Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Archives for February 2013

I received my second lab report from John Hopkins
My first lab report from biopsy done in January of 2013 read as follows: Healthtronics Lab Base Adenocarcinoma 7(3+4) Tumor 20% and Length 4.2mm Mid Adenocarcinoma 6(3+3) Tumor 50% and Length 11.5% 2nd Opinion John Hopkins lab 3 + 3 = 6 Discontinuously involving 30% of one core of the total fragmented specimen. 3 + 3 = 6…
Update: 6 week post op results with MD Anderson and Dr. John Davis
Ok, So I had robotic assisted radical prostatectomy on January, 14 2013 at MD Anderson with Dr. John Davis. I am 49 years old and had a gleason score of 6 (3+3). He also did a lymph node descretion. I can not say enough about MD anderson and Dr. John Davis and his staff. I was in the hospital for 2 days, went home, had a…
Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
Bone & CT scans when biopsies are clear?
I'm writing with a question/concern for my father who has had a steadily climbing PSA over the years, with 5 biopsies. On the 3rd biopsy, one sample came back positive for cancer out of the 24 collected. It was decided at that time to do 'watchful waiting" and monitor. They have done two more biopsies that were both clear…
Artificial Urinary Sphincter Implant (AMS 800) -- help!!!
Seeking Others to Discuss Their Experience w/ AUS Implant (AMS 800): I am inquiring for my father-in-law (fil) who has limited internet access. He is 63, prostate removed 13 months ago, now suffering from incontinence. Received 2nd opinion yesterday from Mayo and was told he had 2 options: 1) status-quo -- it won't get…
Artificial Urinary Sphincter Implant (AMS 800) -- help!!!
Seeking Others to Discuss Their Experience w/ AUS Implant (AMS 800): I am inquiring for my father-in-law (fil) who has limited internet access. He is 63, prostate removed 13 months ago, now suffering from incontinence. Received 2nd opinion yesterday from Mayo and was told he had 2 options: 1) status-quo -- it won't get…
Reluctant New Member
Recently diagnosed. PSA slowly increased from 0.78 in 2005 to 4.1 in 2012. DRE indicated small area of irregularity. Biopsy - 4 of 12 cores positive. Staged as T2C. Original Urologist along with 2nd and 3rd opinions all recommend surgery given age (58) stage and overall health (no real issues). MRI scheduled for late March…
Fill Your Days With Nuts, Olive Oil, Chocolate and Wine - NYTimes.com
http://www.nytimes.com/2013/02/26/health/fill-your-days-with-nuts-olive-oil-chocolate-and-wine.html?_r=0
Uncertainty
My PSA came back 0.000. My last HT shot nurse told me that Dr. Did research now had to get shot divided, on both sides of stomach. Side one did great. Side two, after two weeks, finally stopped hurting but was still about three inches long and skin at end of injection site started flaking off. Like it was dying. Called…
When are you cured?
Are you ever cured from prostate cancer? I had RLRP November 5th, all has gone well 1st PSA 0.03 2nd PSA at 3 months 0.01. So when can you relax, 5 years, 10 years? I wish everyone that has this disease could have the same experience as I have had so far. Good luck guys and gals.
Mercy me
Iam on eligard for 6 months because I had a psa of 6.3. I have had robotic surgery and radiation. What is the relationship between rising psa and the reoccurance of prostate cancer. So if you didn,t do anything about a rising psa eventually cancer pops up somewhere in your body,what is the percentage of that. I really…
External Cathethers
Has anyone used external cathethers and are you happy with them? Does anyone use them all day instead of Pads? Thanks, Lion1
Prostate Robotic Surgeon recommendations
My husband was recently diagnosed with PC – gleason 7 – 3,4 – he is 50 years old. We are trying to figure out options – and doctors are recommending surgery. We are not sure what to do – but given everyone is pushing surgery due to his age, I want to ensure my husband has the best possible doctor. Reading about the…
Any Scholarships out there for students of Prostate cancer survivors?
My son who is 18 is starting college in the fall, just wondering if there is any scholarship money out there for those children who help thier fathers surive prostate cancer? Thanks for your help My information: My Information: PSA: 4.9 (Initial test performed Feb 14th) Antibotics taken for 6 weeks prior to next test. PSA:…
Eligard & casodex for Metas. Pc And now Kidney stones
I've been taking Eligard every 3 months since Nov. 2011. Now Casodex was added taking 1 pill everyday since Nov. 2012. Last week I began to have severe pain in my groin and pelvic area which did go to the lower back. They did an MRI and located a kidney stone. Long story short they prescribed Flomax to help stone pass…
Looking for went through radiation treatments. Good or Bad
I have to go through radiation treatments. Looking for people who went through it. What to expect. The good the bad and the ugly.
