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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for February 2014

Lymphoma Newbie
The cancer gods have thrown me a double whammy. After kicking anal cancer last year, I've now been diagnosed with Stage III (Maybe IV) Hodgkins Lymphoma, so I guess I'm moving to this forum now. I had a marrow biopsy to see if it was Stage III or IV but it was inconclusive, and I ain't letting 'em do another (ouch) since…
Our Latest
We got the results from our last pet scan, but it wasnt as good as we would have liked. :( My husband has just finished his fourth cycle of ABVD, but the main mass in his chest is still 8 x 2.8 cm. I cant find what it was on the first pet scan expect for "massive, bulky anterior mediastinal lymphadenopathy, with the…
Lymphoma Newbie
Hi. I'm newly diagnosed with Stage III Hodgkins Lymphoma, maybe Stage IV. The bone marrow biopsy was inconclusive and I ain't lettin' 'em do another! Ouch! I just started ABVD chemotherapy yesterday and so far I haven't had any untoward side effects. (I know, give it time...) This is my second battle with cancer. Last year…
In Limbo
I'm a 30yr old white female. I was diagnosed with Alk-pos anaplastic large cell lymphoma back in October. I have just finished my 6 rounds of CHOP. In one month I will have a follow up PET scan and will know more about where we stand with things. The doctor has already mentioned doing radiation to the tumor I had on my…
Hey!!! R-CHOP Vs E-POCHR
i (34yrs,Male) have been diagnosed with high grade large diffuse b-cell lymphoma last month and i have had my second chemo of R-CHOP regimen. I have been doing alright with all the common side effects like losing taste buds, hair loss, general tiredness. I was trying to get a second opinion on my treatment regimen and was…
Aaron
Aaron -- Have you learned anything yet ? I recall you expected to know something by late January . Hoping all is well for you in the Great Northwest, my "Former NLPHL" friend . Max
not so bad
I 'm so sorry I did not post sooner. After the appt we had to go to Sacramento to pick up a new modem, so I wrote on my phone on the way down. I finished and was proofreading and poof my message was gone! AArgh! Bill just now got the computer running again. Well, the news is ok. The pet showed the nodes lit up., the…
My Latest
Hi folks. Last we talked I was talking Revlimid (an IMID--not chemo) to knock down the DLBCL before auto SCT. I had my CT scan last Friday and PET scan today. Met with the doctor and, unfortunately, the drug isn't doing what we hoped. The cancer has progressed--the Revlimid might have slowed it down but that wasn't the…
PRESCRIPTIONS
PRESCRIPTIONS are becoming a real hassle for me. I have plenty of refills, but when I go to get them refilled I hear, The insurance company has not cleared and have to give it a few days. The perfect answer when you don't have a few days because you are out of medications. The only other option is to pay out of pocket.…
Swollen lymphnode in right groin, no diagnosis yet, biopsy done
I don't know how to do updates, so I just added to this one. Had my biopsy done on Thursday. Went well, but before I went in the operating room I showed the Dr another hard lump just below the ones he was going to take out and told him I have this same lump on both sides of my inner groin (left and right) and asked if it…
Squamous cell carcinoma in pharynx - stage 4
Hi all, I recently had surgery to remove a swollen lymph gland and a lateral tonsil. They biopsied it and found squamous cell carcinoa. Unfortunately after xraying my teeth it was determined that they want to remove 3 lower molars and the mates above saying that any dental work after 6 weeks of radiation treatment would be…
Stopping in with a quick question
Hi. My name is Shawn. I am a "regular" on the Head and Neck board. My dear brother just recently finished up tx for tonsil cancer. Now my brother-in-law is battling Diffuse Large Cell Lymphoma. He is having trouble with a low WBC, which I realize is normal with chemo patients, but we were told that they are giving him a…
Snow Storm
To all the posters that live in the South as I do. Snow storm is upon us right now and hope it doesn't kill our power. Try to stay safe. Never seen anything like this !!! Snow,ice,freezing rain...John
A poem i wrote
I wrote this poem this past summer it is about my feelings dealing the the demon i call cancer. And so I smiled As sweet as can be In the face of the monster Called my reality I have seen all my demons Have gone toe to toe And from this battle, I will win, that I do know Refuse to give in, will continue my fight I have so…
3rd times a charm?
