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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for August 2010

Thinking of you, Sue
Hi Sue, I just wanted to send you love and hugs as you start the road to recovery. I am amazed by the strength you show. I'm sure that there is fear, but your strength is what shines through. I'll be thinking only the very best for you tomorrow. Hopefully the day will pass quickly and you'll be done with number one. Also,…
I'm not a doctor!
I called the Imaging place to pick up result's, I always do, crazy I know, but I feel I have some control reading the result's. I don't know if it's good or bad news as of yet, there is still activity in my pelvic region, the Ilium bone to be exact. I feel the good news is that it seems to be the only area left. I have two…
Fantastic day!!!
Hi all, My port is in....no problems and I feel just great. Now the "REALLY" good news...My youngest son called about 5 minutes before surgery this morning. Guess what?...I'm going to be a grandma!!! Him and his wife have been trying for the last 8 years to have a baby. He has had a really hard time dealing with me having…
Anyone with siblings who were also diagnosed?
Hi All, I'm normally on the breast cancer boards because I was diagnosed a year ago. However, a vey good friend was diagnosed with stage 4 lymphoma at the same time I was diagnosed with breast cancer. I just found out that his sister was just diagnosed with stage 4 lymphoma. He is worried about his other siblings and his…
non hodgkin's indolent lymphoma
Does anybody know of any persons who have lived for twenty years or more with non hodgkin's indolent or folliular lymphom? The statistic say only 7 ro 10 years. Is that so? I would appreciate any help on this matter. Richard
Monday Warriors
To all of you having appointments, consults, procedures or awaiting results tomorrow and in the upcoming week I wish you all the very best. I will be saying some prayers, keeping you in my thoughts and checking back here for updates. Blessings to all. Mary
Rituxan maintenance therapy
I am wondering if anyone has experienced side effects from Rituxan causing skin rashes and itching. I have been on Rituxan maintenance therapy for approximately eleven years now and my onconogist has now held off on additional treatments. I am trying to identify what is causing my itching and skin rashes. Possibly it is…
My CT results!
Well I spent the day at Rochester and after much anxiety and worry am happy to say that my CT was completely clear thereby sustaining my remission. MD said there was absolutely nothing. I was so very relieved as I am sure all of you can understand. I was in one sort of treatment or another for a year and 10 months and have…
chemotherapy support for Mantle Cell Lymphoma
I would like to have some help about starting chemotherapy
Very Bad day today
Some days more than others are bad. Today has been one of them. There was a fatal car wreck this morning on the highway this morning, they were still there when I went by. A co-workers mom in law went for a cat scan this morning, then straight to an oncologist. Cancer in her lungs, liver, bone (hip), and her brain. Emily…
Last weekend of summer
Hi all, I was thinking of all of you and wanted to wish you all a lovely last weekend of summer. I send you all my best wishes for a peaceful and healing fall season... Take good care everyone. Lisha
Finally!
Hi all, Ok...surgeon called a few minutes ago today and said no way for port implant tomorrow(no openings).. BUT>>>It's a "GO" for Monday(30th)at 8:00. Absolutely...positively...no more delays.."YES"!!! The surgeon will leave my port accessable(??) and at 8:00 Tuesday morning(31st)I will get my first round of chemo. I go…
Rituxan
I've been getting this stuff for awhile now, and sometimes I do get very tired and headaches, general achy stuff. It doesn't seem to last as long as it used to. Hope this helps.
One day at a time
This is so true with this dreaded disease. We really don't realize how lucky we are. We are SURVIVORS, WARRIORS, STRONG, COURAGOUS wonderful people. It doesn't matter where we come from, what we do for a living, how much we have or how much we want. I watch the posts with all of you who are almost done, half way through,…
Long Day Today
Had my first infusion of Rituxan on Monday and had the usual side effects, etc. Been good since then until today. Had terrible body ache over night and ended up with a fever of 100.2 all day. If it went to 100.5 I neeeded to head to the hospital. So atleast I think I dodged that bullet but I feel awful, very achy. Temp is…
COBRA 666
In case you are wondering where I got the name I use of cobra666 it was sort of an accident. I was trying to use cobra 66 for the 1966 cobra car I have. It rejected it so I added another 6. Sounds a liitle sadonic I know. The little ones in the picture are my grandkids and of course my wife. The little girl is such a china…
6th down 2 to go
