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Peritoneal carcinomatosis from ovarian cancer
Peritoneal carcinomatosis from ovarian cancer: chemosensitivity test and tissue markers as predictors of response to chemotherapy Chiara Arienti (1), Anna Tesei (1), Giorgio M Verdecchia (2), Massimo Framarini (2), Salvatore Virzì (3), Antonio Grassi (3), Emanuela Scarpi (1), Livia Turci (1), Rosella Silvestrini (1), Dino…
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Pain or symptoms with blood clot to lung/Coumadin
From recent discussions, it appears blood clots become somewhat likely as chemo treatments climb into double digits. Did you have pain or distinct symptoms ? My latest CT scan showed I had a blood clot in my lung but it seems to have dissolved on its own. My onc was surprised I did not seem to have symptoms or pain and he…
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Early chemo treatments most effective
I realize that early chemo (first and second line) are usuually most effective and %'s drop for 3rd and 4th line chemo. But have any of you been told that the early treatments in a round of chemo have most of the effect. I know that I have read comments where many of you had significant CA 125 drops and shrinkage on scan…
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nausea ?
I had my 3rd treatment of carbo, taxol, and avaistan on Tuesday (9th). For the first time since I began treatments I am having some nausea. So far, no vomiting. I have a prescription for promethazine (generic for Phenegran) 25 mg. Has anyone taken this? I know it can cause drowsiness. Even meds that aren't supposed to…
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My mom's latest colostomy saga
Hi guys----looking to vent and mostly for some advice. My mom had a wound debridement last Tuesday that led to yet a second colostomy (unplanned). Her first one is now not functional but still there ( lucky her). Anyway the new one is recessed which basically means that the intestine does not peek out the hole like it is…
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my partner's diagnosis and surgery
For the past two weeks I was posting on the Peritoneal Cancer board, but things have changed. A month ago a spike in her CA125 caused concern so she went in to Memorial sloan Kettering and met with a surgeon about finally having her ovaries out. She's put that off for years. To supply a little background she (Nancy) is a…
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when to start feeling menopause effects
Hi There. I am on the breast and thyroid boards...I have posted here before about having a hysterectomy due to cysts on my ovaries...So I had the surgery 3 days ago, and it didn't look like cancer according to the surgeon, so I am waiting for the pathology...now I am wondering how soon after the surgery did you experience…
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surgery date set
Hi everyone, after much deliberation and prayer, I opted to do surgery. I have 6 tumors, all operable, according to my doctor in CA. Date is set for August 31st. I fly to Seattle on the 25th, drop off my son at uni and then off to CA to surgery. I am at peace about the whole thing, but was pretty much a mess for a couple…
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Abnormal ovary ?????
I've been having some discomfort in my tummy, kind of bloating after meals. I also feel uncomfortable underneath my lungs (I have a little bit of fluid around my lungs) So my GP (Primary Care Doctor) sent me along for a chest x-ray and an ultra sound of my abdomen. 1. My chest x-ray showed a small amount of fluid in the…
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Still dancing
Went to my doctor yesterday and I am still in remission, beenof chemo since April. Ca-125 went up a bit from ten to sixteen. I'll take it. THANK YOU for support and advice over the last few years.,,we are truly survivors and one friend told me we are over comers and I like the sound of that..val
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Chemo and sleepiness
HI Ladies. I just took treatment number 3 on Tuesday (9th) I had carbo, taxol, and avaistan. I've had a few body aches, some diarrhea, but extreme sleepiness. It's like I can't keep my eyes open at times. I've already taken 2 naps today. Where's my energy? LOL! I want to give my body what it needs, but at the same time I…
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Rising CA125 during the middle of chemo
My Fiancé has Stage IIIc ovarian cancer. She is 40 yrs old and was diagnosed Feb 2, 2011. Her originally CA125 was 15,000. PET scans showed spreading to surface of the liver, some lymph nodes, omentum, part of her colon and rectum. She had six weeks of chemo prior to surgery which reduced the CA125 to around 4500. Her…
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Remission
Saw my onc this morning and my ca125 dropped to a 9. He said no more chemo. I will be doing blood work every month. Also looking into clinical trial at either UCSF or Stanford. My onc is not too crazy about this idea though. Thanks for all your kind words and great support. Rosemarie
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Prevention Magazine on OVCA
I just read the article in Sept. 2011 issue of Prevention Magazine, which can be downloaded as a pdf. It seemed to go a little further than the usual symptoms being misdiagnosed, which seems good to me. No matter what, we still have to rely on doctors giving a diagnosis, or at least checking things out more carefully. I…
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Mom is going home soon
