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Stem Cell Harvest
I was wondering if anyone had trouble getting enough stem cells during the harvest-been on the machine two days and only have 1.1 so far. The nurse just called and said if the blood counts are not up tomorrow they may not continue with harvest. I guess the neupogen is not working like it should.
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BryanK
Bryan, If you are out there reading the post PLEASE post and let us know how everything is going. We know it is a hard road,but you can get some real support here. I know you have probably been on the computer searching the websites for answers.They are good for stats ,but not for real support. If you get a chance please…
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Only 300 people in the USA have what I have..
I am at MD Anderson for two days for testing the dr told me there are only 300 people in the USA that have hodgkins LP like me... They are going to put me on R-CHOP and I am wondering if anyone has had that and what kind of symptoms they had with it... I have to admit I am scared and am hoping someone can tell me how it…
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Started my R-CHOP today, well sort of!
Today was the day! Appointment was at 8:45, saw the doctor first then went to the infusion room. Since I just got my port but in Thursday, they had a little difficulty accessing it, but finally managed, and gave me my pre-meds. Rituxan was started at 10:30, at 40, within 30 minutes my throat started to feel scratchy and…
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Latest results from second opinion
Well the doctor i saw for the second opinion had me do lab cultures, and asked me questions from my medical history from 20 plus years ago, i was in nursing back then , i worked in hospitals doing patient care, he asked me if i ever had a positive TB result from the TB shot, i said yes i did but i was told i was most…
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Workshop: Fear of Recurrence and Late Effects
CancerCare Connect® Education Workshop, Fear of Recurrence and Late Effects: Living With Uncertainty, which is Part IV of the four-part program, The Ninth Annual Cancer Survivorship Series: Living With, Through and Beyond Cancer. The workshop will take place on Tuesday, July 12th, from 1:30 to 2:30 pm Eastern Time.…
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A little question about where your NHL was found, what part of your body?
My first diagnosis was found in the groin area, I found the lump myself. On the one and only recurrance I found a small lump under my left breast and it turned out to be the recurrance. Just wondered where others tended to spring up for the diagnosis with any of you? I mentioned in another post that 24 years later they…
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Bottled water and floride
Dear Jim and all, Jim, I was lucky to find this information right away. I am pasting 2 paragraphs I found online. It seems Poland Spring has the smallest amount of floride, and yes i was correct. If the bottle is labeled "reverse osmosis filtered" or "steam distilled" that very little if any of the original source water's…
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Help with symptoms
Hi All, I am having some bad health issues and am getting nowhere with physicians. I'm 39 years old and was diagnosed with hodgkins 2b in 2007. I went through about 15 rounds of chemo and about 15 of radiation also. After treatment I was clear of all cancer. About a year ago I began having chest pain. A couple times I had…
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After 20 years, a Lymphoma re-occurrance
Yes, I had Non-Hodgkin Lymphoma 20 years ago. I had a small relapse 5 years ago (I went on Chemotherapy for several months), but now it seems to have re-occurred. I don't even know the name of the type of Lymphoma that I have now -- it used to be called "poorly differentiated". I started to notice lumps in my groin area…
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All finished with R Epoch treatments
I just finished my 7th (I had one exra) and final treatment of Re Poch for Large Cell lymphoma. Last Pet scan looked good - no active lymphoma. Now we wait and pray it doesn't come back. I still have CLL (Chronic Lymphocytic Leukemia) but that is still stable.
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Port removal
Awesome news, went for labs yesterday morning, platelets at 50,000 YEAH!!! Came home took Gidget for a long walk, took a nap THEN checked my phone. Nurse coordinator called and left a vm (my phone was on vibrate) and said if I called right away might be able to get my port out today. So I did get it out. They don't give…
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CHOP Chemo
Hello all I am wondering if anyone has had CHOP Chemo. My Dr thinks that is what I am going to be taking but I wont know until monday when I go to MD Anderson and I was really hoping for someone to tell me how it was for them. I am really scared to have to do Chemo and I am not sure how to take it. I have stage 1 type A…
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My Dad has not much time
Hello Family, I am a one year 49 yr old survivor of IIIB adenocarcinoma lung cancer, so I am doing well, NED at this time!....the issue is my dad. Stage IV, Large B-cell NHL, was stable for 4yrs, then slowing gained steam to this point. He has gone through two rounds of chemo, last one was R-chop, 6 mo ago. It did not…
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Diets for Lymphoma
I am a newly diagnosed NH lymphoma(-tic). I am not obsessed, but do agree proper diet has its just rewards to most any malady. Does anyone have a proven diet, or just a list of what "to" and "not to" eat for lymphoma? Yes, I checked the i'net, but like most searches was deluged with yadda-yadda. Any and all suggestions are…
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Happy Anniversary to me!
