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Ovarian Cancer

Archives for March 2014

How have people felt on topotecan?
Just returned from my oncologist's office. I was on a regiment of carbo/taxol. Was being premedicated before each treatment due to a carbo reaction. Advice is to stop carbo for now and try topotecan. Anyone out there on this and how is it going?
Persistent nausea
Hi! Just joined this site today. I was diagnosed with stage 3c ovarian cancer in December 2011. Since then I have had surgery, gone thru 6 rounds of carbo/taxol which gave me 14 months of remission and when my counts started to creep up (18) had 6 rounds of Doxil/Avastin. It seemed to be working but then my counts started…
Post-chemo insomnia
Just wondering...why do you suppose I got assigned to the "new" nurse today? I like all the regular nurses...I didn't want a new nurse. Why me? Because I am a nurse myself? That intimidates some nurses; it causes other nurses to be extra kind, like we are kindred spirits. Maybe because I try to be a really nice person. I…
starting carbo/gemzar/avastin next week ugh
Saw my gyn/onc today and had my recurrence confirmed. For one wonderful fleeting moment, it looked like I could start the Clovis 2 Parp trial that just started at Siteman Center this week......until the fact that I had had breast cancer within 3 years disqualified me from this and all other parp trials...I had been warned…
Constipation
Hi - I could really use some help. My dear mother was diagnosed with stage IiiB ovarian cancer in late September. She is currently on paclitaxel/carboplatin and is struggling with bad constipation every day. She is using laxatives almost daily. Does anyone have ideas on how to counteract the affects of the chemo and…
Mygirlsnlady, where did you go?
Melissa, I sent you a pm but you have to sign in to read it. We're all here for you, so please ask any questions you have or look for support. Everyone here has experienced some of what you are going through. Susan
liver lesion found
I was Dx with ovarian Cancer 1c in 2013. i had debulking surgery and 6 rounds of chemo. Prior to my surgery, a CT scan showed a tiny lesion on my liver. My scan immediately after chemo was completed, show it again and said it had not changed. I recently had another CT scan and the report shows it is "slightly increased in…
Ca125 has doubled
I am now at 44 which signals a recurrence. was 17 just 2 months ago. I was prepared for the news but it still made me cry. I'll have another ct scan Thursday and meet with my gyn/onc on Friday. He had warned me that there was "nodularity on the omentum" that was new from the last scan in 2012. so, I had a 2 year remission…
Immunotherapy (from The Clearity Foundation newsletter)
Immunotherapy offers a woman battling ovarian cancer a way to further personalize her cancer treatment using her own immune system to attack the tumor. Some of these immunotherapies are generated by using live tumor tissue that has to be properly saved at the time of surgery, so it is critical to know the requirements for…
Three Years NED Today
Three years ago today I had my last session of carbo/taxol and I'm grateful to say that I have been living with NED (no evidence of disease) ever since. I know there's plenty of NED to go around. My biggest wish is that NED become a permanent fixture in your lives too. Wishing the best for all of us, Kelly
meet with Doctors this Friday
Thank you all for sharing your thoughts and ideas about taking a break from chemo. I meet with drs in a couple of days and im due for my third round of Alimta at this point in the week im not sure which way im leaning towards i told myself i would do three rounds of the new chemo and then take three months off and repeat…
my mother has ovarian cancer
Hi, I'm not really very good at communicating and if I say anything over the line, please just let me know. I've been a follower of csn since my mother was diagnosed and have only recently signed on. She was diagnosed and had a hysterectomy and debulking surgery in January of 2013. She was given carboplatium and taxol for…
Mom passed
My mom died, Friday, March 21. She had been in pain for a very long time. So, it is great to know she is free of the pain. She was surrounded by her loved ones as she passed in her sleep. She was 71. I have a sister with significant disabilities, now I am her guardian. Dad died in 2009.
planned mainteance on CSN this morning
Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
Life after Chemo
It has been two years and a half since my chemo but it seems like life will never be the same. I never feel 90% and it seems like it is one physical element after another. Am trying very hard not to get discouraged but it is hard. Was always so healthy until this came along and am now declared NED. Thank you God but just…
