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meaning of remmision
i never get the same anwser i here its gone it there just no spreading. an anwser to this would be so [appreaticad ]suddenly i forgot how to spell the word. denise
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sue just a question
sue by reading your post, which yours was one of the first, iwas just wondering if you go to church you are always so positive you always speak of God. my question is do you belive in miricles .love and best wishes my spelling isnt so hot anymore. denise
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TeleConference May 11: Update on Follicular Lymphoma
Hey NHL Team....add this tele-conference to your schedule! It's Free! To register, simply go to the CancerCare website at www.cancercare.org/connect or call 1-800-813-4673. I've signed up for several teleconferences. Once you click Register and complete the form, scroll down and check any or all that are of interest. I'm…
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7th rituxin today
Just wondering if anyone else that is taking rituxin wakes up feeling like a truck ran over you in the night. I get up , take a hot shower and I mean hot and I am good to go. It is so good to know people understand you and don't just think you are a complainer. Sometimes I wonder is it because I am 63 and old:) or the…
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for everyone
i went to church tonight had everyone put on the prayer list mabey man cant heal us but i still beleive in miricles and i know God can heal us we just have to have enough faith. denise
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Signature FNHL Grade? 4A and ?Date?
I've noticed some of you sign your name with type, grade, Stage and a date. What Date have you chosen and why? I'm wondering what I should consider my Anniversary and would think it would be Remission and no more chemo. Date of Diagnosis? Date of Chemo treatment? I was told @ Cancer Clinic, 1st day of treament I am…
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talked to my my docter
i talked to my pc docter today he said it will take about 6 weeks to start feeling better i have takin the thyoid meds for a week yesterday i wish i could just sleep for 5 weeks.best wishes for all of you mabey if we all pray harder a cure will be found. denise
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to cobra666
Dear John, Congrations on you good news i am so sorry i just saw your post i have just had a lot on my mind whenever i have a pet scan i call everyday untill i get my anwser which most of the time i get it on day 2 and remember the chemo keeps working even tho you finished it i hope the retuxan kill the rest andyou will…
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Radiation for HL
Hello, I had Hodgkin's Lymphoma and have had 6 cycles of ABVD. Tomorrow I'm going to get another PET scan that will hopefully be clean. That will mean no more chemo (they didn't have me schedule any more yet.) I hope to be moving on to radiation. I was told I'll have to go for 30 days (every day except weekends.) Has…
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Port surgery pain/discomfort
How the heck long is this thing uncomfortable? I am hurting tonight. I just took a pain pill a little bit ago and it just hasn't started working yet. This thing feels HUGE! How the hell do you get used to something like this? I am a member of ibtc and this thing looks so big and out of place. Lord, so much to get used to..…
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Lisha
i am so sorry to hear you are having other health promlems on top of the cancer it alone is hard i will be praying for you i hope you feel better soon. denise
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to sue
well sue i have been trying to post this three times i think i posted it in the wrong place the first time the second time it didnt post i read your post a lot you seem like a very sweet lady. thank you for your reply i do try to think of myself and my health but i find it hard to do sometimes i think my kids as vampires…
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Vinny..
Hi Vinny, Did you and Lisa find out anything new on her? Last I remember you were waiting to hear what she will need to do in the future??? My memory isn't the best..ha! Hope all is good with her and no more testing needs to be done. Thinking of you both...Sue (FNHL-2-3a-6/10)
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Where's our resident"stud"??
Hey John, Not like you to disappear for so long. I know you had your R-maint infusion on Friday, and you said everything went fine...are you still fine??? Hopefully your out and about struttin your stuff in your sun glasses...maybe you took your fancy Shelby out for a spin! Check in when you can buddy. Thinking of…
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Part one down
Well the day did not go totally as planned. I was to have my port put in place this morning and that didn't happen. There was an emergency and they had to reschedule that for tomorrow morning. I was able to still get my chemo today, just had to do by vein, which also did not go as planned. Blew out one vein and they had to…
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Cookingirl Fran
I haven't gotten an e-mail or seen Fran on this site. Anybody know anything? Thinking of you Fran and praying the drugs are working.
