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Uterine/Endometrial Cancer

Archives for April 2016

Did anyone else lose their About Me information?
Hi All, I just noticed that my About Me information is gone. I have a feeling it was wiped out with the maintenance upgrade yesterday. Cindi
Hello dear ones!
I am, for good or worse, back! Thank you all for keeping me in your thoughts and prayers and Moli's hug! It was a rough one, coupled with my heart getting wonky again. So far they are going to treat it with meds and hope to keep it stable til I turn 65 in Dec. to get the problem really diagnosed. They seem to think the…
OK - I'm officially "de"ported!
Just got back from the surgeon's office. My port is officially out of my body. Time to celebrate. Can't wait for it to heal where I can stretch my left arm up without pulling. It is an interesting little device. The doctor showed it to me. I could feel it pop out when he removed it. I think the apprehension was worse than…
Lou Ann updating update
Avastin infusion want well and the side effects seem minimal for now. The fatigue is there and it is causing some digestive issues, no appitite, a little constipatio, and a little nausia. I have a little pain in my lower right abdomaen and the area were I have a couple of tumors. I had a visit with a orthopedist yesterday…
Need advice about "hysterectomy backache"
3 weeks out from surgery and hitting a wall! I have a serious allergy to either the glue or to some antibiotic placed in the wounds across my belly. Abdomen covered for 2 weeks of firy itch still! Now I have a UTI which is a condition I am not prone to - from the catheter I guess. Antibiotics for that really causing…
CA 125 going up
Hi, My CA 125 numbers have been going up. 8.9.9.13.17.30. I am 18 months NED with MMMT uterine cancer. The Dr. said I have to wait a month to repeat the blood test and if it keeps going up another Cat scan to see if I might be having a recurrence. I feel great except for my RA. They said that because it almost doubled they…
Brachytherapy dilator use
I've just finished my 6 rounds of chemo and am now scheduled for brachytherapy radiation (they had found stage 1A carcinosarcoma (MMMT) and UPSC). I'm now scheduled for 3 brachytherapy sessions. I'm finding that I'm rather anxious particularly about the long term dilator use. I found that research on the effectiveness…
Port Question
im getting my port on Monday. I was thinking it would be better to have it on my non-dominant side (which would be left for me.). But as I was driving in the car today, I realized that might be exactly where the seatbelt hits. Which side is preferable for the port or do we have a choice?
Tech difficulties again
Ok, since I decided to add a picture to my post, it is sideways and I don't know why and I have no idea how to correct it. Anyone have an idea?
Lou Ann updating
I don't feel like I have been doing a very good job here lately. Some times I have been so tired that I have had trouble reading everyone's posts. Everything kind of blends together Chemo brain at its best. I know there are new members of this selective group that I haven't welcomed and many posts that I haven't answered.…
Lymphederma
On recovering from the robotic surgery 2 weeks ago I have endeavored to take a walk in the neighborhood as much as is comfortable. The length of the walk increased slightly every time (about every 2 days). On last Monday I noticed I could not walk as far as earlier due to groin pain and actually had to lay on the side of…
Social Security
Has anyone here applied for Social Security under disability or compassionate allowances? I recently became aware that some stages of cancers will automatically qualify you for disability.
Possible recurrence at incision update
Ok. I went to the doctor and she sent me to a surgeon. I am actually having a CT scan today and meeting with surgeon tomorrow about removing the mass. The mass is now bigger than a golf ball and starting to cause some pain. CT scan should show how far into the abdominal cavity the mass goes and how invasive the surgery…
Back to work tomorrow
Tomorrow is a big day for me as I will be returning to work after being off for 8 months to complete & recover from surgery and chemo-radiation. I am looking forward to this day as the beginning of my new life; however, I find myself being extremely emotional today which is not normal for me. I've just returned from a week…
Hi some advice would be nice...should i go to the Er?
Hi guys, First of all I would like to say thank you all for your encouraging stories. I have not yet been diagnosed with cancer but I am VERY concerned. Here is what's been going on. For the last year to year and a half my periods have been very off. I have had everything from 40 days with no period to 3 months straight of…
Oxaliplatin?
Hello Ladies, I am not frequently on this blog but when I do, I find you all have such great information. I love reading the NED stories and all the hopeful and good scans. To recap: I was diagnosed in January of 2015 with stage 4 endometrial and in Feb 2015, had a successful surgery removing both small and large tumors…
