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New Research: Vaginal Brachytherapy Improves 5-Year Quality of Life in Endometrial Cancer
This just came out today. (NOTE THE 5 YEAR SURVIVAL RATES FOR HIGH-GRADE ENDOMETRIAL CANCERS: 79.6% vs. 84.8%, respectively! NOT BAD!!!) : Elsevier Global Medical News. 2010 Sept 23, S Freeman BARCELONA (EGMN) - Vaginal brachytherapy for high-intermediate risk endometrial cancer is associated with significantly less…
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Dilator problems after vaginal cuff radiation
I had 3 vaginal cuff radiation treatments and then was given the dilator to break up scar tissue. I am not sure if I am doing it right or how many times a week to do it or for how long at a time. I have a very dry vagina canal and can not use the hormone cream. So my questions are: 1. How many days a week should I be using…
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Fertility options
Here is an interesting article on how some young women can possibly preserve their fertility with early stage, grade 1 uterine cancer: http://health.usnews.com/health-news/family-health/cancer/articles/2010/09/29/iud-proposed-to-treat-uterine-cancer.html It is still experimental, but if I were in that situation, I would…
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Help when you are having trouble paying for things
THis is from my mom. She got it from the NYTimes and wanted to share. Here is a list of places to seek help: — Genentech: www.GenentechAccessSolutions.com — Novartis: http://www.patientassistancenow.com — Patient Advocate Foundation, 800-532-5274 www.patientadvocate.org — CancerCare, 866-552-6729 www.cancercarecopay.org —…
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UNDERSTANDING
OKAY I JUST GOT DIAGNOIS LAST WEEK. WHEN I STARTED ON THIS SITE EVERYONE KEPT TELLING ME TO ASK FOR A COPY OF MY PATHOLOGY REPORT. I JUST GOT THE REPORT TODAY NOW CAN SOMEONE HELP ME UNDERSTAND IT? IT SAYS I HAVE ENDOMETRIOID ENDOMETRIAL CARCINOMA, FIGO GRADE I/III. I KNOW I HAVE ENDOMETRIAL CANCER BUT WHAT IS THE FIGO…
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Once chemos and radiation are completed what is protocol for scans and tests and follow up
Hi all. Once treatment plan is completed (surgery/chemos/radiations/chemos) what is the standard protocol for follow up visits and tests? At what point is a scan done after treatments are completed? Do they do a CT to include up to neck or head as well as the CA125 test, and exam? Please advise. Strength,healing and hope…
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My 5th chemo was cancelled today due to low platelet counts
Hi all. Was scheduled to get my 5th chemo today. My white counts needed to come up and they did come up alittle bit from last week, WBC now 2.3 and Neutrophils now 1.6, but hemaglobin dropped to 9.0 and platelets to 79 (should be 150-400), so chemo was not allowed. I was a bit relieved as I would like the opportunity for…
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NATURAL CELLULAR DEFENSE, USED TO BE Z NATURAL (DISCONTINUED). ANYONE HAVE EXPERIENCE WITH THIS?
sisters, W i;ve heard alot about z natural, however, it is not discontinued. there are a number of other cellular defense products, and am wondering if any of you have tried it, or have had any experience with it. i'm thinking of ordering it myself, but wanted to hear from you first. thanx. maggie
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RO, HAVEN'T HEARD FROM YOU . HOPE ALL IS WELL
hi ro. i had been wondering about your post earlier this month re: rising ca 125, and clear ct scans, but haven't heard from you. don't know if you saw the discussion thread, or just didn't want to respond, or something else. so i wanted to check that everything was ok with you. sisterhood,maggie
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New to site
I am 30 years old and I just got dignaose with Endometrial Cancer. I have lot of questions and a lot of things I do not understand. I will be going to see a specialist on Oct 1st. To say I am scared is an understament. I found out on Wed since then I have hardley slept and have spent most of the time crying. Family and…
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Toronto Members?
I have been diagnosed with Grade 2 uterine cancer through a biopsy done by my gynecologist. I was referred to Sunnybrook and the Oncologist there is having his lab verify that it is indeed grade 2. He only operates on Grade 2 and 3 -- not Grade 1. Are there any Toronto members online here? Does anyone have experience with…
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Water Aerobics during chemo?
Anyone have opinions about doing water aerobics during chemo?
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Bok Choy & Kale Recipes
I'm delving into unknown territory with these vegies and thought some of you have a "special" way to prepare. I've got a wok and steamer and bet this route may work too. Seems like so many cookbooks suggest saute in oil with spices, but thought I'd ask you all the experts. Ideas? Thanks! Jan
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Has there ever been a study on blood types and treatment?