Hey guy's recieved my 6th treatment today, tomorrow it's back in for my shot's, it's getting a little harder then better right now, but it's ok, I have a positive mind set! The rubber hit's the road as I get my 2nd P.E.T. scan on Friday. My Onc told me that this will tell her obviously it the treatment worked or not, she…
Warts
Hi All. So far so good for me. Yesterday, Tuesday, was the first day of my second week. It went OK until dinner time. Connie had fixed a really, really good cauliflower casserole and broiled beef filets. And I ended up with something going on in the upper GI that was making me feel like nothing was going down right - sort…
No more Dr visits
Hi All, I am sitting here having a quiet and very tired moment to myself. I sent the family out to a restaurant for dinner, we are having a heat wave, the first one of the summer. So no one wanted to cook. I thought I would let you know about this morning at the ortho dr. I was given a new injection into my knee but was…
My First Chemo Completed!
First of all, thank you, everyone for your supportive words - because of this, I MADE IT TODAY!! Thank you, thank you. And so, when I arrived, I found that I had to meet with my onc. to check for questions and a quick check up on my lymph nodes and received info. that I am positive for the bone just in the area of tailbone…
Started Rituxen !
Hi all! Started my treatment yesterday. Rituxen. Had allergic reactions to it so lots of prednizone and benedryl throughout the day. Had bad chills/shakes and lots of hives. But (this is the important part) I got though all of the planned treatment although it took until 630pm (we got there at 7:30am and the infustion…
How are you doing tonight LIZ?
Hi Liz, Well...tomorrow is your "BIG" day! I hope you are trying to stay peaceful tonight. If you start to feel antsy or fretful tonight just get on here and talk about it...or e-mail me at reidst@charter.net. I'll be checking in all evening in case you need to talk. Hopefully you will go to sleep early and get a good…
Trying to be strong
Hi All, I hope all of you had a lovely weekend. I managed to get through mine with out to many fears and tears. I do wonder what is next. I'll be thinking only good thoughts for those of you starting treatment this week. And for those who are in the middle of it, stay strong and positive. Lisha
Zevalin treatment
Hello Hilde and Edwin and All on the board, It was good hearing from you Hilde(private message) and Edwin I am glad to see you are still here! How are you Edwin? Have you began treatment yet? I seem to recall reading a while back that you had began a treatment and if so I hope it is working for you. Hilde, I would like to…
House cleaning party...I survived!
Wow...what a great day...great lunch, and great bunch of friends!!! The house cleaning part went real fast and from noon on we just ate lunch, played music, even danced some disco steps to the Bee Gee's... well...we sorta danced... we laughed our butts off trying to remember how to to do the bump and the hustle...ha! (that…
angioimmunoblastic non hodgkins lymphoma
My wife is in stage III B angioimmunoblastic non hodgkins lymphoma. She has had two chop chemo treatments. Wednesday she had a pet scan done. While she was having this done I was told by her doctor that she probably has 1 or 2 years to live. Friday they called with the pet scan results and said there were no signs of…
Dealing with bumps along the road
Last Tuesday, I had to cut off work abruptly due to headaches, vertigo and hot flashes. Since then they don't seem to go away easily. Had some good hours though. I am sure stress has to do with this because I had many tests this week in order to be ready by Tuesday for 1st chemo. Two days ago, I had port planted in - what…
WBC's and Treatment
Hey There, Can anyone tell me what their WBC's, especially Absolute Neutraphils were when your onc ordered anything to boost them? My Absolute Neutra count is 0.53; my onc likes it to be above 0.50; WBC's are 1.7 (last lab they were above 4.0). Next Wed, I have R-CHOP #4. I'm wondering if she's working conservatively.…
Upper body muscle and throat tremors
Hi All, Well, this is my first official post with a question about experiences. My wife, mimi-warrior, and I have been reading this wonderful blog since we found it several weeks ago. Our hearts and prayers go out to all of us who have found ourselves in this situation. Thanks for being here! I am a newly diagnosed LBCNHL…
My journey....starting with a swollen right groin lymph node.
I ghosted these boards for a bit and see there are alot of caring and experienced survivors here. Even though I feel like I'm getting ahead of myself I decided to post now. About a month ago I noticed a "bump" in the area of my right groin. I wear alot of equipment at work so thought it was possibly a hernia. It seemed to…

Lymphoma (Hodgkin and Non-Hodgkin)

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