-
Pinky, how are you doing?
Just wanted to let you know we're still thinking about you and praying that you are managing ok.
-
Ovarian Torsion
I was diagnosed with endometrial adenocarcinom, Grade 1 Stage 1A with a robotic hysterectomy in November 2018, with no further treatment. Last week I went to the emergency room with lower right abdominal pain. It turned out I had an ovarian torsion and had emergency surgery to remove the enlarged ovary that had a large…
-
This is just to make you laugh
We all know the feeling of waiting for the other shoe to drop in the first few years after our cancer diagnosis. The scans, the 3 mo. checks, the funny pain here and there. Well, my daughter was my rock for the last 2 years as I went through diagnosis, surgery, chemo, radiation; then a year later, recurrence; chemo and…
-
Frustrated
Just want to vent! It’s always something, isn’t it? Although my cancer is currently in remission due to Megace, I’ve suffered varying amount but constant pain due to the need for a renal stent because of a blockage of my right ureter probably due to radiation damage. My urologist had finally agreed to do a surgery to fix…
-
New here, any help?
Hello all, I have been on the anal cancee blog since 2015 in regards to my mom. Stage 2 diagnosed first time in 2015, treated with standard chemo and radiation. 2017 recurrence treated with apt colostomy removal of rectum and anus. Last week she had a pet scan for some issues with her urine (she just had a CLEAR PET scan…
-
After chemo
How long do muscle and bone aches and pains usually last after finishing chemo? 2 months from Carbo/Taxol and Neulasta. sometime in the near future I think I will have to have ankle surgery. I get get little stabbing pains in my foot and don’t know how long that might last.
-
Treatment Day
I want to thank you all for your responses to my Taxol and Taxotere posts. While my nerves are shot and I’m concerned about a repeat of an allergic reaction today, your words are comforting. God bless all of us on this journey.
-
Steroids
I’m pre-treating today with steroids in hopes of not having another allergic reaction tomorrow during treatment. I hate steroids. They jack me up and raise my heart rate. Ughhhhhhh
-
It just keeps coming back
This is my first post. I am not exactly new here as I have "crept" around reading different threads I thought were relatable. I don't feel especially knowlegeable. For instance, it took me a bit to figure out NED is no evidence of disease, which doesn't seem to mean disease-free, but maybe remission? I was first diagnosed…
-
A newbie with a question on ending chemo after 3 treatments
Hello All! This is my first post. My diagnosis was Uterine Serous Cell, Stage 1a, Grade 3, which was determined after surgery. Guess I was in denial before surgery but thought I was done since Stage 1a. I was shocked when they came back with the treatment plan of 3 brachy radiations, 6 chemo consisting of Paclitaxel &…
-
Hypothyroidism
I recently just learned that the treatments used for cancer can cause hypothyroidism. I'm now on thyroid medication everyday so my mysterious weight gain had a reason and since taking the medication the weight is coming off. Might want your doc to test your TSH (Thyroid-Stimulating Hormone) if they haven't already.
-
Taxotere
Heard back from the oncologist today. They are going to switch me to Taxotere since I’m reacting to the Taxol. Anyone have experience with it ?
-
Couldn't have radiation today due to technical difficulties!
I went for radiation today. Every time, they do a CT scan (they say it's limited and low energy) to make sure that my bladder is at the right point of fullness, and that everything is lined up correctly. Then they do the treatment. Today, after they did the CT scan, when they went to do the treatment, they couldn't,…
-
Second thoughts
Went to see radiologist for brachy therapy yesterday found out I'm not healed all the way from my surgery which was January 16th. Had to get rechecked by the surgeon to verify this to be true. She said no brachy until your healed. I'm having second thoughts about the pelvic radiation as well. What are the radiating if…
-
What Cancer Takes Away
I removed the link to the article. You are right, it is pretty dark. I enjoyed reading it because I recognized some of the thinking. It spoke to me because I am a naturally melancholic person. It is probably not helpful to share it here.
