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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for February 2004

new to chat room, have questions
I'm totally new to this type of communication, but would love to be in touch with others taking care of someone with nonhodgkins lymphoma, so I'm giving this a try.
petscan
my dads nurse says they do a pet scan after 8 cycles or is it 4 cycles? I pray there is no activity. I'm afraid my dad might get upset if there is still activity. The nurse says they would have to adjust the chemo and they would continue the cycles. What has been the outcome of pet scan after 4 cycles for everyone. The…
Anyone develop lymphedema?
This is my first posting...I am 30 and was diagnosed with Hodgkin's stage IIA one year ago. I had a lymph node biopsied from under my left arm followed by ABVD. After my chemo I still had a lump under the right arm--the PET scan was negative, but my doc did a biopsy of the right arm mass and it was just scar tissue. We…
Relapse after Stem Cell Transplant.
Hi all am new here,has anyone had a stem cell transplant (autologus) and it never worked?Had one this time last yr and Ct in July showed nodes still there,was told it is scar tissue(not happy with the reply)so had a PET in Dec last yr,showed cancer still present,Dr thinks my intermediate nhl large diffuse B cell was hiding…
Bone Marrow Transplant???
Hi everyone, I need some advice. I'm 22 and have Hodgkins Lymphoma. I went into remmision last October but now it has come back. My doctor wants me to have an autologous bone marrow transplant. I don't know very much about it and everything I seem to be learning scares me. I need to know what to expect. How long do I need…
dad so quiet
My dad is so quiet I don't know if he is depressed or mad about his HD. He's fustrated because he is limited to activities, which he is not used to. Does the fatigue pattern remain the same throughout the chemo or will it get worse. I get so nervous I just want my dad to get thru this and be cancer free it can't come fast…
What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
Radiation
I am about to undergo radiation and I would like to hear about the experiences all of you have had. I have heard different things and I know ultimately it just depends on the person. But I still would like to hear about different experiences. I have heard that it depends on where you receive your radiation,,,has anyone…
Great News!
My wife Sandy was diagnosed with HD stage 3 in September. She has had 9 treatments of ABVD and the PET scan now shows no activity. She has 3 remaining treatments to finish out her treatment regimen. Needless to say, this is the best news of our lives. We are very thankful to everyone that has helped us get to this point…
CT effects
I have to have a CT tomorrow and everytime I get one I vomit once the dye is injected. I was wondering if anyone experienced this and if there was anything I could do to prevent this from happening.
Mantel Cell Lymphoma
My Mum who is 57 has just been diagnosed with Stage 4 Mantel Cell Lymphoma (NHL). Her Oncologist has recommended starting with CHOP but isn't very optimistic. Does anyone else know of any other treatments or trials that might be worth considering? I would appreciate hearing from any Mantel Cell Lymphoma survivors as I am…
NH (Large and Small B Cell) Lymphoma of the Bone Marrow
My cancer began in the bone marrow of my hips as small B cell nonhodgkins lymphoma. I was 39. By the time they found it and 6 months later diagnosed it, some of the cancer cells had transformed to large b cell and had spread to various bones all over my body. I've had spinal fusion with cadaver bone, 4 open bone biopsies,…
Mom's Hodgkins..
Hello, I hope someone can shed some light on this, my Mom is 69 and has just completed 6 months plus and extra 4 shots of AVBD Chemo. She had her final cat scan done and her results were almost the same as the ones she had at the 6 month scan, she told me the Doc says she still had a "few spots in there". I was just…
few effects w/ ABVD
Is there anyone out there who had minimal side effects from Chemo (ABVD) A lot of people seem to have a rough time with it. My dad has had his 3rd treatment, he lost his hair and feels fatigue 5 days after treatment. He has not gotten nausea, they give him kytril, which seems to work. I hope he continues to tolerated his…
Itchy!
Hey I was wondering if anyone here has any tips on how to deal with the horrible, evil, annoying itching that you get with Hodgkins. I've tried all kinds of creams and anti-histamines like Benedryl. It's getting worse every day and starting to keep me up at night. I'd like to hear anything that worked for anyone else.…
pregnant with non hotckins
