I have a clot in my arm.. I am a fighter so I will deal with it. I wish everyone a great Holiday for either Easter or Passover. I will check in again soon after my next Dr appt.
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financial help
This is not really relevent right now, as the best time to apply for this is in Jan. But I felt like sharing. Don't know if anyone has heard of Healthwell Foundation? They are a non-profit group that helps pay for some things that insurance doesn't pay enough of. Neulasta is one of those things, for chemo induced…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…
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Another Study - April 2018
Clinical impact of endometrial cancer stratified by genetic mutational profiles, POLE mutation, and microsatellite instability https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0195655 I realize this is a year old, and someone may have posted it (or some of you astute ladies read it) but just wanted to post…
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I'm new here and looking for some feedback....
Hello there, Just looking for some feedback... I am 45 and was diagnosed in September 2018 with what was originally called Stage III Ovarian but eventually called Stage IV Uterine. My CA125 was over 3000 at that time. I had a full hysterectomy as well as my appendix and a few tumors on the lining of my abdomen area…