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Ovarian Cancer

Archives for April 2013

Doc visit update
Hello ladies, Had a very nice and long , hour and a half visit with my doc. We went over a multitude of things. Most of my lab values were really good. Still have low white count but not drastic. he was concerned about me being dehydrated and that it is now showing up in my labs. I promised to try and drink more water and…
Hello Everyone! Almost 5 year mark Still doing good... and feeling amazing now!
Hello Everyone! I just wanted to check in and let all of you know that finally it’s almost 5 years since my surgery and I am feeling wonderful again. No recurrence to date and I’m finally started to get the weight off.. Slowly!
IP, Round 4, Hit the fan!
Thought I was getting through rounds 1-3 way too easy. Just fatigue for a day or two and slightly fuzzy brain. Finished round four last week and am still fatigued, fuzzy, and now have the dreaded neuropathy in my feet. The fatigue comes and goes. Is this normal for IP treatments? Usually it was just a day or two after the…
World Ovarian Cancer Day
26 ovarian cancer organizations from 17 countries around the world will unite to educate their communities about ovarian cancer and its symptoms.
New to This
Quick history: The last few years I have had extreme cramping (keeps me up at night until I over medicated) and heavy bleeding accompianed by fatigue and a period that lasts 5 to 7 days. It stops for a day or two and then returns for another day. At the begining of this month I became ill. I had blood in my stool, I…
Chemo #15 was thurdat
Ca-125 up a little but still normal ..I have one more to go...yippie!! Been having thrush after Chemo and rinsing with swish and swallow four times daily. Trying to stay focused and never give up hope. Today usi going to be a nice warm day...I may sit on my patio for awhile with my IV fluids and enjoy the day. Hope it is…
DCA (Sodium Dichloroacetate)
Recent medical trials have proven that Sodium Dichloroacetate (also known as DCA) can reactivate the mitochondria and restore the cell’s apoptosis function. The result is shrinkage of tumor size and mass, sometimes reversal of illness and remission. There are several financial reasons why DCA is not and never will be…
The beat goes on...
Saw my onc today for regular appt which I almost cancelled since I had spoken to her after last CA 125. I didn't cancel because I began having rashy areas on my arms and chest and itching almost everywhere else even with no sign of rash. I also had been experiencing pain on the right side of my stomach in the waist area.…
Lymphedema after hysterectomy - compression garment question
Hi all, Shortly after my complete hysterectomy for the ovarian cancer, I developed lymphedema. I curently have it under control with compression stockings, manual lymphatic drainage and walking for exercise albeit minor given I'm still on chemo. The edema extends from my hips to just above knees and I need 20-30…
Ovations for the Cure of Ovarian Cancer Mother's Day Auction
We're paying respect to all mothers who have survived, who are currently battling, and who have passed from ovarian cancer. The bidding has begun! Proceeds will go to Ovations for the Cure of Ovarian Cancer and its relentless pursuit of finding a cure for ovarian cancer—through research, awareness and patient programs. For…
Ovarian cancer vaccine
Well I found a Dr.Janos Tanyi at the University of Penn that is an Oncologist and specializes in the Ovarian cancer research and vaccine trials. Also, they accepted my insurance whcich was very rare and got me all excited. Well I tried to make an appt for a second opinion and they got all my records. They just called me…
Hippocrates Health Institute?
Has anyone ever heard of or had experience with the Hippocrates Health Institute in Florida? Considering it as an after treatment with the conventional stuff is over. Looks life a fancy cancer spa but have heard a wonderful story about it.
Anyone get a ventral hernia after debulking/TAH?
I had my debulking surgery and total abdominal hysterectomy in December 2011. Since then, the tiny hernia near my belly button has gotten bigger and bigger. It is now the size of a small football...no pain, but it is continuaing to grow. My oncologist said that because of the OVCA it would be unwise to use mesh to repair…
For BRCA1/2+ ovarian cancer survivors