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Thinking of you Beth..
Hi Beth, Today is such a big day for you and I'm sure your weekend was filled with anticipation. I've had you in prayers all morning and you've been heavy on my mind. Don't worry about posting until you feel totally up to it. We all love you dear lady. Sue (FNHL-2-3A-6/10)
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Chest pain/pressure, years after treatment...
Does anyone out there still continue to have pain well after treatment done. I finished my 6 cycles of chemo for primary mediastinal large b cell lymphoma in May of 2006. I have been in remission since. Yet I still have chest pressure/pain of which no one can find an answer for (which is what brought me to the doctor in…
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Chest pain/pressure, years after treatment...
Does anyone out there still continue to have pain well after treatment done. I finished my 6 cycles of chemo for primary mediastinal large b cell lymphoma in May of 2006. I have been in remission since. Yet I still have chest pressure/pain of which no one can find an answer for (which is what brought me to the doctor in…
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My short, but bumpy ride with hodgkin's (My story)
Hi my name is Cameron Reicheneker, and I was diagnosed with Hodgkin's Lymphoma at the age of 16 (Stage 2B, Lymphocyte Predominant) In late December 2010, after I received a biopsy of an enlarged lymph node on my neck. I began treatment in early January 2011, after another surgery was performed to insert my Medi-Port. The…
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thaks to everone for your support
thankful for all of your support befor i got this suppot line from cancern society and my new church family i had no emotional support my 3 older childretren only called whenever it was time for my social ssecurity i had to lock up my pain meds because they would steal my13 year tells me costantly she hates me she told the…
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forme
forme i take levothyroxine 25 mcg denise
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leslie
i have follicular stage4 fifty percent in my bone marrow abdomen and my chest. still wondering where it came from and is it somthing i did. best wishes and prayers to you i go to church tonight it always makes me feel a little better. denise
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beth
beth you are so lucky i was sent to columbus and morgentown, and no match was found for me at either place. Wishing you a long happy life. you are in my prayers ~Denise
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Sue, thinking of you
Hi Sue, Just wanted to say hi and let you know that I'm thinking of you. Don't know if your awake after your long day. Sounds like it was a lot to do in one day. I hope the baby shower added some fun into your day. And I am so sorry for the loss of your dear friend. Any loss is so hard, but close friends are extra hard.…
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need imformation
does anyone know how long it takes for thyoid meds to start working i am tired of feeling tired if that makes any sense i want to feel like myself again. prayers and best wishesfor all of you and prayers to you beth on your transplant. denise
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"The Oak Tree"
A Message of Encouragement A mighty wind blew night and day. It stole an oak tree's leaves away. Then snapped it's boughs and pulled its bark until the oak was tired and stark. But still the oak tree held its ground while other trees fell all around.... The weary wind gave up and spoke, "How can you still be standing,…
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PET & CT Scan?
Hi there, I just wondering if it is common to have both a CT and a PET scan within the same week (not on the same day) to check on how Lymphoma is responding to treatment.
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Update - PET scan results
I promised to reply about trying to get an early visit with my husband's doctor for interpretation of his PET scan done three weeks ago. Well....I didn't get an appointment. We decided to just wait it out! The nurse practioner that we saw yesterday before John's tenth chemo treatment was sufficient and so informative that…
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New here. Children after Non Hodgkins lymphoma
Hi, my name is Catherine and I am new to this group. I am an almost 5 year survivor of Non Hodgkins Lymphoma. I was diagnosed in Jan 2006 at the age of 27. I received CHOP+R. I also gave birth to my first child one year ago (a beautiful healthy baby girl). I am looking to hear from others who have also had children after…