Yesterday my mom decided to come off of the ringers lactate. She told me she knows it will shorten her time her by a few days but she is tired and sick of being sick. She has fought the good fight, one surgery, 24 rounds of chemo including one clinical trial. I am so proud of her, she has been so brave and at last she has…
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Question about PET/CT scans
Hi everyone, I was just wondering about PET/CT scans. Do people mostly get these scans as opposed to just a regular CT scan. I understand that they are more superior then just a regular CT scan. If anyone gets these instead of just CT scans, I'd appreciate hearing from you. I'd like to know if you got the PET/CT while…
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Blogs
Do any of you ladies have blogs? I started on the night I was told I had cancer. It was very personal at first and I couldn't share but now I'm ready to share. Is it okay to share links to blogs here? If so I would like to share in case anyone would be interested in reading it and I would like to read your blog if you have…
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coach pures
I don't know if it bothers anyone else but coach pures has really pissed me off. This is our website to give and receive support for all that we are going through. To have someone come on this website just to sell pureses make me mad. I guess I just needed to vent about it. Anne
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Promising new treatment
This is a very promising article my husband ran across that I wanted to pass on to everyone, the main focus is on leukemia but please read the entire article because it does mention OVCA also. ..NEW YORK (AP) — Scientists are reporting the first clear success with a new approach for treating leukemia — turning the…
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Going home around 5PM
I am so POed. This nurse-who came on duty this AM at 7-does not approve of "excessive" pain meds. I just found out, when my dr made his rounds a few minutes ago, that this idiot has only been giving me HALF doses of Dilaudid and never mentioned that the dr wrote orders for Hydrocodone for breakthrough pain. I did speak to…
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sherbert shake recipe
Just wanted to share this recipe: 1 c. any flavor sherbert 3/4 c. lowfat milk (I use fat free organic milk) 1/2 t. vanilla extract Mix in blender. I am learning that the days following chemo (I just had treatment 3 yesterday) it's okay to eat a little differently. Thankfully, my appetite has been good throughout (some days…
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pulling myself back
I'm just starting to come out of the fog of my last cisplatin/gemzar and then gemzar two week stretch. I always feel like I have missed so much so much here on the board and I will try to catch up with everyone. It feels so awesome to be standing up this AM... now is the real tricky part... try to go slow and not overdo...…
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3 month check up
Hello Everybody! today was my 3 months check up with oncologist. pet scan is done, ca125- at 6 - which is great. after finishing 6 rounds of carpo/taxol back in may - i did not go into remission, good news at that time was that- no new grows and existing got smaller, this time pet scan showed the same spot - in my left…
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It's done!
I get sprung tomorrow. Happy girl here, but that could just be the drugs. Carlene
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anyone have any suggestions re: how to reverse residual neuropathy?
sisters, i have some residual neuropathy on my finger tips, toes and balls of my feet. it's not terrible, but i'd just as soon not have it. tips don't have to be scientific, anecdotal would be great too. i posted this question on the uterine site as well, since i have upsc. thanx and sisterhood, maggie
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Just killing time
Well girls, I'm all checked in, having arrived at 5:45 AM, and have already slipped into my haute couture gown. The surgery itself is still an hour+ away, and that's if they aren't running behind. I decided against wearing my alternative hair into surgery, so today is a landmark event - the first time my naked head has…
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Dr. Oz
is doing another show on ovca and has teamed up the Nocc. More derails on the inspire board,,,val
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Slight Vent
My hair started falling out last Tuesday and I got a short haircut that afternoon. By Saturday it was so thin and my daughter pointed out to me that she could see my scalp. So, Sunday I let my mom give me a buzz cut. I had bought a beautiful $28 scarf on sale for $2.97 so I chose to wear it today. I was a little nervous…
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OVCA awareness month in Sept.
Don't forget to polish your toe nails teal for the month of Sept. You can also get some Teal Toes cards that have the symptoms of ovarian cancer on the back of the card. The cards are free go to Teal Toes.org. Click on spread the word then click on contact page. Then list your name address so they can send you the cards.…
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Question about Ports
I have a question regarding ports and having a mammogram done. I'm for my annual mammogram in a couple of months. I have a port and I guess I'm a little concerned to know if anything happens to the port once they compress the machine for a mammogram. I'm still undergoing chemotherapy and wouldn't want the port to get…