This article was published on April 1, 2013 in Cancer magazine volume 119 issue 7 pages 1344-1348. To read full text go to Wiley Online library. It's food for thought for those of us with hereditary ovarian cancer considering prophylactic mastectomy to reduce risk of breast cancer. Risk of metachronous breast cancer after…
Juicing
Anyone know anything about juicing?
Just have to share
I'm extremely fortunate to be able to meet so many teal sisters through my connection with my naturopath and the retreats she holds for women with cancer. At the March retreat, she presented the treatment plans of a few volunteers, who were attending the retreat. These women were here to learn about cancer and to become…
Best Ever Marigold Hotel
Sonny Kapoor: Everything will be all right in the end and if it's not all right, then it's not yet the end. Best Ever Marigold Hotel This is my favorite quote lately! I just wanted to let everyone know that after OVCA Stage IIIC (2010) was bumped up to OVCA Stage IV by brain mets(2011). I'm still here! I'm still NED, as…
CA-125 and other business
Well, I wrote on this board a couple of weeks ago about a test I had for Thyroid. It is fine!!! My blood work was redone and came back normal. All scans were normal. Yea! I have a question though...has anyone had their CA-125 tested at two different labs? Did you notice the readings are different. When I had me Ca-125 done…
Not what i want to be discussing
Since Feb ive been posting how my numbers have been going up. I did CT scan then a Pet scan now they have found four areas in question. Im going to Cancer Treatment Center of America have to do biopsis there and find out what method to address this with. Really sucks because it was a year ago in May that i finished my last…
Help
Hello,I'm 27 years old and since January have been having on again off again pelvic pain and lower back pain.ive had a Pap test which was fine and have had three dr do a pelvic exam and have had an abdominal ultrasound done all which they said is fine.for the last week though I have had spotting everyday even though my…
Hi Forme (Lisha)
How are you doing these days? Kelly
Hi Kikz (Karen)
I was just wondering how you are doing and what's your doctor's game plan for you? Kelly
This story is 1 year old... tragic and inspirational
Bride-to-be, 32, dies of ovarian cancer 90 minutes before she was due to get married Read more: http://www.dailymail.co.uk/news/article-2122264/Bride-32-dies-ovarian-cancer-90-minutes-walk-aisle.html
Let's talk Menopause
Q: How many women with MENOPAUSE does it take to change a light bulb? Woman’s Answer: One! ONLY ONE!!!! And do you know WHY? Because no one else in this house knows HOW to change a light bulb! They don’t even know that the bulb is BURNED OUT! They would sit in the dark for THREE DAYS before they figured it out. And, once…
Ovarian cancer vaccine shows promise in trial
Hi ladies I found this news article on FOXNEWS.COM. Has anybody heard any details about this trial. Here is the link. http:www.foxnews.com/health/2013/04/08/ovarin-cancer-vaccine-shows promise-in-trial/ Joann
Doxil & Stomach Cramps - Anyone?
There have been a few different conversations on here about doxil and side effects - most recently the rash which I do have. However my main problem now seems to be with severe stomach cramps. The kind where you curl up in a ball and hold your breath until the pain subsides. Ugh! I have had four rounds of Doxil. I first…
Top Ten Ways To Know You Are A Cancer Survivor
10. Your alarm clock goes off at 6 a.m. and you're glad to hear it. 9. Your mother-in-law invites you to lunch and you just say NO. 8. You're back in the family rotation to take out the garbage. 7. When you no longer have an urge to choke the person who says, "all you need to beat cancer is the right attitude." 6. When…
ascites fluid
Hi ladies. I stared my first dose of Doxil on monday,and I know it may take a little bit to start working. However, in the mean time I am starting to get uncomfortable from the ascites fluid. I am always bloated, and having stomach pain, and I am very tired all the time. My doctor said they will base it on me, and I can…
Hobby ideas
HELP! Mom is getting restless! She needs to get out and exercise more, she's in treatment but is doing fine, only has symptoms for a few days after treatment and it's just been fatigue and joint pain, but in between that time I'd really like to see her doing more. She doesn't have a car, but does anyone have any idea's for…
Olaparib & cediranib (PARP trial)
I'm in the trial at NIH. Starting April 15th. Anyone else doing this trial?

Ovarian Cancer

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