CWRU School of Medicine discovery
This research facility is saying they have discovered a gene Chk1 that when turn on stops, and kills cancer cells. Interesting read. Hopefully a cure is coming for metastic cancer. Mike
needing support as my husband's caregiver
I am a 61 year old American Living in the Netherlands for the last 13 1/2 years, a NEW wife of a nearly 77 year old man (HS) battling his prostate cancer for 12 years, 3+ with me. I met him too soon after a mostly miserable 24 year 2nd marriage/divorce and knew after a 6 month friendship that he was my soulmate. If there…
Anybody els having as much fun as I am
Had a 9.5 PSA, Gleason score 3+4. I'm 54. Asked the Doctor, "what would you do if it were you". Told me "at your age I'd get it out". Well I never had any health problems before so I figured these guys would know. So I get hooked up with a surgeon. Get the robotic surgery, come home the next day. cath out 10 days later,…
Having PCa Has not Made me an Expert on this topic
Having had stage iv PCa- Devinci surgery, radiation and hormone shots- Eligard- has not made me an expert. What advice I share is only observations from my own experience. I picked up a few medical terms along the way, but really, from my lone prospective I know very little. I do know I did not feel comfortable with the…
Back ache and metastasis
I have developed really bad back ache in the center of my lower back. It seems much more severe and localised than my usual back problems which I have had for a long time Is there any way my Pca could have spread to my back in such a short time. My last PSA was 0.8 up 0.06 from 3 months ago and it is one year since I…
SHORTER ADT APPEARS TO BE BEST FOR HIGH RISK PROSTRATE CANCER
Hello EVERYONE----HOPE YOU ARE DOING WELL WAnted to share a report published on www.medscape .com regarding androgen blockade. Report was written by Nick Mulcahey --dated February 12,2013 Report states > Long term androgen blockade in men with high risk localized prostrate cancer CAN BE SAFELY reduced from the current…
Dads PSA 43, worried about his wellbeing. Need help!
Hi Guys I'm very worried that my dad might have prostate cancer. His latest blood tests revealed a PSA of 43, his 3 previous tests revealed a PSA of 3,3.2 and 3.6. The specialist told him to have a biopsy when the PSA was 3.6 which he did...they took 10 samples but couldn't find anything. During this past few weeks he has…
Is second opinion recommended with Gleason score of 10?
I learned last week Tuesday I had an aggresive cancer in my prostate. It started with my PSA = 12.30 on a routine bloodwork test for my insurance wellness program (new to me this year). Biopsy of 10 samples taken, 5 from each side; my doc tells me left side gleason scores are 7's and right side are 10's. He highly…
Is second opinion recommended with Gleason score of 10?
I learned last week Tuesday I had an aggresive cancer in my prostate. It started with my PSA = 12.30 on a routine bloodwork test for my insurance wellness program (new to me this year). Biopsy of 10 samples taken, 5 from each side; my doc tells me left side gleason scores are 7's and right side are 10's. He highly…
AUS 800 Surgery on February 6
In an attempt to solve a continuing incontinence problem (2.3 Depends Pads per day) on Wednesday, Feb 6, 2013, Dr. Anthony Stone http://www.ucdmc.ucdavis.edu/publish/facultybio/urology/187 installed an American Medical Systems AUS 800. I am 81 years, had RPS ten years ago at another Medical Center, with a <.01 PSA level…
Looking for Referral for Urologist in Portland, OR for 2nd Opinion
I want to get a 2nd opinion on my lab results. Is it best to stay with the same Dr and have him request the slides be sent to a different lab or find a new Dr and have him send the slides? Thanks, Jim
Funny things that happen
I have read horror story after horror story and this topic is in no way trying to minimize the pain and suffering cancer imposes. But there where some funny things that happened or I did. (I blame the drugs) As I was walking by the nurses station while on my many trips up and down the hallway, I stopped and looked in. They…
Harmone treatments following Cyber Knife...Good or Bad
I am 71 and had Cyber Knife treatment (5 Treatments) 3 months ago...my Urologist wants to continue to give me a harmone shot every three months totally four after the last one. One was given to me a month prior to Cyber Knife; I have read several negative comments about this Urologist's commitment to giving me these shots;…
My dilemma about a 2nd Opinion and a Request for Referrals to a Great Urologist in Portland Oregon
Here is my deliema....I want a 2nd opinion regarding my lab results and from agreat Urologist in Portland Oregon. after looking at my test results...however...since I have been diagnosed with Gleason 7 3+4 no matter what the 2nd opinion has to say am I not just stalling and/or putting off the inevitable which is Robotic…

Prostate Cancer

Discussion List