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Recent MMMT Diagnosis - Seeking Advice and Support
I made the following post this morning on the "Are There any MMMT Survivors....." thread, and received several lovely responses. One recommeded that I start a new thread altogether, so that I could better track feedback. So here goes! I am an 89 year old woman recently diagnosed with Stage 4 Mullerian cancer. I lead a busy…
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Improved UPSC Outcome with Treatment of Mast Cell Activation Syndrome
I want to share this case study - Improved Metastatic Uterine Papillary Serous Cancer Outcome with Treatment of Mast Cell Activation Syndrome. You can read the study at this link - http://imaging.ubmmedica.com/all/editorial/cancernetwork/pdfs/2014-02-afrin.pdf My mother was diagnosed with stage IIIC2 UPSC in June of 2014.…
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primary serous peritoneal carcinoma
Hello Fellow Warriors! I had surgery February 9th - removal of 9.5 x 7 x 3 cm tumor on the omentum. When I saw the color photo of my doctor, Dr. Chen-Chi Hou and Dr. Yen-Yin Chiang I was floored - it was a huge thing - the omentum and the bulbulous, nutriton sucking, hemorraghing alien! The photo brought to mind my photos…
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Question???
Has anyone else had this happen to them? This was infusion day for me and I had labs, doctor's visit and my infusion. And all went well. All done... the nurse deaccessed my port, complete with the smelly stuff that is supposed to Close up the port. she put a bandaids on it and I left. As I was walking down the hall I felt…
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disordered proliferative endometrium w/ metaplastic change
Had my post op visit today following D&C on 2-14-17. Last week I had spoken w/ the nurse midwife on the phone and she indicated that the results showed something, and that the doctor would discuss what my next options would be. When I asked if there were any further tests she said no, it would be surgical. I then told her…
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Janae update
Hi, just wanted to let every one know how things are going. I feel like my neropathy in my fingers is a little better. Its not all gone but i dont seem to notice it as much. MY toes are a little better too but not as much as my fingers. My toes bothered me the most before. I notice the neropathy in my toes the most while i…
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Another Method of Hyperthermia
During my research I found a number of different ways that heat is being investigated to treat cancer. This link was one of the more interesting. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3720579/ Download the video file on the site for an easy-to-understand explanation. It's fascinating.
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Still Good News on Reoccurrence of UPSC
Hi Ladies: I still have good news regarding the reoccurrence of my cancer from October. MY CA level is now at 65 down from 134 back in October and November. I also had an ultrasound the very end of January and that was much improved over what it was in October so for now I still do not need to have chemo. I am taking it…
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Search people in my situation
Hi,everybody I have endometrial cancer for a year.Right away, the doctors said that it is a stage 4 because it is metastasized on the peritoneum. After chemotherapy( 6 rounds cisplatine /doxoburine/endoxan), the surgeon tried to operate me but too difficult. Carcinose péritonéal is in my diaphragm and intestin. Currently I…
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How do you care for a bald head?
I started losing my hair 15 days after my first treatment of taxol/carbo so had it shaved down to nubs lol . I had my 2nd treatment and 15 days after it most of my hair has come out, except for patches in the back. I have small red bumps and my Dr. prescribed mupirocin, which seems to be helping. I am using Johnson baby…
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rethinking cancer center/Taussig Institute @ Cleveland Clinic
I am in counseling w/ a social worker at a satellite branch of Cleveland Clinic.. This began while I was in treatment at the main campus for "pelvic floor dyfunction" physical therapy. I was first seen by a urologist there. Yesterday I had a session and discussed my upcoming appt. to review biopsy reports and also to…
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NED dancing with someone else... but not me
So months later, those suspicious areas that were there in October are still there, along with a few more. Everything is still very small and contained within the lymph nodes. Apparently, the lymph nodes are still not enlarged, but the two that showed hypermetabolic activity in October are showing more hypermetabolic…
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Waiting for biopsy
I am 47 years old and waiting to have a endometrial biopsy (D&C with myosure). I went three months last summer with no period, thought I was beginning perimenopause. I saw a gyn at the time but my hormone levels were all normal with no explanation. Once my periods returned, they were heavy and much longer than I had ever…
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Hormone Therapy
Another 3 months already! And this time, it is NED. Yayyyyyyyyyy I went off the Megace due to side effects, but remain on the Tamoxifen. My doc says to stay the course for now. But... (nothing is ever a slam-dunk), I have developed a cyst behind my knee that is causing the whole leg, from the groin to the middle of the…
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Gut bateria and immunotherapy Response Article
Interesting Article - can the bacteria in your gut affect whether you respond to cancer immunotherapy? http://www.businessinsider.com/link-between-microbiome-cancer-immunotherapy-skin-cancer-2017-2
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Interesting article on gut flora
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Herceptin vs Perjeta vs Kadcyla
Has anyone tried Herceptin, Perjeta or Kadcyla? My mother has uterine serous. She has been tested to be HER2 positive on Foundation 1. Considering options beyond CarboTaxolAvastin.
