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Ovarian Cancer

Archives for August 2012

Surgery Tomorrow
I am going in for same day surgery tomorrow to have my I P port removed. YAY....I can't wait to get the port removed..... Gotta be there at 11 and surgery is at 1.
Happy Sunday
I hope everyone has a wonderful day. Karen I hope a thought of your cousin makes you laugh today. Maria I hope your cisplatin "fog" is coming to an end. Carla I hope your antibiotics have kicked in and you are feeling a little better this morning. Tina - You need to do somethign to celebrate that HUGE drop in numbers...…
HORRIBLE DAY!!
Round 1 of Cistplatin/Taxol on Tuesday. Nausea seems to be under control finally. Now I'm sick with some type of infection. They called me in an antibiotic today. Just took my temp. it was 101.4. I think it's some kind of sinus infection. Nose is runny, spitting out some yucky looking stuff. I have no idea how many hours I…
Low Magnesium... Anybody experience because of chemo
My magnesium is low and has been since like half way through treatments. My doc had me on slow mag which is a time released magnesium but that has not helped. Now she has me on a total of 1600 mg of magnesium a day. 2 in the morning and 2 at night. Low magnesium contributes to alot of joint and muscle pain. I gotta say…
Victory for Cisplatin
Well after my moaning about the side effects of Cisplatin I have had an amazing result. My CA125 was around 900 before and after only 1 treatment it has dropped to 342. I don't think its been as low as that for well over a year. Plus results from my recent CT scan shows all cells, soft tissue tumour and fluid have all…
Been in cisplatinland for the past week
and I feel so out of touch. These infusions always put me down for about five days with extreme fatique, constipation, body aches, ringing in my ears etc. Hopefully, my head will feel clearer today for even doing laundry sounds thrilling. Love you all..... ((((HUGS))) Maria
Difficult times
Hello Dear Ladies I am still having such a very hard time. The pain is so constant and really bad. The doc has adjusted the pain meds, removed the percoset and upped the dose of the dilaudid and the roxanol. I was able to get the results of the ct scan that was done on Tuesday. Mostly good. There is an area that has a…
Are these side effects?
I have been taking Tamoxifen for about a month now. I have been getting hot flashes. They are mild and don't last long. I have also been experiencing fatigue. On Tuesday I laid down most of the day. Today I went for my haircut and went shopping for a while. I came home and laid down and now when I stand up I feel…
Ovations for the Cure Bracelet - Free!
Someone posted about getting a free bracelet if you are someone fighting ovarian cancer. I went on line and signed up and just received the bracelet in the mail today. It really is a nice bracelet with a torquoise bead representing ovarian cancer, so I encourage you if you haven't already signed up for one, to go on their…
Out of the Hospital
Got out of the hospital today so yay but ill be back in 5 days
Home from the hospital
First of all ty AZ grandma for posting for me love you for doing it. Hi all I came home on Tuesday night with not a lot of answer except that I do not have an ulcer. I am going to make appointment with my doctor and get refel to a new GI doctor. I will let you all know what I find out. I am still having a lot of pain but…
Nanoparticle fight in chemo resistant ovca.
Just read about an ongoing test being done with these nanoparticles. They attach to the cancer cells only delivering chemo to them. The study was being done at Yale. According to article, it could be used on humans in 2-3 years. Encouraging to hear this. Thought I would share it.
BRCA1 Test.... Should I or Shouldn't I
I am really having a hard time with deciding if I want to do this test or not. After I had my hysterectomy and was diagnosed my doctor and I talked about it (along with my husband). It was never brought up again. Since my chemo has ended I have been reading up on it and now I am scared to death to have it done. Everything…
Received best news ever today
I was diagnosed 3 months ago with stage 3 OVCA. A month later I was tested and confirmed BRCA1 positive. My mom is a breast cancer survivor (10 years NED). We immediately got my mom and my daughter tested for BRCA1 / BRCA2. I was scared and guilt-ridden for a month, which was making my chemo experience not all it was…
cisplatin making me very sick
