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Ovarian Cancer

Archives for February 2011

Treatment of Avastin and Cytoxan
I've been reading alot of posts here where more and more ladies seem to be going on Avastin/cytoxan. Has anyone gone through the whole regimen of Avastin/Cytoxan. What was the outcome of it? I've also read where after the Avastin/Cytoxan, people could go on Avastin maintenance and was wondering how that worked out. Thanks.
Vaccine Trial
Number two shot is behind me!!! I'm at MSKCC, waiting out my post-injection observation period. We had a great time last evening with Joni. She took us via subway to Times Square. Then today I met Annie in the waiting room. She stRts her trial next week. It's been worth the trips to meet these two cuties! Carlene
yep, always something
Was sooooo close to the completion of chemo, today was to be number 5 of 6. My white blood count (abs. neutrophils) were absolutely tanked! It amazes me how I could feel so good, eating well, wonderful walks, hiking and yoga and then boom, some blood work says you are really at high risk for an infection. The abs.…
Gemzar
I am fighting my first recurrence and 'am now a carbo/doxil flunkee. The Doc is switching midstream to carbo/gemzar. I get the full dose the first week, then just gemzar the second week. I got "the sheet," that tells you all the things that can go wrong. Can anybody share their experience with this drug? I did well on…
port trouble
hello today i had my 2nd treatment of carbo taxol. first half - carbo infusion went very well, i actully brought my computer and worked all the time - maybe it was my mistake as i worked out the muscle.. but when we have started taxol - it was not coming in and machine was beeping all the time every 2 minutes nurses have…
in need of information
Hello fellow members; I am a 33 year old survivor of ovarian germ cell cancer, I was first diagnosed at the young age of 21, and have now been told im cured. However I am also now being told that due to the chemo regimend i was on ( bliomycin) that I now have bliomycin enduced lung injury. well the Dr's speak in tongues so…
how high is a 15,000 ca-125 result
my fiance was diagnosed with ovarian cancer last week. we are prepared to fight and we will stay positive and do whatever we can to win the battle. i am very please with her doctor and his treatment plan. however i am almost certain he is sugarcoating the the prognosis. here is her situation. she is 41 yrs old and the…
Doxil Delay - Suggestions?
Not supposed to be typing... I was supposed to have Doxil (3rd round) on Tuesday, but my oncologist took a look at my hands and postponed chemo. I had not noticed a problem with my hands, but he pointed out specific issues that he called "classic Doxil." My palms are red, the lines on my palms and the creases where my…
Something odd
Hi Ladies, I am wondering if any of you have problems with phlegm? Mom has always had acid reflux but nearly every night after dinner she feels like her dinner is stuck in her chest and she has a large buildup of phlegm. If you have dealt with this please let me know what to do about it. This has been going on for months…
Avastin and red wine
Here is a link with several articles on Avastin. The one with avastin and red wine is the last article on the page. http://cancerfocus.org/forum/showthread.php?t=3152&highlight=Avastin here is another article about Avastin and ovca: http://www.medicalnewstoday.com/articles/215988.php
Started Avastin today; picking up Cytoxin in pill form tomorrow to add to my regime. Got my CT/PET
Got my results today from last week's CT/PET. That 550 point rise in CA125 these past 2 months I was on carboplatin was from significant disease progression in my liver. Mets there now involve 35% of my liver, but my oncologist said you can have normal liver function even with 90% involvement. Otherwise the scan showed…
I didn't want to take off my hat!!!
Today I felt vunerable, I was at our local credit union and the teller would not buzz me in the door until I took off my hat. I hesistated a minute and couldn't believe what I was hearing. I did take off my hat and I got very cold it was 19 degrees outside. I went to the teller who saw I was upset but didn't seem to care.…
new weird type of pain
I don't know what this is and I'm wondering if anyone has experienced anything similar. I'm hoping its adhesions or muscle. I've been having pain/discomfort around and above the area where my ostomy was. My ostomy was reversed 1 yr ago this month. The pain is worse when I go to stand up or sit down. Almost like a surgical…
Rise in ALT/AST during Avastin/Cytoxin treatment
I've been on 2 cycles so far of Avastin/cytoxin and my blood levels has been pretty good. I had blood taken at my primary care physician last week and the range with his lab for ALT was 7-52, mine came in at 56. He said it was still ok because it was only slightly over the top of the range. I noticed that the high and low…
Not well enough for treatment