Pathology report post DiVinci - Requesting guidance
I'm Not sure how to post this news and have delayed it a few days. I care about all the sisters here who have weathered with grace all my complaining and moaning so it's with a pinch of irrational guilt that I report this good news. The path report following last week's hysterectomy came back: "Grade dropped to 1 from the…
And the healing continues
Apparently I did end up getting an infection. They have put me on amox-clav to try and clear it up. I got to meet with my oncol, and she said 6 more weeks of nothing strenuous .. pick nothing up over 6 lbs, no baths still... etc. It's funny, since my surgery I've craved nothing but sweets and meat. Before my surgery I…
Metformin Worked
A month ago I put myself on 1000 mgs. of Metformin. I had a Cat scan done this past Monday. My nodules all shrank significantly. Two nodules decreased by one half their size. The other two are also very small. The oncologist said they are now so small they could not be biopsied. She decided to increase my Metformin to 1500…
chemo 6 is done, I got to ring the bell!
I held my breath when I looked at my blood work yesterday and was surprised. My platelets were 149 - I'm almost normal! I can't believe they gained from 63 last week to 149. So I got full course of chemo today, although I think both were at the reduced dose. I asked for the maximum, but my doctor told me that the reduced…
Moli updating
Yea!!! Got my surgery date ,everyone is on board for May 13 th at noon for combined surgery. (dancing while I type) Hope I don't cry later when I am off my good news' high', I am high as a kite and feel as brave as brave can be, I have begged for it , reasoned for it, argued for it,Pouted for it, silently cursed for it,NOW…
Clinical Trial
Hello ladies, My sister is still continuing to struggle with finding a chemo to work. She had 6 rounds of carbo/taxol...mixed results and spread to liver. Doxil...liver growth....Doxil with Avastin (one round) but then got back bad blood work for her liver. Dr thought there might be blockage and was planning on putting in…
I am 5 years Cancer Free! What a Tremendous and Wonderful Feat from UPSC - Stage 1!
Hi Everyone: I just wanted to let everyone know my Tremendous and Wonderful Feat that I am now 5 years cancer free! I was originally diagnosed in February of 2011 with Stage 1 of UPSC and I never had a reoccurrence. I am so thrilled and happy that I made it to my 5 year mark. I plan on going out to dinner in the next few…
I am 5 years Cancer Free! What a Tremendous and Wonderful Feat from UPSC - Stage 1!
Hi Everyone: I just wanted to let everyone know my Tremendous and Wonderful Feat that I am now 5 years cancer free! I was originally diagnosed in February of 2011 with Stage 1 of UPSC and I never had a reoccurrence. I am so thrilled and happy that I made it to my 5 year mark. I plan on going out to dinner in the next few…
Lung Nodules
I had a Cat scan this past Monday and received the results on Tuesday with my oncologist. I have had six chemo treatments with only minimal results on the first few scans. This scan after chemo #6 show some nodules decreased by half and all significantly smaller. The oncologist was really happy with the results. After she…
Importance of power of attorney, living will, health care power of attorney
Just a reminder of how important it is to have our "paper work" in order. We are seeing our lawyer next week to make sure everything is up-to-date. I know we have to make some changes to our wills since we adopted our granddaughter last summer. But...I have a funny story to tell you. When my mother remarried in 1991, she…
Ovarian Cancer Dose Dense Numbers Falling Question
I have stage four ovarian cancer (the board is slow so posting here). I was originally on the dose dense protocol-- carbo/taxol one week, and taxol every three weeks. This is my frontline protocol. I had a hysterectomy on 2/5/2016. Started chemo on 3/5/2016. I am responding very well to chemo. No issues with side effects--…
Adenomyosis link to Endometrial Adenocarcinoma - anybody else shares this experience?
Hello Ladies, I don't post too often, but have been looking at risk factors for type 2 endometrial carcinoma in the hopes of raising awareness among my friends and family about this terrible disease. I developed a condition called Adenomyosis about 5 years ago, it causes extremely heavy periods, my family doctor ordered…
Belly on Fire!
I know it's a sign of healing but HELP! The puncture wounds across my belly are itching and stinging to the point that it's all I can think off. Neosporin not the answer. No signs of infection but anybody have a suggestion?
Good news at my brain test!
I went in for my brain/eye test this morning and they said I have damage on the left side of my brain; none on the right and with therapy, it can probably be overcome. They put these goggles on me that record my eye movement while I have to do all kinds of things while moving my head around as the therapist directed. They…

Uterine/Endometrial Cancer

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