-
Chadswick Bosman( Black Panther)
I was so sad to learn of Chadswick Bosman (Black Panther) passing of colon cancer at 43. He was such a strong man performinng many movies during treatment. Such a great loss. It also made me start to think again about getting a colonoscopy. I am 44 and wonder if its time to have one. I ask my Oncologist last year she didnt…
-
Checked ou of hospital
Hey everyone I have checked out of hospital. Operation went perfectly , zero complications and excellent margins. The pain isn't too bad. The catheter was definitely the worst bit, but even that wasn't that bad. Waiting on histopathology. Fingers crossed that its benign but I know that unlikely. Anyway its nice to be tumor…
-
Heading Home
Hey guys Just had my kidney drainage line pulled out (worse than the catheter coming out). If I remain stable then I am heading home tomorrow and will get my histopathology results on Wednesday. Thanks for all your support guys. It held me in times of great stress . I hope I can put this dark time behind and use this…
-
Surgery tomorrow morning
Hi all, I have robotic partial nephrectomy tomorrow morning at 930am. Feeling really nervous. Hoping desperately that the growth isn't bigger than it seems on CT and fearful of going under for surgery. Thanks for all your support and I will see you on the other side.
-
Now I am really confused
What a roller coaster ride im taking and I have yet to be treated. I believed I had stage 4 renal cell carcinoma and then it was stage 3. Now they dont know what kind of cancer i have as the biopsy came back inconclusive. They were putting me on Sutent and then they told me not to take it. They believe I may…
-
NED Thank God
Report came back IMPRESSION: Status post partial nephrectomy changes of the left kidney. No definite evidence of local residual/recurrent neoplasm. Thank God!
-
6 years NED today
Hi all, it's been a while Today is my sixth year cancer free anniversary, old buddies remember it was a huge 10 cm tumor. Six years past and here I am, NED, NED, NED STAY VIGILANT AND POSITIVE
-
How sweet the sound...
When they call and tell you NED! A year and change ago from my neph. And I had to move the scans to the right b/c of COVID. Today's a damned good day! To all of you new here, hang in there. Trust your docs and be hopeful even when the night's dark. This is a great community. NED! OH HELL YEAH!!!!
-
Robotic partial nephrectomy
Hi all Quick update - I am booked in for a robotic partial nephrectomy on Saturday week. Glad I got in quick. My surgeon is a rock star and made me feel really comfortable. Ive got great support from my family and i am really grateful that I found this forum. I guess im really worried that the tumour will be malignant and…
-
Can I beat this as I was downgraded to Stage 3
Ok you Salty Dogs in Kidney Cancer world...I got a little good news today. I had changed my Oncologist and met with him today. My tumor is 8CM by 5 CM in the right kidney and there is only cancer in the the surrounding lymphnodes. I start Sutent tomorrow and should have kidney removed in a few months as I am trying to get…
-
I am new here
Hello My name is Sean. After a CT scan for an unrelated issue they discovered a 1.7cm growth in my kidney, all other organs fine including lymph nodes and veins. Possible RCC or oncocytoma. Waiting to see a specialist. This has definitely been the toughest week of my life to date and I cannot help but think that I am in…
-
Genetic testing question
Hi everybody...I haven't been on in quite awhile and I'm sorry for that. I am doing ok. Still NED almost 4 years out. My younger sister was just scheduled for a partial nephrectomy. She is in shock and processing all of this. She has a tumor 2.8 cm and another subcentimeter one that will be removed by robotic surgery. She…
-
Complex Renal Cyst Help please.
Okay, so we found out I have Prostate Cancer .. that's on going, 2/b honest. But during this process, "suddenly" and MRI I am told I have: JULY 23, 2020 3. Several Complex Renal Cysts. Now as of April 19, 2020 I only had ( at that time ) 1 Simple Renal Cyst. No followup needed. So obviously something changed in just a a…
-
Here we go again...
So I can't postpone this anymore. I'm going in for the follow up CT on Friday. I had moved it as much as I could because of COVID. But I can't keep moving it anymore. It's time to get in the tube. Frankly, I'm more concerned about COVID than the CT and its results. Although I went to the facility and they appear to have…
-
Urinating blood clots when does this stop
I started urinating blood with clots a couple months before I was diagnosed with stage 4 RCC. It goes away after a few days and returns every 2 weeks or so or whenever I do something physical or lifting heavy objects. I believe this is caused by the tumor growing and needing space but thats just a guess. My question is…
-
3 years scaniety
It been a long time since I posted. I still read along. Glad to see so many are doing well, and sad about the losses. I just had my three year scans. Waiting on the results until tuesday is rough. Good karma and prayers are welcome. Does your doctor post the results on your online health chart before the apooitment or wait…
-
Cyst question
I had a 2.5cm tumor removed in 2017. also a 4mm simple cyst since the beginning of my journey. this year the images showed it to be 6mm And classified as stable. i asked my doctor and she said it's most likely the was the ct scans were cut. My question is, is it normal for a simple cyst to grow or should I be concerned?…
-
Starting my battle with Stage 4 RCC and need info please
My name is Tommy and I Have Stage 4 RCC that has spread to the lymphnodes. I am here to ask for advice on what meds should be prescribed as I am being treated by the VA and I am not too confident. Back in Jan. 2020 they noticed I had a 2cm mass/ cyst in my right kidney and they wanted to monitor it and check on it in 9…
-
Sharp Stabbing Pains 2.5 Weeks Post Partial Nephrectomy
Hello all, On 7/15, I had what would be considered a "heroic" partial nephrectomy (lapropscopic/roboic). They were able to save 65% of my kidney, but they basically has to slice off the entire 35% of my kidney (including the collecting system), to make sure they got the entire tumor. I had a lot bleeding during/after the…