Yep...today is my 1 year anniversary of when I joined this wonderful group. Thank you John for being the first responder, and thank you "ALL" for the continuous love and support you have given to me. I'll celebrate about anything these days,(ha!) so I figured this was just another one of those special moments to remember…
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Please respond to the post INTRODUCTION...
Hi guys, I'm still disturbed about a post that was submitted to our group last night from a young man going by the username of "Mofo". Many of you may not have seen it before it was removed by the moderator, but I'm concerned that Bryan may have read it. I think as many of us as possible should post a comment under the…
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To everyone, especially Johm
Hello all, I am pasting a copy of my post to John. John was so hurt that some of us haven't posted, or posted as much as before. I am not sure if everyone will read the post from me to John. Therefore, I just want everyone to know, I haven't forgotten anyone. I love all of you, and think of you often. See below under the…
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Introduction
Hello all. I'm new here. Just wanted to give you a brief introduction and am hoping to receive some support and information from those of you (patients and caregivers) who have also been battling with lymphoma. My b13 year old son, Kiefer, was diagnosed with Burkitts NHL about a month ago. What we thought was tonsilitis or…
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Checking in
Hi all, Just wanted to say a quick hello. I am feeling a bit bruised and battered, but okay. Very tired, nothing new as this seems to be my everyday normal. I am waiting for more appointments and some results. Hopefully I will have a better idea and a new plan. Beth, so so happy that you are home. Your strength and courage…
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Time has come to face the dragon!
My name is Martha, and I am a 60 year old grandmother of 5 grandsons, and mother of 1 daughter and wife of 42 years to a wonderful and supportive man. Thats all the important stuff. My dx is fNHL, 3A, extensive involved lymph nodes, no bone marrow. Largest node 5.4 cm, others 3+. Thats my dragon. Weapon of choice R-CHOP to…
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Home
:) I get to go home!!! Could have done it today, but nobody available to clean my house first. So last night at Hope Lodge! Port comes out Monday, so happy he's letting me go home early. Platelets are at 39,000. I am very happy but my sister is making the dogs stay in the basement. It breaks my heart because neither of…
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University of Michigan
So, yesterday I went down to Ann Arbor to the University of Michigan to talk with a Lymphoma specialist. They told me my case was rare. That I have Nodular lymphocyte predominant Hodgkin’s lymphoma (NLPHL) It is one of the less frequent types of Hodgkin’s disease comprising about 5% of all cases of this cancer. They said…
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Hello to all!!
Sorry to have been "away" for so long. I have checked in often and try to keep up with all of the posts. I guess I've just been busy and the time just seems to fly by. I do think of each of you often. Otherwise all is OK here(I hope). I will return to Mayo on July 27TH so they can let me know how I am then. Take care…
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Chemo Brain?
I have read about this in some of your posts. What is this? Joke? Real? Thanks :) God Bless Brady
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Tom...Where are you
Where have you been Tom? We are all wondering about you and how things are going. Hope all is going good for you.John(FNHL-1-4A-5/10)
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Hi!!!
Hello everyone, just checking in, hope every one's summer is going great, for all my friends still in treatment , keep up the fight!!!! Take care! Vinny
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Leaving tomorrow
Hi all, Just a quick hello and Happy 4th to all. I leave in the am for Texas. I have been trying to not think about it to much. Of course I am now getting nervous. I have had so so much going on lately, time has just zoomed by. Still have the landscaper people working, this small garden should have been done weeks…
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searching for informatio
Hello; I am a 39 yr old female. I have had an enlarged lymph node in my neck for almost two years now. By last year it had doubled in size so I was sent for a biopsy. The needle biopsy came back "suspicious". I had a chest xray done and it showed something on my lower lobe of my lung, but they thought it was scar tissue.…
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Side Effect for Rituximab Maintenance Therapy
I am a NHL patient from 2002 based in New Zealand. Did chemo twice using chlorambucil tablets in 2002 and 2004. In 2008 I had a full chemo with CVP-R followed by a maintenance therapy with R (Rituximab). There were absolutely no problems during the chemo. After a year completing 4 cycles out of 8 cycles planned, I…