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The Biggest Cancer News Of 2017? 'CAR-T Cells, Hands Down'
I thought you might find this interesting. Hope more immunotherapies will become available for uterine cancer. We all need to stay alive until medicine catches up with our needs. Happy New Year! http://www.wbur.org/commonhealth/2017/12/28/2017-cancer-news? "This week, the U.S. Food and Drug Administration approved the…
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Random questions re chemo after surgery
How soon after do you have to start it? I know it probably depends on your healing time, but I'm trying to get a rough timeline. I have to do three rounds of chemo after surgery, and I have one more session before. Right now, hopefully if things go OK, that would put me around May somewhere by the time I complete frontline…
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BLEEDING AGAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I am so upset right now, I told my husband I want to go to the ER but he is refusing seeing I have to see the gyno oncologist next Friday. I am crying buckets. Had to take the tranquilizers again. I am on the verge of going insane\] I had the D.C on November 17th. Bled for about one week after this. Gyno said it was…
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New -- just discharged from hysterectomy
Hi Everyone, I stumbled on this board several weeks ago and have been so moved and inspired by everyone's story. I was DX'd 10/23 with "malignant neoplasm" in the endometrium. I am 10 years post menopausal and the only symptom I had was some spotting; not even enough to call a period. My PCP sent me to a gyno who did a…
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HAPPY NEW YEAR
I just want to wish everyone here a Happy New Year. I hope and pray that each one of us gets the peace we deserve and the progress we deserve in fighting this horrible disease. God BE with all of you! xoxxo Karen aka Salty!
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Finally got the second neoadjuvant C-125 results
First one after the baseline, which was 121.6. It's now down to 43.7 after the first chemo treatment. Hopefully, the third treatment brings me even further down. So even if my fibroids are causing problems, I guess they're not causing THAT much of a problem. HOPEFULLY, between the third one and a hopefully-improved second…
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chemo burnout
Up until lately I have tolerated my therapy quite well, but things have been going south. I now have a blood clot and all that goes with that, and I am suddenly tired all the time and nauseous. I am not sure what to do, whether to ask about different treatments or ask for things that will alleviate symptoms. Anyone got…
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Torisel
They recently switched me from 3 years of avastin to torisel 3 months ago. Since then i have not had one good day and i am about to tell them to stop. Any perspectivesto offer? Had a cat scan this week and no progression.. i feel constantly dizzy, lightheases, exhausted by doing smallest tbing, etc etc. Before this i was…
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Went off HRT Cold turkey and going nuts! help!
Seeing I have atypical/complex endometrial hyperplasia and have pre-cancer as the gyno explained, I ditched my HRT Vivelle transdermal patch. Took it off almost 2 weeks ago and night sweats, changing nightgown at least 3 times a night, sometimes 5 times, and went to gym today and actually blew up on the treadmill. I am so…
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Merry Christmas
Merry Christmas and a Happy new year. Hoping everyone has a wonderful And and that this next uear finds us all here. i have much to be thankful far and your friendship is one of the many things wishing you a new year filled with peace and love and without pain and suffering. Hugs and prayers, Lou Ann
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Merry Christmas
Just wanted to wish everyone a Merry Christmas. I hope every one of you has a fabulous holiday and wish all the best for you in the New Year.
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CT scans, ultrasounds, etc. ... any contradictions?
I'm sorry. No matter how I look at my CT scan, it seems ... odd. Off. I am no doctor (though my PCP is, and even she thought the results were unusual, though she did mention that my gyno onco is more the expert on them.) My hunch may be futile or incorrect, and I know this. I also understand, as my SECOND-opinion doctor…
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Managing emotions
Hi, I am a new member. I got my diagnosis last week...and my husband got a Dx of prostate cancer one day later. My emotions are swinging wildly from hope and courage, to despair and unholy fear. I will have surgery on 1/11; he meets with a surgeon on 1/3 to determine his next step. His cancer is a moderately high grade so…
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five years
Whiile, unfortunately, I did not find this site until a year or so after my diagnosis, I celebrated my 5 years from my last treatment on Dec 19. Two of my sisters and I went to New York to see the Rocketts and dinner at the bar at the Rainbow Room. While we toasted to my luck, we also lamented the loss of my mother. I do…
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Merry, Merry, Happy, Happy to All!...one year ago today....
Wishing all the ladies here a calm, healing and easy holiday season. One year ago today, I had my first of 12 rounds of chemo for my second recurrence of endometrioid adenocarcinoma. I, for one, am happy to slam the door on 2017, and I look forward to improved health and more healing in 2018. My treatment succeeded in…
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INSURANCE DENIALS
So let me start by saying - I am grateful to have insurance (Blue Cross Anthem). With that said, I'm dismayed that the nuelestra (sp)? patch and nuepagin (sp)? shots have been denied twice. I was supposed to have the patch last chemo treatment (Dec 6th); but no one had verified insurance would cover - so did not get it or…
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Thankful for time.
