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Hi Everyone... It has Been A Long Time....
Hi ladies... It has been a long time since I posted in here but I come in all the time and read to stay up to date. I us mostly my tablet these days and it is so much quicker to type on my laptop..... Since I posted last we have moved again.... Yikes. Third time since we moved to New Hampshire in April 2013.. They say…
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Ureteral stents
Gees! Is this the week for yucky scan results?! Mine was a plethora of impressions that don't make me smile, but the one that needs immediate action is right hydronephrosis caused by a tumor compressions the ureter. Seeing a urologist ASAP. I looked up all the stuff on the internet, and it made me cringe! haha! Who has…
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Scan report is in, and it's not good...
Hi Ladies, I had my scans this morning. My wonderful dr. called me with the results this afternoon. First of all, I now have brain mets. This showed up in the lower part of the brain. He is starting me on steroids tomorrow. He hopes by next week to have an MRI and set me up with the radiation dr. I had an MRI in June was…
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New; questions about symptoms; appt w/ GYN ONC
Hi everybody. I have history of endometriosis (including cysts & an endometriomas) without ever having elevated ca125. Last 3 ultrasounds showed persistent complex mass on left ovary (with some growth, but not substantial) and smaller one on right. I am hoping it is another endometrioma yet an MRI showed septations I think…
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Those DREADED scans!
Hi ladies, Tomorrow (29th) I have my dreaded 3 month scans. Every scan since Dec. 2013 has been showing disease progression. I have been on irinotecan for 3 months. My dr. says we have more reason to hope, since this drug came back as one beneficial on the test. (Where they re-construct the tumors, can't remember what it's…
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Has anyone had ROMA (risk of ovarian malignancy algorithm) test prior to diagnosis?
Hello all I have had an 8cm complex ovarian cyst for at least 11 months. It was found during an u/s to date my pregnancy but my OB assured me that due to my age (31) it was probably nothing and recommended we check it after delivery. I was scheduled to have it and the ovary removed but my ROMA came back high so now I have…
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New to the club
Just diagnosed and feeling a bunch of emotions. It is stage 3a and it's the most common type and it started in my falliopian tubes (and I am 44 yrs. old) and I was virtually without symptoms. I just had a hysterectomy and I am so worried. I start IP chemo next week. The internet has been blessing although I get bummed…
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Scan
Good luck on your scan tomorrow, Alexandra. I'll keep my fingers crossed
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Stage 1 Mucinous and 23
Hi, this past August I was diagnosed with what it seems to be stage 1c mucinous that ruptured during surgery. I understand that this type of cancer needs to be differentiated from other abdominal cancers and I just want to know others' experience with this type? I had 4 rounds of Carbo/taxol. Prior to surgery my ca-125 was…
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1st Recurrence
Well, I had 10 great healthy months and now my first recurrence. Ironically, a year to the day that I was declared NED, I had my port put back in on Friday. Start chemo again tomorrow. My question is has anybody had Carbo/Doxil for recurrence after Cisplatin/Taxol the first time around? Was it easier? Did you lose your…
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Article in Globe and Mail - immunotherapy - trial for ovarian cancer patients?
Article in Globe and Mail. Mentions ovarian cancer.... I don't think I came across this trial in my research, but maybe I missed it.... http://www.theglobeandmail.com/life/health-and-fitness/health/scientists-unleash-the-power-of-immunotherapy-on-stubborn-cancers/article22371088/?click=sf_globefb "..., a participant in…
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New here~fallopian tube carcinoma stage 2
I was diagnosed June 24,2014 with fallopian tube carcinoma stage 2..I had mentioned prior to testing to my PCP that something was wrong..I was tired, abdomen swollen, and was getting up at night every 15 minutes to use the bathroom..he still had me wait to have a pelvic ultrasound saying that 8 months prior I had had a…
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Is it "GIVING UP"?
I was just wondering what some of the other ovarian cancer survivors think about this topic: Is it GIVING UP if you decide NOT to keep on yet another round of chemo for a reoccurance? I was diagnosed stage IV in February 2009. An annual scan in May 2015 showed a reoccurance of the ovarian cancer in my abdomen, resulting in…
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Ovarian MMMT (Malignant Mixed Mullerian)
I am new. I was diagnosed with this cancer last Oct. 2014. Is there anybody else here who is battleing this cancer? Would love to hear from anybody.
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Vital Signs with Dr. Sanjay Gupta (CNN)
I came across this article and thought the Teal Warriors might enjoy: http://www.cnn.com/2014/12/30/health/cancer-cure-experiment/