-
How to manage radiation-induced diarrhea?
Well, it's begun, and I can only assume it's going to get worse. I'm trying to eat white rice, white potato without the skin, and meat/eggs. Any other recommendations for what I can/cannot eat? I already know that I should avoid fiber.
-
Taxol reaction
-
mucusy rectal discharge during whole pelvic radiation
Well, now I'm really worried. Today I had my 9th whole pelvic IMRT treatment. My radiation oncologist said that he could administer a vaginal cuff boost via external beam, even though I asked if he could do the pelvic cuff via brachytherapy. So I'm not having any vaginal irritation, but I am having small amounts of clear…
-
Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
-
Bladder bulking
hi all, has anyone had bladder bulking due to nerve damage to bladder & urethra? My Dr. Is recommending Botox to bladder & collagen to urethra which will mean I will need to self catheterize 5/6 times a day. Looking for any input. Thank you in advance. All the best to all of you along this journeY.
-
How long can NED be expected?
Hi, I am writing this for someone. PET (Dec 2018) showed complete response to carbo taxol after 3 cycles (stage 4B grade 2). Continued 3 more cycles. Second PET (April 2019) done after the total 6 cycles also showed Complete response. Can you ladies please tell how long NED can be expected? Thanks.
-
Rash after hair loss
Has anyone experienced a rash on your head after hair loss. Any solutions to help with the itching.
-
Radiation
I saw the radiologist today and I'm getting the full treatment of radiation external and brachy. Even though I'm just stage ll serous he is recommending both because serous is aggressive. I will be have 25 external and 3 brachy which is standard procedure for the more aggressive cancers I understand. Hopefully this will…
-
Introduction/Mother's UPSC Recurrence
Hello everyone, I have found so much comfort and inspiration in your stories, I feel it’s time to reach out. It’s been hard to get the courage to put it all in writing because it makes it feel so much more real. My mother is currently experiencing a recurrence from her stage 1a UPSC. She has been diagnosed with widespread…
-
Sad news about linmk
linmk (Linda Kreuger) passed away earlier today. She'd been in hospice care at home for a couple of months and her nephew, Brad, was keeping her friends informed. Below is the email I received from Brad at 9:00 am. A few hours later she was gone. Godspeed, dear friend. p.s. thanks to cmb for finding Linda's photo and…
-
I think I might be addicted to Nyquil
I've been taking Nyquil for awhile now to relieve my neuropathy in my feet and help me sleep. Yesterday I ran out of it and just figured I'd run to Walgreens today or tomorrow when I had time. OMG, I was up all night!! I can't sleep without the stuff! My husband woke up at his usual time of 6:30 and I was still awake. I…
-
Dilemma
I met my gyn oncologist on April 2. Although she was not the original one intended for me because my gyn wanted me to get help in a hurry, I like her a lot. I had CT cans ordered by my regular gynecologist right away, so that the oncologist could have them two days later. My gynecologist was freaking out. Oncologist…
-
In the Process of Ruling Out Uterine Cancer Going Crazy
I'm not sure if I should even be posting as I haven't been diagnosed with cancer and this whole whirlwind has come about in a matter of a few days. I don't know who to talk to about this. I'm terrified of whats coming and then I wish that it was just over and I had an answer. This started this past Friday with some…
-
CA-125 has stopped going down. It's risen slightly
Ugh. My CA-125 years before diagnosis, before I had cancer, was in the low single digits. When I was diagnosed with UPSC/clear cell, in the uterus and isolated tumor cells in one sentinel node, it was about 35. It went up after surgery, and has slowly drifted down. After round 5 of chemo, it was about 12. Now, after round…
-
Sharing Hope
I am 9 years cancer free today! I had UPSC And Endometrial Adenocarcinoma when diagnosed. My CA 125 is holding steady at 7.1 I had 6 rounds of chemo and 3 rounds of vaginal brachytherapy. I am 68 years young and still enjoying an active sex life with my wonderful husband who has been with me through everything. Feeling…