I don't come out hear often but felt the need today. 5 years ago this next week I had my first chemo treatment. I was terrified, of the treatment, of the prognosis and if or how I would live through it all. I did not even think I would be here today given what the Dr.s all said. But apparently God has more planned than…
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Starting radiation January 2nd recommendations?
I’ve heard about Vitamin E suppositories. Are they for vagina or rectum? Vaginal expander, when to begin using it and how often. Why are these things needed? How much will the vagina or rectum change with radiation? Will I get to a point where everything won’t scare me? Can’t imagine how I would get through this without…
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Update on my Mom 4 Months After Completion of Frontline Treatment
Hi guys, Wanted to give you an update on my mom's current situation. So it's been four months since she completed all her frontline treatment. She finally got her CT scans back today and the lab results are: IMPRESSION: 1. Interval development of a small amount of ascites fluid in the posterior inferior pelvis since the…
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Update on my weird journey
Well, in September I was told chemo wasn’t working well enough, I was inoperable and they would add a 3rd drug Avastin to “try and stay ahead of the tumors. As of November 6, I’d been admitted to the hospital once with an ER visit because they thought I might be having a heart attack (I wasnt). Around this time my hair…
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Thought the pathology report would clear things up, but ...
Now I'm more confused. Originally, I was textbook adenocarcinoma. Then a CT scan implied that I had pertioneal and omental spread. I was diagonsed UPSC, Stage IVB. From Stage 1 adenocarcinoma to Stage IVB UPSC in two weeks is pretty darn drastic! The CT radiologist's report is ... odd. Even my family doctor said that, so…
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Hard time with chemo!
I had chemo 8 days ago, 3 hours of Taxol & 1 hour of Carboplatin. Doc said side effects would subside in 4 days but I'm still struggling with nausea and fatigue. I'm feeling guilty about this, like I should be feeling like my old self by now. Any feedback would be appreciated. Thanks.
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Blippin' Chemo Rash
I should have realized that things were going a little too smoothly with my chemo. Looking via Dr. Google, it appears to be a garden-variety chemo rash on my arms and legs. Not itchy, and it looks like a nasty heat rash. It's not summer here. It does seem to be getting a little worse, though. I've been trying to reach the…
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A Holiday update
It was one year ago today that I was told I had UPSC and was headed for surgery, chemo and radiation. They failed to mention the high risk for blood clots. So off I went into 2017 with a lot on my mind. Waited until after Christmas to break the news to family and friends. Had some bad times but as I reflect, it was not too…
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Umm, chemo body odor?
I am on carbo/taxol, and I have noticed an unpleasant body odor - it is especially strong about 5-7 days post-infusion. I can’t stand it - I sometimes shower twice a day to get rid of it. Does anyone else experience this?
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Going for hysterectomy and hysterical! help
I hope the ladies on here can help and talk to me. I have had 3 d/c's in the past 5 years. Always have a thick uterus lining. Sometimes 9. Doctor said anything over 4 or 5 is concerning. I have had biopsies galore. Symptoms were: postmenopausal bleeding. I am 59 years old. I have been using HRT patch for years. I have had…
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Make sure they pay attention to your bones
Despite my bringing this issue up in the very beginning, my doctors pretty much, in their efforts to save my life, ignored the state of my bones ( which were not good before treatment) and now due to the radiation my bones are in dire straights. I’ve had an email nsufficiency fracture of my sacrum and a compression…
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Lvsi
New to the site. I was diagnosed with UPSC early Oct and had a full hysterectomy late Nov. They removed 11 nodes uterus tubes ovaries cervix and omentum. I was staged 1a which was great but they also said I had extensive LVSI (Lympho vascular space invasion) I will be doing chemo and radiation in the new year. Was just…
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Scheduled to begin radiation in January TERRIFIED any suggestions?
Before all the biopsy results from hysterectomy came in we thought I was dealing with a completely contained cancer. Now facing 28 radiation treatments. I‘m still in shock and very fearful. Suggestions as to how to prepare mentally, physically and emotionally. I’m usually strong but this has me shook. Thanks for any help.
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Whole Pelvis Radiation
Hello All, Assuming no delays, I will be finishing R6 carboplatin/Taxol Jan 17th & beginning “whole pelvic“ radiation (sorry don’t know tech term) in February. My Oncology Surgeon had initially recommended vaginal cuff radiation; but my oncology radiologist wants to be more aggressive. I‘ll be scheduied for 5 weeks (M-F)…