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Ovarian Cancer

Archives for May 2014

Do any of you ladies live in the Memphis, TN area?
Hi Ladies, I was wondering if any of you live in the Memphis area? If so, who is your doctor? When my medicare begins in August, I will be able to see a gyn/onc. All 4 gyn/onc. are at West Clinic, which does not accept my current insurance. http://www.westclinic.com/gynecologic-oncology/center-for-gynecologic-oncol…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
tough day
I saw my surgeon today. It was 2 weeks from my surgery. It was great to get the staples out. Just a review, first diagnosed 3/2012 optimally debulked and did chemo dense treatment which ended October 2012. Low CA125 for 17 months, then started to rise until abnormal level in April 2014. Second surgery due to tumors found…
CA125 levels increasing after removal of two tumors
My sister is in recurrence--original DX in 02/11, stage IV B. She is scheduled to start chemo in a couple of weeks but has some concerns about the treatment plan. Her GYN had her tested for targeted chemo, but before the results have come back, her ONC has scheduled her for chemo. Additionally, she is not going to give her…
update..
A little while back I posted and asked a lot of questions. Here is a quick update. The hospital faxed all the paperwork, contrast ct scan results and my ultrasound results to my doctor. My doctor had me sign the release forms at my appointment and that's all we did. She called me the next day (weds) to inform me that has…
4 month check up NED
Went to my wonderful oncologist today and I am NED! August I will hit the two year mark for NED.
"Right to Try" bill - compassionate care triumph or a cruel joke?
Governor John Hickenlooper signed into law Colorado House Bill 14-1281, The Right to Try Act. The bill was co-sponsored by a retired physician and supported by others who wish to improve access to unapproved, investigational drugs for terminally-ill patients. Similar “Right to Try” bills are pending before state…
It's been a while... 19 y/o stage 4
I've had a lot going on lately, so I haven't been able to make it back to these boards in a while, but it's been on my mind and I wanted to update you all on my progress. I don't remember what all I said before, I think the last I checked in was around the time I was having my breasts biopsied. So I'll do a quick recap. I…
Need Advise!
Hello Ladies, I'm coming from the Lymphoma board in need of some advise, hope someone can help me. I've had some problems with my menses, my period began on April 23 and has not stopped till this day. I went to the emergency room on mother's day but the Dr only found some cyst and told me to go to my Dr or to a…
Avastin
My mother was diagnosed Oct. 2012 with UPSC (rare grade 3 form of uterine cancer that acts like ovarian) We have been through radical hysterectomy, carbo/taxol 8 rounds, then 2 rounds doxil, and 2 more rounds of carbo/taxol. It's stopped working. She has ascites which has flared up again and they have noticed changes in…
Update, reoccurance and surgery
I have an official reocurrance. Last week I had surgery. My new surgeon was unable to reduce my tumors optimally, but felt he was able to get a lot of tumor. He also stated, I was close to a bowel obstruction and thus had some bowel repair to do. I was hospitalized 8 days and got home yesterday. It is good to be home. I…
Is a CT scan better than an ultrasound?
I posted my symptoms yesterday (see: new here, please help) I had a doctor appointment today and initially he said he was going to order an ultrasound but by the end of the exam he changed his mind and ordered an abdominal/pelvic CT scan with and without contrast. Is this better than an ultrasound at detecting a problem if…
Should I switch to a GYN/ONC when medicare kicks in?
Hi Ladies, In August I will have medicare since I will have been on disability for two years. I have had all my chemo administered by a medical oncologist due to my insurance. The nearest GYN/ONC to me is 150 miles away. I will have local access to four different GYN/ONC beginning August 1. Should I switch doctors then? I…
New here, please help
I know worrying about something before there is something to worry about is silly but here I am anyway. I am a registered nurse (women's health) so I'm familiar with this area. I am not familiar with ovarian cancer until I began having some worriesome symptoms. Could anyone please let me know if I'm right to be worried or…
