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Ovarian Cancer

Archives for October 2010

Mom had her first treatment
She got Taxol/Carbo on Thursday. We spent 2 1/2 hours in the emergency room today because her ascites has gotten so bad that she could not breath. They drained about 5000 ml out of her today. She's at least breathing better. Am so very worried about her. She's 78, with diabetes and is in Renal Failure. She breezed through…
New here--ovarian, clear cell
Just diagnosed on Oct. 14 when I had surgery. Clear Cell, Grade 3 Stage 1C. Surgery went well and will start chemo Nov. 19th. Pretty anxious. Just started early retirement end of June and was planning on a great ski season (lots of mid week skiing). I suspect chemo will dictate some of my skiing regime! Anyone with…
ice during Doxil
Hi Ladies, I am in a panic about my upcoming carbo-doxil combo. I was told that I did not need ice packs, yet I see many patients do use them. Any info.? I also saw that Doxil may give you incorrect high CA125 numbers? GREAT! I also read the side effects are worse when they add another chemo. GREAT, again! I'm sure looking…
I'm ready to make a donation to....
24 hour monitoring of CSN. 'Seems they are gone for the week-end. How can all these posts continue to remain? I am SO angry. Some of the ones she pulled are some who are no longer with us. It pulls at my heartstrings to see their names.... Are we going to have to see this until Monday??? CSN, get it together! Thanks, Froggy
Just sayin', Doris....
I would pay 100 times the going rate for drugs before I would buy them from someone who solicits on a Cancer network site. I'm guessing most of the people on CSN feel the same, so I doubt you will be getting much business from anyone here. I only hope you get to read your PMs before the admins kill your CSN account. You…
DorisEknight
How do you sleep at night? Unbelievable...you've even spammed the childhood cancer boards. I'm going to be sick. {{I'm in the process of bumping recent topics to the top of the boards to eliminate some of the effects of Satan'sSpammer}}
Saundra's in the hospital
This is Joe, Saundra's husband. Sandy went into the hospital 14 days ago (sorry to be late, been busy). She has a bowel obstruction, now it seems in the small intestine. May be several obstructions or "focal points" as the oncologist says. She has been on an NG tube for 10 days, and IV nutrition. Her pain is pretty much…
I need reassurance
I had my last chemo on 9/16. My oncologist cancelled what would have been the last one on 9/22 because I couldn't tolerate any more. I had ended up in the hospital twice during the chemo. I have appointments scheduled for 11/02 and 11/03 with the oncologist and the oncologist surgeon. I have not even found out what my…
Carbo/Doxil- What do I need in my medicine cabinet?
Hi Ladies, 'Starting second round of "major" chemo on Tuesday. I have heard lots of horror stories about Doxil and was wondering what I need to buy in preparation.(One lady told me satin sheets are a must) I have had the carbo, so I envision myself bald with creepy, itching rashy skin! LOL I'm wondering if my wigs will…
Getting us all on the same page....
It's hard to keep everyone's info straight sometimes, so I thought it might be helpful to start a thread where we all share our "numbers". When were you diagnosed? (Sept, 2009) What stage? (IIIc) Are you the patient, or a caregiver: (patient) OVCA, clear cell, or PPC? (OVCA) What was your highest CA125? (4000) What was…
Rash on arms and legs
Hello, I had my first chemo of taxel and carboplatin last week Wednesday on the 12th. I did not have any severe side effects, but on the next week on Monday evening I started to get an itch on my elbows and inner knees. Tuesday I called the doctor and he prescribed OTC Hydrocortizone cream and benedril. He said that this…
Strange bowel movements
Here I am again, I do apologise but you guys are the only people I can think of to answer my strange and bizzare question. Just a reminder.............. I have stage 4 PPC where the fluid went to the cavity around my lungs. Because my numbers went up so drastically and the CT scan showed little change I am confused. So, I…
Didn't really want to post this now, but ...I thought maybe some good news might give us all a littl
Ok, Here's the thing. My heart is breaking for Tina and Froggy, and Jayne,...and all of the others who are fighting actively. I'm really careful about what I post, because, Lord knows, I don't want to make anyone feel worse. Then, I put myself in the shoes of women newly diagnosed who come here and read about recurrences.…
Need answers for my sister
Hi ladies, I'm not part of this group I actually have IDC stage IV and post on those sites. However my older sister just had a hysterectomy and was told that she is pre-cancerous. I always thought that you have cancer or you don't. Right now her surgeon is recommending the "We'll check you again in 5 years approach." That…
more new research: Early Versus Delayed Treatment of Relapsed Ovarian Cancer
Early Versus Delayed Treatment of Relapsed Ovarian Cancer (MRC OV05/EORTC 55955): A Randomised Trial Lancet. 2010 Oct 1;376(9747):1155-1163, GJS Rustin, MEL van der Burg, CL Griffin, D Guthrie, A Lamont, C Jayson, G Kristensen, C Mediola, C Coens, W Qian, MKB Parmar, AM Swart for the MRC OV05, EORTC 55955 Investigators…