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Are there any survivors from stage IIIB endometrioid endometrial adenocarcinoma grade 3 out there?
Hi, I am glad I have finally found this Forum, after months of exhausting and useless researches. I am from Italy and, as far as I know, there is nothing similar in Italian. But it’s very important to get advice and support from other women with your own experience: all of you, ladies, are really great! I apologize for…
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New Here-tough decision brachytherapy or full pelvic
I was diagnosed with Grade 2 endometrial cancer and had a complete hysterectomy in Dec. After the surgery they staged it as IIIC1. I had 1 lymph node out of 8 positive (they removed the one during surgery) they said the tumor invades to the connective tissue of the cervix but does not extend beyond uterus. I have had 2…
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preliminary vs. final results
I called the gyn. office last Friday. Lab tech said only pre-lim results were back, but dr. was not in office to review. She also said I wouldn't want the pre=lim anyway, but would want to wait for the final results. (D&C on Valentines Day, removal of polyps and endometrial samples) On other occasions, when things were…
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2 primarys diagnosed-uterine and fallopian
Hi I am here fighting for my mother Ellen who was diagnosed with Uterine and Fallopian cancer in 2015. She had 3 roulds of carbo/taxel. The cancer is recurrent and her docs cannot offer her any more help. I am searching for clinical trials and I just wanted to know if may anyone has heard of a trial covering 2 primaries. I…
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Doxil Question?
I'm on single agent doxil now. I have had 5 infusions, and my disease is "stable". My CA-125 was "stable", but decreased from the high 180. My symptoms are non-existent. I have a small nodule on my rib that has decreased in size, so that it's no longer visible (the area where the tumor is tender, but no different than the…
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Essential Oils
i have been wondering about essentials oils mainly to help with the pain I have in my hip and shoulder, so I ordered a small set from Amazon and asked my Oncologist about using them. He said that as long as I didnot put it in my mouth he had no problem with it. He said injesting it may not be good with my treatment.…
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My question
Hi everyone, I am new here but I have been reading and reading. I hsve nothing but admiraation for the members of this group and hope you cna help me figure out what to do. To mke a long and rather unremakable story short, I started habing a little spotting around Labor Day and was diagnosed with UPSC last December. I had…
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cT Scan Results and Need some help...
I am posting here as this board is more active. I got mixed news regarding Doxil-- my disease is stable. But I cannot remain on Doxil forever. We are military and moving (probably D.C.), and so I am looking for a clinical trial. Does anyone know where to start? We will find out for sure in March where we are going. Do I…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Laparotomy: Nerve damage
Hey folks. For those of you who had a laparotomy, have you had any lingering nerve damage? I actually lost the ability to move my left leg out to in for a long time. It still feels weak. I was also very numb on the left groin area and while I regained some feeling, I still can't feel hot/cold temperatures in certain spots…
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It was worth it
Today was lab, doctor visit, and infusion day. Except for a new phlebotomist who had a lot of trouble accessing my port, it was a really good day. The tumor in my neck has shrunk down to almost nothing, so the horror of wearing the mask and being pinned down on a board for radiation was worth it. My CA125 level dropped…
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Moffitt patients and experiences?
I posted this interest (twice!) under the recent Opdivo stream but thought I would pull it out as a separate discussion for those of us in Florida using Moffitt. I too saw Dr Chon for a second opinion last November and plan to continue to use Moffitt for consults since I am a Floridian. After carbo/taxol did not work for…
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UPSC - Bitter sweet day
Hi again. I introduced myself in an old post and was encouraged to start a new one if I posted again. My name is Tracy. I am 46 years old and was diagnosed in late July 2015 with Stage 1A UPSC grade 3 tumor. I finished treatment of surgery, chemo and radiation on Christmas Eve 2015. I just had my one year check after…