I was just wondering. Since everyone has different blood types and if you give someone the wrong blood, things can go wrong. Has there ever been a study to see what treatment fits better with the different blood types? Here are my specs. CA125 did not come into play. My blood type is B+. I am allergic to Taxol. They didn't…
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ro, wondering re: your 2 september post, rising ca 125 and clear ct scans
hi ro, meant to get back to you re: a question about your ca 125 rising, but clear ct scans, thank goodness. may i ask how many times your ca 125 rose and to what number? my ca 125 is still within "normal" (around 20), but has been slowly rising this past year from 11 to 20 after chemo, so i was interested in your…
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ro, wondering re: your 2 september post, rising ca 125 and clear ct scans
hi ro, meant to get back to you re: a question about your ca 125 rising, but clear ct scans, thank goodness. may i ask how many times your ca 125 rose and to what number? my ca 125 is still within "normal" (around 20), but has been slowly rising this past year from 11 to 20 after chemo, so i was interested in your…
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Did anyone else's white counts drop after 4th or 5th chemo and radiation to WBC below 2 and neutroph
Hi everyone, Did anyone else cope with low white counts that dipped really low in the later chemos during sandwich therapy? Currently, two weeks after my 4th chemo (which was preceded by five weeks of radiation).....my white counts are really low. I know this is expected but it makes me nervous. My overall WBC is lowest it…
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3 months check up done today
Hello. My mother had check up today. I am bit worried about it. Let me Explain Her Ca125 protocall Her ca125 was 117 before surgery 1 may 2009 then they did on august 2009 was 7.9 during chemo oct09 5.6 july10 5.8( I was happy because it is stable from nearly 1 yr) 23 Sept 10 was 7.2( It has risen by 1.4 point in 3 months)…
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Low white cell counts following 4th chemo
Hi friends, I am currently on the sandwich therapy, and to date have completed 3 chemos, 5 weeks of radiation, and then my 4th chemo two weeks ago. I just had my bloodwork results back last night, and my white counts are very low. My medical team focuses mostly on the neutrophil count. My WBC is 1.4 (normal range is 4-10),…
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Karen or anyone please
Hi Karen and Anyone, Please advise me and help me. I have mentioned Karen Name because she has same type of uterine ca my mother had... My mother stomach feels full of gas and she feel some time pain when she back from toilet. Pain is not too much but she has gas all time. I am so much worried abt her. Her doctor do only…
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Ascites
Re. my post yesterday to June, the tummy bloating is due to mild ascites that my mum has developed. There is omentum thickness which indicates spread in the abdomen. I am very upset about this, however hoping that the oncologist alters the chemo medicines which take care of this. She is extremely weak so I am not sure if…
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ct , pet scans, ct/pet scans: what are people's experience of these re: enlarged nodes?
sisters, there was an earlier thread on this subject that was deleted. am wondering if some of those who had posted on this subject before, wouldn't mind doing so again? e.g., some had pet scans, some had ct scans, some had ct/pet scans--many with differing results/outcomes, false positives, etc. thanx, maggie
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Moving from Primary Care to Hospice
My mother was diagnosed with uterine cancer last week after the results of a biopsy were received. A PET scan was also done. Primary care referred us directly to hospice and has not been willing to give us a referral to an oncologist. Because my mom was in so much pain and not able to keep anything down, we took the…
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To J Mullen 16------Does CA125 test only confirm cancer returning to original location?
Hi all. Does the CA125 cancer marker test only indicate if cancer has reoccured in the original location? I thought often if cancer returns even to a different location that is usually originates from the first cancer. That is a bit scarey if that is the case, that the CA125 test is only indicative of a return to the…
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Madura-how is mom?
Please let us know how mom is doing. June
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Any advice for taking L-Glutamine powder?
Hello, I was advised to take vitamin B6 and 30 oz. a day of L-Glutamine powder for neuropathy related to my chemotherapy. The powder has a little bit of flavor-kind of chalky. Ideally I would take about two tablespoons three times a day. Does anyone else take this? Do you have a favorite way to get it down? I'm not much of…
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CYBERKNIFE
sisters, i was just hearing about cyberknife from a friend when i read a brief post by claudia mentioning it. i have begun looking it up, and it seems a very, very interesting and exciting possibility. i'm sure many of you have heard of it, but, until recently, i hadn't. cyberknife is a very directed radiation that…
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Low Platelets preventing chemo #6 anyone else have this problem?
Couldn't get my last treatment on Wednesday because of low platelets 55,000 and the normal is 140,000 and above. Did anyone else have this problem? Did they come back up after waiting a week? If not what happens next do they just not do treatment #6? Do they do a blood transfusion? Any help would be appreciated.
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Ok Guys, here is a good joke for all of you!!!
Do you remember I told you guys that my Doc has no bedside manners and is always in a rush? Well,,,,, I saw him yesterday, buying lunch and I approached him just to say hello (he was alone). Here's the kicker, he did not know who I was and what he treated me for. How about that?? He is not an old guy so age is not an…
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Alleviating & controlling DOXIL side effects ; what I've learned
I won't be posting for a few days because you are not supposed to do anything that cause friction between your toes and fingers for 3 to 5 days after a Doxil infusion to help prevent the hand/foot syndrome, with TYPING specifically listed. (ARGH! I can't imagine being cut off from you all and Facebook and my grantwriting…