when to take a break
Next month it will be a year since ive been in remission. I have tried carbo/taxol,avastin, cytoxen and now im currently on Alimta.My scans from Feb are unchanged I still have three areas of disease present however in six months they have not gotten bigger in some areas they have decreased abit. When i started last year i…
fiscula - please help
Hi Everyone, If you know any hospitals or doctors that are good at Vesicovaginal fistula (VVF, after hystectomy) repair, please let me know. Appreciate your support! twjk
My dr. called with yesterday's scan results. I start Gemzar Friday.
Not great, but could be worse. A few of the lymph nodes were stable on topotecan. Some increased in size. He doesn't see any reason to stay on topotecan. I start Gemzar Friday. Any one have any thoughts on gemzar? thanks, Carla
Natural approach along with chemo? link enclosed
http://www.integrativewellness.org/ HI Ladies. I am seriously considering setting up an appointment at this intergrative wellness center. Do or have any of you used this approach? I've had carbo/taxol/avastin with about 6 or 7 months remission. avastin for maintenance. recurrence in lymph nodes (May ,2012) one year after…
Those dreaded scans
Hi Ladies, I had my scans this morning. This is after 3 months of topotecan. Just hoping and praying that it's helping. Easy drug to tolerate for the most part. I hate these scans. I am SO nervous about the results. Wish I would overcome becoming so scared, but I haven't been able to so far. Hopefully I will know something…
Scared and looking for help!
My heart breaks as I have read all the stories on this site. My journey started 8 weeks ago with pelvic pain, back pain, no heavy bleeding but some descent size clots. Went to my GYN that did ca 125 and internal US. CA 125 came back at 85 and ultrasound showed a couple small follicle cyst and a distorded endo stripe. So a…
My Fault?
does anyone blame them selves they got cancer....I have learned so much AFTER I got cancer...where was this info before?? I always had my screenings and exams..that is why we need to educate women to listen to their bodies. I know a lot of woman were misdiagnosed and cancer spread. I did blame myself for a long…
March Check In
Hello Ladies... It is hard to believe it is March already. I don't know anybody else but i have had it with snow. The snow doesnt bother me as much as the cold.... Today is sunny and it suppossed to be 45. Compared to how it has been 45 is a heatwave. I am taking a trip back home to see my friends. I miss them so much. I…
Curious
Good Morning Ladies I am curious about somnething - What are your schedules for seeing your doc? How often do you go? I am nearly 2 years out of chemo and feeling great. Last April when I met with my Onc for a 3 month ck up she told me I had made it through the first year and graduated up a level. She said I would see her…
2 year diagnosis
Two years ago I was diagnosed with ovarian cancer at my local hospital ER room. My husband cried. I was was glad there was a reason for all my symptoms. It made sense to me. What a journey the past two years has been.
New member
Hi there, I had an operation a year ago for ovarian cancer and uterine cancer, since then I have had 6 months of chemo. Now I feel angry with myself because my body hurts, sore joints and muscles, I don't seem to be able to complete many of the tasks I used to do with ease. Is there anyone else out there with the same…
Malignant abdomenal ascites + lymphedema advice please
Dear all, I know that there are a lot of topics like this but I am impatient to read them all, and also believe that all cases are different. My mom has an advanced ovarian cancer with metastasis on her bladder, liver, lymph nodes etc (scattered in her stomach). It was first diagnosed in september 2006, and only short time…
Just to make us smile. sweet Ella sings Elvis and loves on her Daddy!
https://www.youtube.com/watch?v=fmWa1gKrp6Q Absolutely precious. Hope all of you are having a great day. Carla
is taxol alone worse-easier-same as carbo/taxol for after effects?
next Weds 12th I have my first tx of taxol alone - allergic reaction to Carbo - There's an event the folowing Sat 15th st dinner visiting& a movie could leave whenever. My usual reaction to carbol/taxol has been- lots of peeing day 1-4 no nausea/vomitting achy & ukky for a week my question is flr those of you that went…
Opinion from Moms
I am NED after having had stage 3C ovarian cancer. Tomorrow is my 2 month anniversary of ending chemo. Now that my hair is growing back, I finally went out in public this week without a scarf or hat. This was a huge step and I was very proud of getting past my vanity and celebrating that I made it through. Everywhere I…

Ovarian Cancer

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