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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for January 2010

pity party
hi all- i am brand new to the boards and have registered to get some advice and support from those of you who have been there. In a nutshell, I was diagnosed with Hodgkins disease in 1980 and received full mantle radiation therapy (50 treatments). Like many of us treated in that era, I have suffered with many after effects…
Zevalin? And it' use after chemo
HI I had recently posted that I was "Newly Diagnosed with Follicular Lymphoma" (32 yrs old, stage 3, NO bone marrow involvement) Well I did 3 rounds of chemo.... Benadamustine, Velcade, Rituxin. And when I was initially diagnosed I was told I would do 6 rounds of this and then do once a month of Rituxan for the next 2…
Long Term Radiation sickness- how long does it last?
Hi everyone, I am hoping for some answers... my fiance is 43, had Stage III Hodgkins under his arm and went through Radiation only. Because he was very healthy and muscular, they gave him heavy doses of radiation. He has been in remission for a year and few months and is still fatigued, very sick for days at a time and…
Blood Counts
Well I have been doing my weekly blood test for cbc and my levels are very low , I did the Zevalin Dec 23. My platelets are only 20 at this time. my wbc is only 1.6 and so on. Has anyone been this low before. I wonder what it will be next Wed. when I go back. I am getting a bit worried. The Oncologist put me on the…
Lymphoma and Lung Infection
My Mom had Lymphoma and also contacted some type of Lung infection that might take her life. She was to have 6 Chemo treatments but had a hard time breathing she has been on Oxygen for the last month. The Dr. say that they don't know what it is. My mom is on a ventalator and we were told the other day that she is not…
Extremely dry skin
Has anyone had a skin side effect from either the steroids or Rituxan? I am having my maintainance treatments and my skin is going crazy! My lips and surrounding lip area is so dry. I have dry patches on my skin. My face burns when I use my night so that's no longer an option. Any experience with this? Can you share a…
Done!!
Hello to all, Just a quick note to say I finished my final round of R CHOP on 1-26-10. I am understandably happy. I went into remission at some point after treatment 2 of 6. I will have a PET scan on 3-9-10 to see if that held and if so at some point start Rituxin maintenance every 3 months.I now face all of the "back…
Hodgkin's treatment options
I was diagnosed with Hodgkin's Lymphoma last month, and I've had two different opinions on treatment from two different oncologists. The first oncologist recommended 4 cycles of ABVD and then radiation to my chest. The second oncologist recommended 6 cycles of ABVD, and he told me to avoid radiation. If the chemo doesn't…
Xerostomia
any on the boards familiar with xerostomia (dry mouth)?
Dry Mouth (xerostomia)
Anyone familiar with dry mouth after rad. therapy?? Phrangeal Lymphoma
Neupogen and Vomiting?
My husband has just had his second neupogen shot in two days and he has now started to vomit. He has had SEVERE stomach pain for a couple days and saw the onco yesterday. Well his WBC count was low so he was prescribed a neupogen shot a day for 3 days and IV fluid. All of this other symptoms (sore mouth, swollen tongue,…
brrrr!
Just a quick question for anyone. Currently near the end of my chemo for NHL and it seems that I am cold or chilled a lot. I do live in Minnesota but I always have,lol. Anyone else experience this? Thanks, Mary
anyone else with alk-ana plastic large cell
I would like to hear of another case of this said to be rare form of non Hodgkin's
Cisplatin and Etoposide?
Has anyone had Cisplatin and/or Etoposide for Hodgkin's? My husband has had 5 cycles of ABVD and his PET is still positive (SUV=2.5-3.0). The onco said 1 more cycle of ABVD then 3 weeks rest. If the PET after that is still positive then he'll get 1-2 cycles of Etoposide and Cisplatin. After he has finished all chemo then…
Blood levels Dropping due to the Zevalin
I did the Zevalin December 23, 2009 and have go ne weekly for my blood counts. They are really dropping. I will have to see my dr. on Jan, 20th. I am kind of worried that my platelts have dropped to 86. My WBC is 2.0 and my RBC is 4.32. I dont know what RDW is but it is 16.3 so they say that is high. Anyway I guess we will…
looking for non hodgkins relapse stories
i recently had a 100% clean 3month post chemo pet scan. I want to be excited but i am having a lot of survivorship issues.. please share your relapse stories with me. i feel like my doctors live in a fairly tale worlds sometimes and i would love to here realty! please share age, type and treatment options.....thanks so much
NEWLY DIAGNOSED WITH FOLLICULAR LYMPHOMA
Hi everyone--I'm 32 and was diagnosed in oct. with follicular lymphoma, stage 3, NO bone marrow involvement. The node was found in my right cheek initially and then there were additional nodes found in chest area,and groin. I am currently on my 3rd round of chemo. It is Velcade, Bendimustine and Rituxin (sp??). MY concern…
Getting there
I had round 5 of R CHOP yesterday and only 1 to go!! All went fairly well just a little tired. Hope all is well with everyone.
A cancer sufferer has told how mistletoe saved her life ..
A cancer sufferer has told how mistletoe saved her life after she shunned conventional treatments. Joan van Holsteijn put her faith in the healing properties of the plant, which is more commonly associated with Yuletide romance. She turned down potentially life-saving chemotherapy and instead had injections of misteltoe.…
Tonsillar Lymphoma Stage 3 or 4
Hello, This has been such a long process. Over a year since my husband found the tumor on his tonsil. He's been diagnosed with tonsillar lymphoma, mixed cellularity, stage 3 - possibly 4. They did a bone marrow biopsy and found 5% blast? Not sure what that means. He needs another one because they didn't get the other…
Depression
I was diagnosed with stage 3 NHL at the beginning of 2009. I have finished my treatments and all seems to be well. I am still having a problem with my spleen but the doctors are not sure if the problem is cancer or just a symptom of my treatments. The doctors have decided to wait a few months and retest to see. I have gone…

Lymphoma (Hodgkin and Non-Hodgkin)

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