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Do you ever stop worrying?
I was diagnosed with a rare form of ovarian cancer in 2010 (Granulosa Cell Tumor), underwent a hysterctomy, they removed the left ovary where the tumor had been and because they found cells in the abdominal wall was Stage 2B and underwent 3 rounds of BEP chemo. I never considered myself a "survivor" because I was told my…
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port flush
I have a bard port that I usually get flushed every 6 weeks or so. I will be rv'ing the summer away and don't know where to go to get my port flushed. If I am REALLY lucky, I may get 3 months if the $$$$$$$ holds out! My onc. is with Florida Cancer Specialists, and, of course, they are only located in FLA. I didn't get any…
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More surgery
hi all , my numbers have been rising slowly a few points at a time after finishing 1st line treatment sept 2014, Avastin was started 3 weekly to prevent or at least slow down recurrance which I believe it has done, ca125 is at 86 at the moment and my oncologist is doing another ct scan and planning surgery for end June a…
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Anyone been on Xeloda?
After the failures of Gemzar, Doxil, Avastin, Carboplatin, Taxol, & Arimidex (did I forget any?), I am now starting on Xeloda. Anyone out there have any experience with this? Thanks for your info! All the details: http://www.caringbridge.org/visit/caroleseaton/journal/view/id/55396c2bab28b91f769b7494
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Etoposide and Y90 procedure
good evening teal sisters. Treatments for the past several months have been a little tough to take, but sometimes I think that as we continue year after year every treatment will be tougher. Diagnosed in November 2011 with 3c. I've had pretty much all the standard chemos for our disease plus 26 rounds of chemo. The last…
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Platelets
Lorraine needs a blood transfusion tomorrow,platelet level is low.Anyone have to have to have this done? Wondering if this will tire her out.It's a 5 or 6 hour process.Just looking for any tips or advice.
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gefitinib can be used for ovarian cancer ?
Hello, My mom is fighting the battle with ovarian cancer. She had 5 chemo sessions and then surgery. After surgery 5 more chemo sessions were given. the C125 count had reduced drastically (from 6000 to 900) after the surgery. We were really happy as the CT scan also showed good results. But after surgery she had 5 chemos ,…
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CA 125
Lorraine's ca 125 was 8,000 before first treatment, it was 4,000 before round 5, last week. Wondering what people's thoughts were on this. Of course we're happy it's been cut in half, but the number is still high. Any similiar numers for you ladies?
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a year & a half after debulking still have some abdominal discomfort still tender & bruised-F eelt
Hi all I must preface this by being honest & saying I carry my excess fat in my jiggly belly Yesterday I was sitting in my wheel chair - paralysis from severe stroke & bent forward to pick something off the floor when I sat back up I had a sharp pain at the top of my incision - took my breath away for a few seconds.…
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Hysterectomy
It's been 4 years since my Hysterectomy and the Dr. said I have scar tissue. My scar tissue has gotten bigger, wondering if anyone else has the same thing and did they have the tissue scrapped are removed. Trying to decide what to do
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Ovarian ephithelial stage 3c
Hello everyone, new here. My mom has been diagnosed with stage 3c ovarian cancer she had her debulking surgery on the 4th of March and was due to start chemo last Sunday but it was postponed because she caught a stomach microbe and onc said chemo might harm due to low immunity. Any survival stories? I lost my dad 8 years…
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Strategies for dealing with Cisplatin?
I certainly don't recally why I chose the name "zenmama" when I joined this board way back way. Must have been wishful thinking. Or maybe more positive thinking at the time. Anyway, I don't feel very "zen". Does anybody have any experience and tips for coping with Cisplation? I have had many rounds of Carboplatin, which I…
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worried
my wife Lorraine had her head shaved yeasterday. She didn't enjoy doing it, but it was coming out so rapidly, she decided to get rid of it allat once. I guess it could be a coinicedice,but, right after that, she has felt worse than ever, physically. Chest pains, trouble breathing, can't get comfortable. She'shad 4 rounds…
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Dear Zenmama
I just saw your reply to my post and hear that you're having troubles with cisplatin. I had....... Drumroll please! ....... 39 rounds of the stuff. I would have Cisplatin/Gemzar one week and Gemzar the next. My Onc's office keeps telling me that I've had the most of any of their patients. It is indeed a tough chemo, but it…
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Not getting any treatment
It was September 13, 2014. I had been in the emergency room since 9:00pm the night before. After going through many tests, I got the diagnosis at 5:00am. I was told that I had end stage terminal ovarian cancer that spread to my liver and spleen. The doctor wanted to admit me to the hospital. From how it sounded, he did not…
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Lymphedema long-term
The back story: I was diagnosed in March 2012 with stage 3c, started chemo right away, and had "optimal" debulking in June 2012. I have been on chemo ever since, with a progression of different chemo drugs. They all seem to work for a time, and then the CA125 starts going back up and scans show tumor progression. For three…