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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2003

I Need to Know....
My best friend was diagnosed with NHL in 1989, has had many relapses, had an autologus BMT in 1995, clean for 3 years, then more replases. In Jan 2003 she was diagnosed with acute myloblastic leukemia. she was in the hospital for 7 weeks, had 2 chemo blasts, bone marrow shows remission now. However, chemo caused kidney…
How many cycles of CHOP did you have?
Hi Everyone! I am 24, and was dx with agressive, large B cell diffused NHL at the end of last year. After 4 cycles, I had the full round of tests, and to my surprise, the tests showed that I was in remission. My doctor advised to have 2 additional rounds of chemo even after these tests were clear. After 6 rounds, I'm very…
Husband has Hodgkins
My husband was diagnosed with Hodgkins Aug 2002. He has completed 12 ABVD treatments, but the latest Pet scan shows activity in a gland that did not show activity before. He is considered unconfirmed remission. I am very worried that the treatments did not work since nodes in chest shrunk a little, but not to normal size.…
Supercuts do the really support cancer?
Hi my name is Sandy Martinez. I was diagnosed with NH Lymphoma Stage 4 in April 2002. I am the mother of 3 and married to a wonderful husband. At the time of diagnosis I was a long time employee of Supercuts, a so called supporter of The Cure for Cancer. I was off originally due to a prior knee injury and discovered a…
After Treatment?
Hello, my name is Alison and I just found out today that my cancer is gone! I am very happy but I was not expecting to still be exhausted since I finished chemo in Nov and radiation in Dec. I have radiation pneumonitis which is a real pain because I am always short of breath and worn out. Now my heart always feels like it…
I'm Getting There!!
Hi, I'm a 20 year old that was diagnosed with Hodgkin's at the age of 11. I'm over halfway through remission and going strong! If anyone would like to talk and swap stories, or even has any questions at all let me know. I'd love to chat. Keep smiling!
New Nodes- Like Hodgkins but Not?
Has anyone experienced a new cluster of inflamed but benign nodes? I am 24 and had Hodgkins seven years ago and it was treated locally with radiation. I developed several new nodes this fall in a different area, and they were biopsied. After a month of tests on the biopsy sample, my docs determined the nodes to be "cousins…
immune system
About a dozen years ago I had an autologous BMT for NHL. Since then my health is fine, but I seem to get an inordinate amount of colds, much like I did as a child. Does anyone have a similar experience, or any information on the reconstitution of ones immune sytem and if any immunities are lost or attenuated by a BMT.
33 weeks pregnant diagnosed with HD
Hi, new to the board. I was 33 weeks pregnant with my third baby (children ages 5 & 3) when I was diagnosed with HD, December of 2002. They took my baby a month early so I could start my treatments as soon as possible. I was stage 2B. Fortunately I had some really really awesome doctors. They moved quickly to diagnose and…
Light The Night Walk
Hello, for those of you interested please check out www.lightthenight.org for information on a walk in your area to raise money for the Lymphoma and Leukemia Society.
anybody out there?
Hey...I'm 22 years old and I'm battling round two (in just over 2 years)with nhl. Level 4 this time around, REALLY agressive. I just discovered this website, and I've found it to be really useful. But I am wondering if there are any other people around my age that are battling this as well. Or if there are survivors of a…
I am new here. I know someone who has NHL and they just had a relapse. I am the caregiver and I wond
The NHL patient is living everyday as their last, taking drugs, and is in isolation from me. I do not take drugs and I want to help this individual. What should I do? The will not let me talk with their doctor; instead they will me what the doctor tells them.
Someone please talk to me!
I was newly diagnosed with low grade NHL (Stage III) on Jan 7, 2003. I must admit that I have had a difficult time dealing with my questions, confusion, fear and anger about my diagnosis. Thank God, I have the most wonderful husband, family and friends by my side, but I find it more healing at times to chat with other NHL…
Remission...how long will it last?
Hi, My name is Jake. I had Hodgkins 2a. I went through 12 Chemos and 4 weeks of raditaion. I was 17 when diagnosed, Now I am 18 years old. I have been in remisson for about 4 months. When I was told by the doctor that the lump on my neck was cancer, it had little effect on me. What got me was watching my mom cry in the…
BEACOPP
Hello everyone. This is my first time on this site. I'm a 22 year old Hodgkin's survivor. I was diagnosed 4 days before my 21st birthday. I went through 6 months of chemo, and my last round was a year ago this month. When I was diagnosed I was in stage 4B. They said that radiation would do nothing, and there was a good…
If you need a friend or just want to talk.
Hi my name is Julie, I am a non hodgkins lymphoma survivor of 4 years. I am 32 years old and live in Columbus Ohio. My cancer was on my spinal cord, and I went through surgery, chemo, and radiation. Since I had cancer on my spinaL cord I losgt the use of my legs and had to go through alot of therapy to learn to walk again.…
non hodgkins' lymphoma
I am a cancer survivor of l0 years of non hodgkins lymphoma. Is there anyone out there that continues after all that time to be frightened of their annnual cat scans or do you still have them. My messenteric lymph nodes have enlarged since the remission but they remain negative. I am very lucky to have survived for so long…
aggressive, high-grade NHL and transplant
My husband, 49 years old, was dx with aggressive, high-grade stage 1 NHL last summer. He presented with pain in the left lower back and it became increasingly severe over a 3 week period. At first they thought muscle problem (we play a lot of tennis and had just returned from a vacation) then kidney stone, but a CT scan…
here we go again
Hi, I am new to this..I am a twenty year survivor with hodgekins disease, I had 21/2 years of treatment.My Dad was diagnosed with breast 3 years later. Jump to the present, He now has bone, liver, and lung, I have been watching him fight this battle for 2 years, needless to say it has made old issue of my own surface, fear…
24 years and surviving
I'm 24 years old and I was diagnosed with Hodgkins when I was 19years old. I survived my Grandad, Grandma and 2 close friends. My one friend and I were diagnosed around the same time. She had lung cancer, beat it and then a year later it came back and spread to her brain. Just as I was getting better she was facing being…
Bodies - a short film
I am writing and will soon be directing a short film entitled "Bodies" which is an adaptation from a short story published in The New Yorker Magazine (Sept. 30th issue). The main character is in the "wait and see" stage after 10 rounds of chemo for Stage III Hodgkin's lymphoma. I am writing for two reasons. First, I would…
Bodies - a short film
I am writing and will soon be directing a short film entitled "Bodies" which is an adaptation from a short story published in The New Yorker Magazine (Sept. 30th issue). The main character is in the "wait and see" stage after 10 rounds of chemo for Stage III Hodgkin's lymphoma. I am writing for two reasons. First, I would…
a play on words
My husband has been diagnoised with mantle cell lymphoma. He will be starting treatments soon and I need your help. I want to get him an I.D. bracelet made with one word or starting letters of a sentence, that when he looks at it, it will help him to remember to be strong and believe in god and himself. I can only have up…
information
My husband has NHL- Mantle cell, stage 4 and is recieving Hyper C-Vad wiht methotrexate and Ara-c every 2 weeks...anyone out there with same diagnosis. He may also have a bone marrow transplant. Chemo treatments have been getting progresively harder. Would love to talk to someone who has been through this. thanks

Lymphoma (Hodgkin and Non-Hodgkin)

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