Final journey
Hi beautiful ladies after 3 years fighring with this my Dr told me 3 months ago that there is no more treatments for me ans since then he asked me that it is me choice to stop it any time, my CA125 went to 120 then 260 and now 380 cancer is around my stomach and intestings now, I am under pain must of the time, so I…
Gabapentin & water retention - ankles swollen by night time & Lyrica ?
any onr else noticed this with gabapentin? I read it could be a side effect -cbut you never what drug is causing it I'm on 1200 mg/day 400 3 times a day I was talking to a breast cancer survivor a few days ago while visiting at the smalll hospital where I last had tx & got onto neuropathy - she switched to Lyrica froim…
Ovarian Cancer and treatment?
I went to the ER yesterday and hoibble pain in my lower belly. (abdominal pain) I had the pain for a few days. ( I still have it) After blood work, urine test, ct scan and ultrasound I found out I have cyst on my right ovary. The ER doctor said it looks very complex and possibly cancerous. He gave me a name and a number to…
Shortness of breath
I've just had my second round of carbo/gemzar/avastin for a first recurrence. I am so short of breath, I can hardly walk from one room to the next. I talked to my gyn/onc's nurse who was unconcerned and said it is a side effect of all the meds. My bloodwork was ok enough to do the chemo...hemoglobin was 9.2 and white blood…
My Wife diagnosed with Ovarian Cancer
Hello, my Wife, 43 yrs of age has been diagnosed with Ovarian Cancer. Her CA-125 is 508 and there is neoplasticism lesion in the right ovary of 6.5x5.2x6.2 cms and a smaller lesion of 2.1x1.7cms in the left ovary. No free fluid is seen. i have no idea what this all means but the gynac just said it does not look good and I…
PET scan next & 1 year since dx
I wa diagnosed a year ago in May -- 1st TX May 27/ saw my gyne onc Weds May 15 to review CTScan~ finished Tx Apr 1 at first it was 3 mos to start Wait & see program then another doc ( this is a teaching hosp) came in with opitions as some spots were seen could go another round of chemo - in hopes of getting them.OR we…
Alexandra
Hey there. Just wanted to check in and see how the trial going? Any new news to report? I am thinking about you and hope all goes well.
ct scan
So I got my results of my ct scan on wednesday, the two lymph nodes that they found have not grown nor have they shrunk. My oncologoist is telling me that I am stable. There are no new nodes but for some reason my CA number is rising. So we are going to do 3 more rounds of my current chemo which is Doxil then another scan.…
Kimberlysue
Been thinking about you all day..hope all went well with surgery today...
ARIMIDEX (ANOSTROZOLE) QUESTION
Hi Everyone: I've been on the Anostrozole (1mg daily) for about 2 months now. Side affects for me have been massive weight gain, painful joints, occasional headaches, just to name a few. Before I started taking it the doctor said the side effects are 'temporary' and subside after 6 months or so. I am all for sticking…
Ovarian Cancer Awareness
My niece had the teal on her mortar board at her college graduation to honor the memory of her mother, my sister, Julie, age 46, who lost her battle March 20. So proud of my niece. See my profile picture. Debbie
Happy Mother's Day!
IP chemo
Anyone who has done IP chemo please post what your protocol was. Did you have to ve in the hospital for it? Kim
Reoccurance
Here is my follow up. Saw my gyn/onc today and received the results of my pet scan. At least 3 new tumors, 2 in my groin and one behind my liver. The plan is surgery again to debulk optimally again. Then IP/IV chemo therapy. Ca125 is 94 and where I have been having pain is where the tumors were found. Kim
Gemzar and fatigue
Hi Ladies. For those of you have taken gemzar, did you experience extreme fatigue? This past Friday I took week 3 (3 weeks on, one week off) of cycle number 2. I am SO tired and sleepy. I have had carbo/taxol, cistplatin, doxil and topotecan. Doxil caused fatigue, but nothing like gemzar. Hope all of you are getting ready…
HELP! Attitude adjustment needed
It looks like it will be another beautiful day, but my mood is dark and dreary. I was first diagnosed in December 2011. I had the customary debunking surgery and carbo taxol regiment. Was NED for 14 months then it returned. Did 6 rounds of Doxil and avastin but counts went down then up to 22. I was doing okay mentally for…

Ovarian Cancer

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