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Ovarian Cancer

Archives for October 2010

Eye-opening facts about the "I love boobies" campaign
This link will take you to a broadcast of an investigation into the group that sells the "I love boobies" bracelets, rubber bracelets promoting breast cancer awareness that have almost become a fashion statement. The bottom line is pretty shocking.…
DeQuervain's Release
That's the name of the procedure I am having done tomorrow morning. It will, hopefully, relieve the hand pain I have been dealing with for the last two months. I can hardly wait....for my hand to stop hurting, that is. Carlene
Good news for Angela!
After only two chemo rounds, Angela's CA 124 count went from almost 6000 to 176. The chemo and "prayers" are working!
leg pain after chemo
I'm new to this sight, I've finished chemo in July and am experiencing leg pain and numbness in both feet and right hand. Besides taking neurontin, any sugestions on any other pain relief?
The Soapbox... step up to Rant a bit and Feel Better!
My rant: Here's an addendum to my "Look Good feel Better" story from last spring. (It was like being in high school, only instead of the wrong clothes, I had the wrong cancer. The women had introduced themselves by cancer, and everyone but me had breast cancer) When I spoke with someone at the hospital,to let them know how…
My mom has Ovarian with many other health problems
She's had ascetes (sp?). They've drained her abdomen twice. She's insulin dependent and she's in kidney failure. We went to a surgeon who said he didn't want to do surgery right now with the ascetis, and wanted her to have two rounds of chemo first. I'm so concerned that her kidneys won't hold up through chemo and he made…
Just Imagine..................
Of all the cancers, we know breast cancer is the largest and most organized entity raising the most money with thousands in walks aross the country and the most publicity, all deservingly so. We also know that many with other types of cancers would benefit greatly if they could have the same clout, money, organization,…
My alien is dead....
Saw the nice young surgeon this PM and he insisted on taking my port out, then and there, in his "clinic". I got injections of local anesthetic (OUCH!) and the incision, when he made it, did not hurt, but those shots....holy Mother of God. They hurt like hell. I go back in a couple of weeks to let him look at the wound and…
Latest news on Jayne
For those of you who follow Jayne Armstrong's amazing story....this is her latest FB post. "We made the difficult decision to go onto Hospice Care later on this week..I'm still going to fight to live!" She sent me a private message earlier that she and Jimmy had managed to negotiate a "deal" with Hospice that will allow…
Has anyone heard of Catumaxomab
I did a post but nobody responded. It is being used in a study wherin it prolongs remission in ovarian cancer. I tried to read up on it but I tend to get lost in medical information. Karen
PARP trial news
I ran across this on the inspire board. I am not sure when it was broadcast but it is great news for OVCA. I am NOT in this trial though...darn!! I will be starting the ENMD-2076 trial. http://www.msnbc.msn.com/id/3032619/#31532986
Add some teal to the pink
If you live in the US, you can go to this address http://www.tealtoes.org/contact Fill out the form for the TEAL TOES cards (they list symptoms on the back). A few weeks from then, you'll get an envelope in the mail with a bunch of very nice laminated teal toes cards. Wherever I go, Pharmacy, Doc's office, Library....if I…
had multiple rounds of chemo? Could you have low grade form of OVCA?
Just want to say that recent research by MD Anderson makes a distinction between low grade and high grade forms of ovarian cancer and their research shows traditional chemotherapies are ineffective with low grade form. These are responding to "hormonal" agents like Tamoxifen, a breast cancer drug. After six different…
Grateful to have found this discussion
I was diagnosed with stage 111 ovarian cancer last Feb had surgery but they didn't remove anything. After 6 treatments my CA125 was 28 & the tumor had decreased in size and there were no more tumors. After that there was nothing I was told to do or expect. I learned so much from you ladies, from the peach fuzz on my face…
I really didn't need this (and I KNOW hubby didn't!)
As if I'm not stressed enough over blood work on Monday and my first 3 month check up.... here is a brief synopsis of the last week.... (Not including work stresses) **hubby has a bunionectomy on Friday 10/1 (Note: He is a diabetic who thinks that Snickers bars and Lemonheads are required food groups) **hubby carries on…
