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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2012

Methotrexate Injections?
I finished my 6 rounds of R-Chop for my large B-Cell Non-Hodgkin lymphoma. The Pet scan showed all clear though the doctor said sometimes it can't show if every single lymphoma cell is gone. Oncologist is setting me up for a set of 4 shots (1 a week) of Intrathecal Methotrexate (type of chemo) which will be shot into my…
"HAPPY HALLOWEEN"!
Hi guys, I posted a new picture on my Expression page of our sweet Lizzy in her Halloween costume. This kid is a trip and keeps me laughing constantly! Have a great day everyone....don't let the witches and goblins get you tonight! :) Love ya...Sue
CLL and follicular and clueless
Wow I am clueless as to what I have and what might be in my future. Jan 2012 felt sick went to emergency room was sent home told I had cancer or lymphoma (or?)and I should contact my GP. After weekS of blood work and scans (no pet scan) I was sent to oncologist who told me with a simple blood test and 15 min later I had…
Scared
My husband and I are going up to Mayo tomorrow and meet with the doctor on Thursday to see how the Medrol/Rituxan is working. He is having night sweats which obviously is not a good thing and is not feeling good. I am truly afraid of what's next. I am trying to stay positive knowing I have Sloan Kettering's 2nd opinion…
hi everyone
im so so i am so slow at getting back to everyone, my hands shake so bad now i can ha it makes sensfadly type, its like they flap. if it makes sense it feels like i can get up and do more but i feel weaker. has anyone ever had a bone marrow transplant, my memory is even worse. blessings denise
LISHA
Lisha, are you our there???? I see you haven't been online. Is everything OK??? First it was Denise, now you. Please just post a few words. Let us know you're OK PLEASE. Very worried and concerned. Sue, I know you;re in touch with Lisha, is she OK?????? Maggie
Hurricane Sandy
For those of you in the path of Sandy, please keep safe. We expect rain here but we are south of the main impact so don't expect a lot of trouble although we are getting snow in the mountains/higher elevations (western NC). Hopefully, Sandy will be kind. Sandy Updates (ABC) Hugs, Jim
Update on SGN 35
It is now an approved treatment for recurrent Hodkins Lymphoma. Now me since I'm on clinical I'm thinking they need to follow protocol. Got a call from ONC at Kaiser, who I'm changing , that I'm gettin treatment at City of Hope then follow up at Kaiser, since it's now approved I'm praying this is a work around.
what to do?
Hello cancer family, I'm waiting patiently for my second opinion next Friday, and my oncologist seems to think it's okay to wait for the second opinion before starting up chemo again. (though he sounds nervous) Pesky "B symptoms" have been starting to crop up.. mild fever for about a week, night sweats.. not so sure if I'm…
Hi CathyP
Dear CathyP, I am pasting a copy of a message I sent you. There was some problems replying to your message. Therefore, I am re-sending my response. Thank you so much for passing on your knowledge to me. I would never have thought about a fellowhip trained doctor. Please believe me, I am not jumping into any surgery. I live…
Praise God- Cancer's in remission after bone marrow test
It's been 7 months now with no chemo and I'm doing well thank God. Blood count is up and am walking without walker and getting stronger each day. I have nothing but praise for my oncologist and his RN wife who took me step by step with 6 rounds of chemo and two months of aftercare chemo. I'm going to be 71 next month and…
NHL Large B-cell--I want feedback on bone marrow transplants!
The scoop: Diagnosed with Diffuse large B-cell aggressive NHL with bulky tumor in lung in May. Received 6 treatments of CHOP-R. Lymphoma responded very well at first. Now the follow up PET scan on Oct. 22 showed greatly increased cancer activity in part of original tumor. Had that area biopsied on Oct. 25 to verify that…
Light the Night
Hey everybody Tomorrow I will be partaking in the Leukemia/Lymphoma society's Light the Night Charity. This charity is to provide a number of sources of aide for those going through these diseases. I am so blessed to say that I am now a survivor of lymphoma but I swore that if I could beat this disease I would pay forward…
Anthem
I must not being doing something right because my posts have not shown up as new. I did call Anthem this am and because of a clerical error the bill is being paid! The rep said she would call the hospital for me. So happy. Thanks to everyone for your help.
hi everyone
