-
5 year old
Only one comment today about my hair loss. My 5 year old great neice looked at me with her hands on her hips and told me "You look different" LOL I guess it could have been much worse, but was kind of cute. Out of the mouths of babes. Happy Easter Everyone! Beth
-
Happy Easter
Hello,Hope you all have a peaceful day filled with loads of blessings.God bless,Michele
-
Two days in a row...YIKES!!!
Hi peeps, (see your faces in my avatar?)...ha! Hope I don't jinx things by saying anything, but man oh man..I think spring has finally arrived! Yesterday and today have been absolutely gorgeous outside!!! Blue skies..sunny and warm and NO wind! Spent yesterday pulling some weeds and today I'm going to set up the…
-
Treanda side effects
Has anyone here done Treanda/Rituxan and had alot of side effects?Need some input.Just finished my 4th round of 6.Thinking most of the side effects are from the Treanda as I,ve done years of Rituxan with mild side effects.Side effects so far- 8 day headache in temple left side behind eye,severe itching of ears, back,leg &…
-
Wide awake
Hi all, Here I am, wide awake. Trying to sort out what lies ahead. I'm sure that this is not the best time for sorting, but what else is there to do in the middle of the night. Walked the dog a little longer tonight , hoping I would be so tired and fall right asleep. Nope. I'm super tired, but thats nothing new, but not…
-
so here's where my mind is at..
Hello everyone. I'm brand new to this site. I've had Hodgkins since 2000 and have been through every type of therapy, for the most part successfully. I've handled it all fairly well, physically anyway. But right now I'm kind of stuck in no-man's land. I had a chunk of my left lung removed, which was hodgkins, and according…
-
Has anyone heard from BlueRoses?
Hello, Has anyone heard from BlueRoses? Its been a while since I have seen any posts from her. thanks
-
Update
Hi all, Staying positive , the challenge of the day... Talked to docs and now we have another plan. I am stopping the newest med, because of the negative effect on my heart. My BP is again becoming unstable and very high, even with 2 meds to control it. With the enlarged heart they felt like the risk is to high. I have to…
-
Is that you Sue?
Dear Sue, I love your new picture. You just couldn't help yourself, you replaced your old picture with hubby with the peeps. Enjoy eating your peeps this weekend, and have a great holiday. Love Maggie
-
Hodgkins Lymphoma Question on heart palpatations after radiation please help.
Hi my name is Tara I am 23 from Toronto, Ontario I was diagnosed with hodgkins lymphoma in my chest I had a large mass in my chest which was very close to my heart. I did 6 months of ABVD then did 4 weeks of radiation. I had really bad heart palpatation which started sometime in the winter close to christmas i was still…
-
Oncs Appt today
Well went to see my onc today before treatment next week since he's going to be in Israel with about 20 people from church. Actually one of them is Dr. Smalley my radiation onc. My counts are kind of low. White count is up due to the shot, RBC at 12 and low platelets. So the plan next week is Monday CBC & Rituxan, ICE on…
-
hard time posting
Hey, I am trying to post to everyone that I can,but the computer is only letting me post every so often. I write post and can't get them posted and the site freezes up. Happens so often, but do get a few to go thru. Hope this one goes thru. Anyway all my other site are fast as ever. Thinking of you all. John
-
What a day
Hi All, Quick update. Called dr this am, wanted to see me. Then I get a call from the womens imaging center, changing my app from next week to this afternoon. Met with dr after having more tests and labs. They are reducing my newest med by half. The concern is the effect on my heart! It seems that the tight feeling I have…
-
Beth
Hi Beth, I just read your message to Lisha on another thred and it made me so sad for you. Don't you have someone to come and stay with you next week when your husband works out of town? Three straight days of chemo and as bad as it makes you feel, you really need someone to help out with the puppy and most of all keep an…
-
My son has night sweats, advice needed
My 45 year old son has been having night sweats for some time. He told me two episodes last evening were the most severe. I've tried to alert him to the fact that it might be a serious symptom. What specialist (or GP) should he see for diagnosis as I believe there may be a hereditary connection. His father (my husband) is…
-
everything hurts
Hi all, Just got back from a walk aroung the park with Lola. Everything hurts. I find it harder and harder to move. This is not good. Still having weird feelings in my hands. I think that tomorrow i will call the dr and get some advice. This really stinks. Do you ever have the feeling that something is wrong. Well that is…
-
BEACOPP - How bad is it??
Okay sooo I just found this site and joined it...soo Let me briefly list what's going on. Last year in late October I was diagnosed with Hodgkin's lymphoma (I think it's stage 4...I had it in my lymph nodes and lungs...none below my diaphragm...Idk, no one told me.) I left school, came home and started treatment in late…
-
Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
-
Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
-
Ramping up
I am doing ok, but why is it when I actually am starting to feel better physically the emotional part of me that is dreading chemo this next week is ramping up? I have hit a couple times this week at work that I am just too darned uncomfortable with the scarf so I take it off. It seems odd that I am able to do that so…
-
No sleep
Hi all, I am sure that you all are snug in your beds, sleeping like regular folks do. Me, I am wide awake and can not sleep. Not sure why. Thinking it may be stress or meds or who knows. Been having some weird tingling in my hands and some tightness in my chest. Trying to not worry and over think things. But, of course I…
-
2nd Rituxan infusion in the bag!
Hi Guys, The scan results were fine...no new activity or change since January scans, so I had my 2nd Rituxan maint infusion today. Took about 3 1/2 hours but went ngreat with no problems...slep the whole time. My Onc wants me to make an appt with the surgeon that did my Rotator cuff repair and see about getting the forced…
-
Earthquake
Hi All, Well about an hour we had an earthquake. There was a very loud boom followed by the house shaking really hard. Lola was barking and I thought of you guys. I know we were just taking about earthquakes, and now we have one 3.8 mag on the anniversary date of the historic San francisco 1906 earthquake. A little bit to…
-
Anyone hear from Sue?
I know her appointment was earlier this morning, just wondering if anyone has heard from her yet? She's been on my mind all day today.
-
Treatment
I was just wondering if anyone has had any experience with R-CODOX/M & R-IVAC chemotheraphy as their treatment? Also if anyone has had intrathecal injections of methotrexate/vincristine?
-
Meeting in the middle
I would so love to meet everyone! I need the physical group hug more than any of you can imagine!! Here's a thought. How bout we meet in the middle? Kansas can't be more middle of the country can it LOL? Plus I'm about to trapped :) Just putting little bugs in everyone's ears.
-
Worried about John
Hi Guys, Steve and I just watched on the news showing the tornado damage in the Carolina's. John lives 14 miles east of Fayetteville N.C. Sure hope he checks in to let us know if he's ok. The whole area around where he lives looks to be having severe storms with tornado warnings and touch downs. Last report said 19 killed.…
-
Life Sucks
Hi peeps, Boy, I hate to complain about anything because some of you are having major health concerns but right now my life is sucky. I pretty much know what to do when I'm sick but as some of you know, I have a cat, Neo, who has been fighting lymphoma since Dec. IN Feb he was also diagnosed with skin cancer, treated with…
-
I'm Bald
Well my hair gave up the struggle this morning. I got out of bed and it was looking so frightening I tried touching it and way too much came out for my peace of mind. So I had Jim shave it off for me. I don't know about anyone else, but my hair was "hurting" and my scalp was very sore from the weight of the hair. I am glad…
-
Med change YUCK
Hi All, Just wanted to let you know that the new meds are so awful. I've been taking the zofran but just feel so yucky. Don't know how else to describe it. Any thoughts or advice. thanks guys.. Lisha