Catumaxomab
Has anyone heard of this? It is being used in a study wherin it prolongs remission in ovarian cancer. I tried to read up on it but I tend to get lost in medical information. Karen
The excitement just never ends
In a motel in south Texas and I'm off to the closest ER. My alien is now bigger- the size of a dime - and beef steak red in the surrounding tissue.
I have a friend
I have a friend ( insert husband, daughter, son, neighbor, etc. ) who I will never be able to thank enough. She is simply always there when I need her. She takes me to appts., chemo infusions,and blood testing. She calls just to say "hi" and ask if there is something I could use from the store. She doesn't shy away from…
My mom leaves ICU for Acute Rehab today
It's hard for me to believe that my mom is getting ready to discharge from the hospital today after the long haul she has been through. They removed her trach and she is breathing room air without any O2 support needed. She is able to walk about 25 feet and is doing better eating normally. She is starting to learn how to…
Chemo is work☙♪☙♬❧♩❧
I went in today for my infusion and got reults from last week. CA125 dropped down 50%. The blood draw last week was taken after I had been receiving carbo/taxol (dense dose) for one month (3 infusions). It has not been this low since June of 09. I am counting my blessings♬ hugs, kathleen❤ dx ovaca 3C 6-07 now receiving 4th…
Chemo Brain
I'm Ashley I was 18, now 22, when diagnosed with Ovarian Cancer. Had full hysterectomy and 9 months of intense chemo. But anyway umm does anyone else forget what they were doing during the day, or have been diagnosed with chemo brain? I need answers i'm scared i will forget what im doing while driving sometimes....
Information
Ladies check into Weiman home products they are proudly sponsoring the Ovarian Cancer Coalition. Need to buy these products for sure. Thanks, ladies
Hair question....nobody laugh
I suddenly remembered a woman I used to work with, whose hair began to get very thin after menopause. Her doctor recommended Rogaine for Men (because the one for men is stronger and being post-menopausal, there was no danger of her getting pregnant). Would something like that be advantageous for us, as well? My hair was…
It's always something....
My port has managed to work its way thru the skin,like a little purple alien, and has to be removed. I had today's chemo via a vein in my arm and go Oct 12th to talk to the surgeon about port options, and while I am there we will discuss my hernia. My Gyn/Onc gave me several choices today. I could have gone home and…
Re: Need help with this and some more questions
Thank you everyone who gave me support and information. I am sure you know how much this means to me. More than I can say. My cancer is CA Metastic to Pleura; CA Ovary Stage 4. In the surgery I had on Sept. 10 there was so much cancer in the abdomen and the intestine was blocked. Tumors were removed from the abdomen and…
My mom has had numerous rounds of chemo and now it's time for surgery
My mom was diagnosed with stage III/IV ovarian cancer on May 4th of this year. She has had 5 or 6 rounds of chemo, and despite losing her hair she has reacted very well. Her CA number has dropped significantly since the beginning. She goes in for a cat scan tomorrow and then they will plan surgery to remove the rest of the…
Breast cancer has a ribbon but we have a band!
Hi gals just bumping this up in case some of you haven't seen it. Love NED❤ https://player.vimeo.com/video/13338331
Attention Former Smokers...
(Commence whine) I've had an awful week. I have a cold, an awful back ache, my husband is whining about his TOE surgery, and I have my first 3 month checkup/blood work next week. I WANT A CIGARRETTE! (Cease whine) Thank you for listening, have a good night.
PPC, interested in IP chemotherapy, need some answers!
Hi everybody, I am new to all this, and I would like to thank Tina for sharing a link with me to this page. My mother has been diagnosed with PPC, we were first told that it was ovarian , she has had 3 lots of chemotherapy and has had surgery all good so far, surgeon said there was no visible trace of the beast left after…
Update on Linda
Nothing dramatic to report other than we've waded through one cycle of cisplatin and docetaxol. That first round was heck on her. Cisplatin really knocks her over. But we've moved to a hospital closer to home with the idea that if we have problems or need for infusion we can get her easily. Just 10 minutes from home. This…

Ovarian Cancer

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