I never liked the way NED danced anyway!
Hi all, I don't post a whole lot, but 'am sad today. 'Was diagnosed 3C Sept. 2008, extensive debulking, 8 rounds of carbo/taxo, an extra surgery for bowel obstruction 11/09, and a year of taxol maintenance, 'finished in June. In June 2010, 'had a CT and was declared NED... WELL, I went back for my 3 month checkup last week…
I am feeling much better today
First of all I just want to say a very BIG thank-you to all of my "teal ladies" (that's what I call you when I tell my friends at home about the marvelous support I get from these boards) You don't know how your responses has helped me these last few days. You are all such kind and caring people and I so wish I lived in…
Recruiting for CSN
I have invited a young woman who recently posted a message on my local support site. Her mom has OC, late stage. I know there are other daughters here who can help Ashlee help her mom. This is what she wrote: I need some help or support or both! My mom was diagnosed last Feb w/ stage iv ovarian cancer. She has had great…
Clinical Trial AMG 386 and Doxil
Hi Everyone, my name is Natalie and I'm knew to this site. I was wondering if anyone has had experience with the clinical drug AMG 386 and Doxil. I'm starting with these treatments next month and I really don't know what to expect. Thanks in advance for any helpful advice or insite to this matter. Nat671
Second Class Cancer
I went to the Drs. My counts were good but had a problem with my medical card. Here in the state of Kansas, I am on a program called Medically Needy. I am on it for 3 years from the date of disabiliy before I get Medicare. I worked so I do get Social Security. I have a high spendown (about 30% of my check a month) plus a…
Germ Cell Yolk Sak Tumour
Hi there, I just wanted to offer some suport and advice to anyone going through chemo for the above. I've been through it all before and have been clear now for over five years. It was an aggressive stage 3 cancer at the time. I wrote a website about it www.linkinachain.bravehost.com. So I'm just offering myself to talk…
CA125 rising slowly....
Well, I guess I knew it. I always try to be positive but....that little bit of fear comes sneaking in. Had my doctor office visit today and the CA125 was up a little more. Now it is out of the normal range. Last month it had risen 4 points.. now it has risen 3 more points. I am at 37.4. I have been on the Metformin for a…
hospital federal funding
I just spoke with a friend who was telling me if a hospital is federally funded that will influence their diagnosis and treatments. She bashed the hospital I am being treated at. She says she knows people who went there and were told they were terminal only to go for a second opinion and told they were not. She said in one…
On the mend
Seeing the general surgeon on Wed. He will check the site where my old port was, take out the stitches, and then we will talk about putting in a new one. Hopefully he can do it next week. The hand is better. Very small incision and only 5 stitches to close it. It is bliss to be free of most of the pain. Dental appointment…
Numbers are up............. a lot
Hello my fellow tealers I have just recieved my results from my CT scan and my CA 125. Good news first, my CT scan shows that "the generalised peritoneal disease are essentially stable" All major organs are unremarkable, no bone lesion and no ascites or plueral fluid. Bad news, my CA 125 has risen from 71 to 1,280? I don't…
Worth a second opinion?
I am a cervical cancer survivor (26 months post treatment for IVA) and am wondering...is it time for a 2nd opinion? I recently had a pelvic MRI due to new abd. developments, which I had to request a transcript as my docs never contact me with results. The report reads..."there appears to be a fibroid in the posterior body…
Very Large Endometrioma
Had a very large 7" diamater ovarian endometrioma removed Oct 5. My oncologist surgeon said it had 2 cancerous 1: growths inside so she biopsied my abdomen which came back negative. She wants me to do 6 rounds of chemo even though the cancer was contained in the cyst endometrioma and has not spread to my abdomen lymph…
After 80 days in the hospital----Mom goes home on Tuesday!
Apparently, after not even two full weeks of acute rehab, they think my mom is ready to go home. I am driving up on Monday and planning to stay for about 10 days. Her psychosis is completely resolved and I think she may be ready! She is walking 150 feet unaided for the most part, is eating, and even made herself a grilled…
Just feeling scared at the moment
Just remembered that this is a good place to come to for a rant or a moan. I'm not sure what I feel but I am very low at the moment. I am WAITING to go see my oncologist on Monday for my latest CT results and blood work. The numbers had risen last time so I am somewhat anxious. I went to my Primary care doctor (we call…
new research: Bevacizumab (AVASTIN) Confirmed Beneficial For First-Line Ovarian Cancer Treatment
Bevacizumab Confirmed Beneficial For First-Line Ovarian Cancer Treatment Elsevier Global Medical News. 2010 Oct 12, S Freeman MILAN (EGMN) - Early findings from the phase III ICON-7 study have shown that bevacizumab added to standard, first-line chemotherapy for advanced epithelial ovarian cancer improves progression-free…

Ovarian Cancer

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