I went for my 2nd chemo infusion this morning to be told by the oncologist that there is a problem with my kidneys and my treatment will be postponed for a few days until the results of my blood tests are back. Also she seems to think I'm not fully recovered from an infection I'd had whilst in hospital a couple of weeks…
Consultant meeting today.
Well here mum goes again, we are going to try doxil called caelyx in the uk. Let's hope this works, fingers crossed, it has got to work. We asked about mums omentum and he said they removed as much as is safe to remove,and that there was no visible trace of cancer on what was left, I always understood that they removed the…
Just found another "sister"....a shockingly young one
My daughter just told me today that a young woman she went to school with has OVCA. I have friended her on FaceBook, and will try and get her to join us here. She can't be more than 36 or so. This reaffirms my decision to participate in the vaccine trial. It's sad and awful to lose your mom to this crappy disease, even as…
Hello and Thank You
Ladies of the boards - First, thank you for participating in discussions that benefit not only the active members, but also those who find the boards while Googling for answers to our cancer questions. Second, I think your active support of one another is fantastic! Seeing your encouragement to one another indirectly…
Has anyone experienced shingles with their ovarian cancer diagnosis
Has anyone had shingles during their OC diagnosis? Has anyone taken the shingles vaccine?
Time for some fun postings: What are your favorite Guilty Pleasures?
For me, it's Red Wine, Chocolate and paranormal romances. I love Pinot Noir or Shiraz (tend to prefer the New Zealand Pinot and Australian Shiraz) and Hazelnut Chocolate bars from Lindt! YUMMMM! as for the romance novels... Charlaine Harris, Christine Feehan, and the Arcane Society series from Amanda Quick, Jayne Castle…
Vacation if Florida
My wife and I want to go to Florida this spring but we need to find a place that can do blood tests. Does anyone have any suggestions for the St. Petersburg, Clearwater area?
bye bye hair
just wanted to share - right on the clock.... two weeks after my first carbo/taxol treatment my hair started to fall out, it was annoying and depressing. Tonight my husband shaved my hair. Have to say i feel kind of relieved, liberated. #1 - it does not look that horrible. I have tried my Wig and hats, scarves - not bad at…
Visualization and Prayer
Comes from Getting Well Again by George Simonton: Think of cancer as weak and disorganized crazy cells. Chemo as strong soldiers battling crazy cells. Vision it over and over again. Chemo carries the dead cancer cells out on little stretchers...... I'd like to believe that anything we do to dress ourselves in armor for the…
LindaP
In reply to your post under my original post regarding treatment. I think my onc wanted to start with avastin/cytoxan because it is gentler. If that worked I'd still have Taxol in my pocket. I am still not 100% it wasn't working. I didn't have a beginning treatment ca125 drawn. My lastest ca125 was 2wks prior to starting…
I think I am done.
Got my scan back. I guess I failed first line treatment. It is in my liver and brain. I had radiation on my brain today. Next week they decide which second line to do for the liver. Guess, I better get my house in order. I am pretty shocked, being that I thought I was doing well. Then a few days ago, my arm and leg went…
I am officially a lab rat
My 10:45 appointment got underway right on schedule but by the time they did EKG, blood draw ( LOTS of blood), vitals, etc it was 2:00. It took a long time (over an hour) to get the vaccine compounded. I posted on Face Book that it had to be done by elves specially trained in alchemy. LOL My next injection is Feb 11, then…
2nd Line treatment questions
I am on my 2nd line treatment of carboplatin & doxil. I only had a 4 month remission with the taxol. Could anyone tell me if there will be hair loss or any differant side effects with this combination of drugs? My hair is just starting to come back & I don't know whether to have it styled , if I'm going to lose it again…
student learning
My daughter is an RN student. She has to give an education lecture on any topic and choose a target audience. I told her she should do it on ovca awareness. She needs to list a specific number (I forget how many) of educational objectives for her target audience. I suggested her target audience be nursing students or…
Thank you all for this educational experience
I was really excited when I discovered this discussion board. I learned so much through my cancer experience, not the least of which was how to manage this disease; how to make educated decisions regarding choices that were available to me; how to be my own best advocate; as well as how to more fully appreciate my life. I…
Wish we could post pics
Had a great time - drinks, dinner and Starbucks - with Joni. She is so cute and FUN! Carlene

Ovarian Cancer

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