hi everyone i am sorry i took so much time to get back to you, i didnt have much help,i came home late monday night and i really fanteel weak, and i am havving the worst time remembering things this times i had my transplant on sept.4th 2012 i dont remember any of it i had pnenmonia please bear with my spelliaveng. i also…
Sloan Kettering Second Opinion
Yesterday I went to my second opinion, Dr. Carol Portlock, a lymphoma specialist, at Sloan Kettering. My husband and I didn't expect that she would do anything too different from my local oncologist at Yale, but in anticipation of the appointment, I postponed the starting of rituxin and prednisone which my Yale oncologist…
Anthem refuses to pay for MRI reading
Have stage 4 cancer and had a MRI in July, just received a bill for $407.00 because Anthem denied claim 2 times. They will not pay for the reading of the MRI. Have another one this Friday, and now afraid that this will not be paid either. Has anyone else encountered this problem.
Neupogen
Hi everyone, I'm set to start Neupogen shots on Friday and I was just wondering for those of you who have done them, how bad are the aches and pains from it? Shar
im so
so gghad to wait for home nursing care to help me next week i have to help fiHT IT I WILL I I HAVE TO TAKEDENISE TTXHE E
Saw scuttlebug11 (Denise) logged in
I just saw scuttlebug11 logged in. Hopefully we will hear something regarding Denise.
How are you doing Aaron?
Hey Aaron, How are things going? Did you go for round 7 yesterday? I had quite the day. My pick line wouldn't return blood so I had to get Altaplased again. That took an hour. I was scheduled for chemo at 10. Got a call at one that my count was too low again, but doctor said I could to Neupogen and so got chemo at about…
Wondering
I have not seen Donald 51 here for a long while and wondering how he is doing. I am still in remission but have my ups and downs. My blood work still has not gone back to normal since the Zevalin in December of 09. I am also wondering how do Oncologist know that it is not still in your bone marrow. I am so wondering about…
Hair regrowth
Starting to grow hair after intense chemo treatments. I had dark brown before the chemo, now it seems to be coming in much lighter (hope it's not gray!) Would appreciate other members feedback on their "new" hair.
Life after treatment
I would really like to chat with someone that has had Hodgkins Lymphoma. I'm a 5 year survivor and my family and friends whom mean so much to me can't relate to what I've been through and continue to go through. I have so many questions and I would like to chat with someone who knows what I've been through and continue to…
second line treatments
Today's visit with the radiation oncologist went pretty well. But he made some strange faces, then said it's too possible to fail, and he didn't recommend radiation. It's all because it's my liver-- my poor sensitive liver! (Well-- I've taken good care of my liver and wouldn't mind keeping it zap-free for some time.) So,…
NOT AGAIN!
Well I got thru the uterine cancer and I'm ready to deal with the Lymphoma then something else turned up today.I got a call back about a mammogram and I must go tomorrow for more testing. I am just about insane right now. This is getting too much to handle. chris
2nd opinion questions ?
I'm sending MD Anderson and John Hopkins requests for 2nd opinions on my husbands Large Diffuse BCell which seems reluctatant to go away or be under control after 3 R-ICE treatments. My mind is fried lately so other than asking if there are any additional chemotherapies or radiation options (he did not get radiation) are…
interferon vs chemo in lymphomatoid granulomatosis
about 8 months ago my 28 yr old husband was diagnosed (after about a yr of misdiagnosis)with lymphomatoid granulomatosis grade 3.he has already endured one 6 month course of chemo ( r chop)with minimal results.his dr. changed his chemo regiment to r-ice. only recently have i found out about the use of interferon as…
Big Picture
Prior to getting lymphoma I had never been in the hospital and in fact tried to avoid Doctors. I am a bit naive about how to handle this jumble of Drs., symptoms and treatments. The big picture is missing. I need what we would call in my profession a good "systems engineer" to find exactly what is going on. I went to MD…
Bone Marrow Biopsy
On Wednesday I had my BMB with sedation. I was given Propofol and I was completley out. I am so glad to have that over with. I was just a little sore for one day, not to bad at all. I will learn the results and also treatment plan at my next appt. Nov 1. From what the doc has said to me so far I think the plan will be…

Lymphoma (Hodgkin and Non-Hodgkin)

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