Hi, its been awhile since i was here last, a lot has happened since i posted here last year. I had the Zevalin chemo last January 2013, which was not affective, i have relapsed again, twice now, and i am not sure what the future holds. I had the CT scan that showed a new mass, and i will have the PET scan Wednesday the…
Unexpected
We went to Bill's oncologist routine visit to check his ct report and to hear that he was still in remission (2 yrs) and get ready for his last rituxan infusion tomorrow. Well.......it didn't turn out exactly that way. They found a 3x8 cm cluster of lymph nodes in his abdomen that were not there before. He is scheduled for…
Nodule 9,66 mm mediastinum
Hi! I'm new to the forum. I don't know exactly where to post this topic. I came here to look for information and opinions. I have had several symptoms and signs, that the last years have advanced, but the doctors I had seen have been of very little or any help. I wanted to ask If somebody could tell me or has had the same:…
I don't know what to do...Nodule 9,6 mm Mediastinum.
Hi! I'm new to the forum. I don't know where to post this topic. I came here to look for information and opinions. I have had several symptoms and signs, that the last years have advanced, but the doctors I had seen have been of very little or any help. I wanted to ask If somebody could tell me or has had the same: I had a…
Stoping in to say Hi
Hey everybody..... Just stopping in to say Hi and check up on everyone I hope this finds everyone happy and healthy XXXOOO Carie
Young girl has documented her Hogdkin Lymphoma experiences on Youtube
http://www.youtube.com/user/meggersk/videos Sorry if this has been posted before.
Scan done, now we wait
Hey friends, Well, the scan is done and now I do the thing I think we can all agree is the worst...i wait. I have an appointemnt Monday morning to hear the results. I hate this part. I envy those that get to have their scan and then find out the results the same day. I really dont know why my onc isnt able to do that, but…
What do yoga mats,shoe rubber and Subway have in common????
The answer is...... They have the some of the same ingredients in the bread ,the yoga mats and the shoe rubber. I just can't figure out why we get cancer and why cancer is on the rise. Maybe they should call for a $100,000,000 Federal investigative committee to find out. Whoops !!! Is this to political since the FDA has…
Marginal Zone Lymphoma
Hello, my mother at 90 is finally at the stage of her marginal sone lymphoma that symptoms needed addressing. She has finished her four weeks ( once a week) of rituxin and her platelets are still low. How long does it take for the rituxin and steroids to impact the bodys making and keeping healthy platelets ? Thanks
How are you, Sue?
Hi Sue, I just wanted to let you know that I was thinking of you today. Hopefully your tests are over and you are home and feeling fine. Sending you love and hugs, Lisha
Exploding Head Syndrome
I've avoided mentioning an unusual problem I have been having for a time. It seems to have started around the time I started chemo but I haven't found any reference that chemo can cause this to happen. For me I started hearing loud ringing like different types of phone tones as I was almost asleep. It would be like a phone…
Antioxidants
I have seen two long term studies which indicate that taking antioxidant vitamins and food supplements dramatically increase the risk of cancer. Also my onc advised against vitamins and supplements saying " consuming anything you don't actually need harms you". I took that to mean these supplements are NOT a way to prevent…
Chemo Brain - I saw the Neurologist Today
About a month ago, I posted about my ongoing frustration with Chemo Brain--Chemonesia. Today, I saw the Neurologist. He gave me a test in which 30 was the "passing" grade. I made 27. He diagnosed me with 331.83 MCI (Mild Cognitive Impairment). He ordered tests of B12 and Thyroid function to rule out those possibilities. It…
The Welcome back from Vacation Parade
Hey Everybody, I just got back from organizing the, "WELCOME BACK FROM VACATION PARADE." I am sure everybody is back now. The posting site is starting to grow grass between the post. I am getting so bored I even welcome our flagger back. WELCOME BACK EVERYBODY!!!!
NHL survivor - has anyone had a double masectomy because of mantel radiation to prevent breast cance
Hi, I'm a stage 2b NHL survivor. I was diagnosed in 2007 and had 8 rounds of R-Chop and 35 treatments of mantel radiation. I know the radiation increases our risk of breast cancer by a lot and I am already seeing the changes and starting to have little problems. Has anyone had a preventative double masectomy to reduce your…

Lymphoma (Hodgkin and Non-Hodgkin)

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