Already had 2 treaments of cisplatin and have not been able to stop throwing. the nausea is non stop. even with all the drugs they have tried nothing has worked. Was suppose to have chemo yesterday but Dr opt not too because I was so sick. don't know how much more I can take. Been going every day for fluids. Any one else…
Cisplatin. What to eat?
I had round 1 of 6 yesterday. My appetite isn't too bad, but I don't feel like cooking. Because of IBS I can't eat frozen foods (plus they're bad anyway). It's literally 100 degrees outside, so soup doesn't sound too good. Any ideas? Thanks, Carla
Hemoglobin 6 after chemo....anyone experienced this.
Hi - have any of u experienced a hgb as low as 6 a week after chemo (during that week a unit of blood was given prior to chemo b/c it was low)? A week later hgb = 6. On lovenox b/c of clots discovered at diagnosis of recurrent ovarian cancer - cancer now in omentum, inoperable and no bowel sounds since last intestinal…
NCEllen
Anyone heard from Ellen? Just wondering how she is doing. k❤
One down and 5 to go!
I took my first round of taxol/casplatin today. Back the next three days for fluids and anti-nausea meds. (first recurrence) Last year I had taxol/carbo/avastin. It's only 6:30. Is it too early to go to bed? :) It gets dark around 8:15 now. I think I will probably be in bed very early tonight, at least based on how I feel…
Anne Behyner is in the hospital
Anne called and wanted me to let everyone know she is in the hospital and would like you to pray for her. hugs Lynda
Remove ovaries but leave uterus?
Was reading through a couple of earlier posts and was just wondering if there is a reason to leave the uterus in and only take the ovaries out in a menopausal woman? I undertand the reasoning behind taking the uterus out (if warranted) and leaving the ovaries in but don't get the opposite. Especially in menopause, doesn't…
Social Security
I have seen that some of you collect social security while you are going through chemo. Does everyone get to do that? I never knew that. I guess now that my treatments are over it would be good to know if god forbid I have a recurrence.
Debulking recovery extreme pain
Hello Dear Ladies I have just started to post a little since my surgery on July 24. It is now 2 weeks and the pain is still so bad. At times it becomes unbearable. I was wondering how long your recovery was and how long the extreme pain lasted. How did you manage the pain and all that goes along with it? I am eating like a…
Why am I running fever? My throat has been a little scratchy today.
I have been running a temp. of around 99.2-99.9. Supposed to start back in treatment in the morning. Guess if I'm still feverish then, they'll put me on antibiotics and postpone. Always something with this stupid disease, isn't it? Carla
Been gone a few days...
I haven't come to the board for a few days. My cousin passed away last Monday. I had posted about his illness. It was difficult as he was like a big brother to me as a child, even though he was mean to me at times! Like a brother. It is sad to lose family members as we get older. I have lost all my uncles and my aunt. But…
MY HAIR
It started falling out last night half of its gone already. It hurts just much as the first time it ever fell out.
Cisplatin
I had my first infusion of this (evil) chemo 2 weeks ago and I can honestly say it is the worse chemo I have had so far. On the plus side I only have to have 2 more :) I appear to have had ALL the side effects which have lasted 2 weeks and counting. I have actually been vomitting along with feeling nauseous. However that…
Troubles after session six
I finished up session six, ten days ago . Thought I would better but am still very shaky and weak .Pain in legs seems to be going away but cannot get rid of this shakiness and weakmness and horrible taste in mouth. Need to hear how it was for you after the sixth treatment. Thought it would be easier..... Thanks for all…
cisplatin & chronic kidney disease CKD
I was recently diagnosed with Stage III CKD (chronic kidney disease). I have no known risk factors i.e. high blood pressure, high cholesterol, overweight, family history, race, etc. except my age,74. I've been pondering this and wondered if it could be related to my ovarian cancer treatment almost 17 years ago. I had 6…
21 year old & scared!
Hi I am 21 in a week & have been having problems for the last 11 month since I gave birth to my son & my doctors kept fobbing me off then 5 weeks ago I got a CA125 test and my level was 30 which I am know to belive is normal and 3 weeks later got tested again and my level was 41 which the doctor seemed really concerned…

Ovarian Cancer

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