im 24 years old and i was just diagnosed with non hodgkins b cell lymphoma. is there anyone else out there who was pregnant with this cancer? if so how did everything turn out?
Day of Treatment
Hi everyone. I get really sick the day I get chemo. I get sick right while it is going in me. I take a pre-nausea med an hour before it and they give me pre-neausea meds through IV. Then I take Zofran every 12 hours...but I still get sick the day of it. I think a lot of it has to be mental. I am just tired going there and…
NHL / Rituxan or Herbal ESSIAC
Hello, Thank all of you for your responses. Have any of you taken Essiac / Caisse's tea. I have been doing alot of reseach on rituxian and Essiac tea. My doctor recommends rituxan as maintenance therapy. I have 2 more weeks to decide. My specialist is undecided, no evidence shows weather live expectency improves with or…
mydad
my dad has stage IIA non-bulky - nod. sclerosis, He is going to have his 3rd chemo treatment, he has to go the full six months of chemo, I thought with early stage fewer cycles were prescribed. My dad is age 70 and he was never sick a day in his life, he said he never felt so good in his life, he's a very positive person…
stage 1 aggressive large b cell lymphoma
I was diagnosed with aggressvie large b cell lymphoma. My symptoms were only bumps on my head. I was wondering if there is anyone else out there that has had this same symptom? I have had my first chemotherapy treatment which is CHOP plus Rituxan.
Tingling in feet
I am 37 yo male HD 2A NS patient and I finished ABVD in August 2003 and completed mantle field radiation in October 2003. To date, I have had no tingling of my peripheral nerves except for occasionally waking up at night with my hands "asleep". Within the last week I am experiencing tingling in my legs and feet, usually…
Reoccurance
I'm 22 female with Hodgkins and finished my ABVD last November. Now I'm starting to itch again in the same way I did before I was diagnosed. I know this can be a seriouse and underestimated sign. I just had a CT scan and will find out what it shows on Monday but I have a question. How often does Hodgkins come back? Has…
Side effects with ABVD only
I am a 29 year old woman who has been in remission for 2 1/2 years. I was only treated with 6 rounds of ABVD and during the past year and a half I have had shortness of breath and sharp chest pains that either start with activity, cold or for no reason at all. Definitely are worse with caffeine which I have now stopped. I…
Lack of support
This probably sounds petty, but I'm angry at the lack of support from some people in my life. My husband has been wonderful and many of the moms at my kids' school have been great and even my parents who haven't always been there for me have stepped up to the plate and have really surprised me. I guess the ones I am angry…
need help please
i am a 35 year old wife of a non hodgkins lymphoma patient .my husband is 39 and august 10 03 was daignosed with non hodgkins lymphoma .its in his bone marrow and just got 2 unraliated bone marrow donnors . but last sunday got really sick and ended up back in the hospital .he has had chop (did not work) then they tryed…
NHL / Ritixan for maintenance after remission??? anyone with results please!
I have low-grade , stage 1 NHL . At age 39 I was in waitful watching for 6 months. Dr recommended rituxan to put in remission for 4-5 years. well, it lasted 6 months before I went into emergency chemo / chop therapy for 8 treatments. After a pet and cat scan , results showed completely resolved / remission. Went to Dr…
hodgkins while being pregnant!
6weeks after giving birth to my son i found out i had hodgkin's disease. during my pregnancy i did have symptoms, but my doctors said i was just going through pregnancy, and that i was fine. my son is going to be 2 in april. i coming up on my 2 year anniversary and the doctor said i can start trying again iam very scared…
EXTEND SURVIVAL for nhl and PROLONG REMISSION
Please look at this web site and tell my what you think. It is called Geniprobe Corporation they're in partnership with NHL foundation. It is the cutting edge of research for nhl a vacine therapy to prolong remission and extend survival. My husband 68 has nonhodgkins lymphoma stage 4 in his bone marrow and is currently in…
NHL
MY HUSBAND IS 48. WEE FIRT LEANED HE HAD NHL IN JANUARY 2000. IN 2001 HE WENT THROUGH THE CHOPP TREATMENT. NEVER REALLY GOT IN TO REMISSION JUST SLOWED THE CANCER DOWN. THE DOCTOR GANE HIM 2 TO EIGHT YEARS. SINCE HE NEVER GOT IN TO REMISSION WE HAVE NEVER ASK WHAT THE FUTURE HOLDS. HE WORK VERY HARD AND PLAYS JUST AS HARD.…

Lymphoma (Hodgkin and Non-Hodgkin)

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