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New to the board here on behalf of my father
I've been lurking and reviewing posts the last few days. I am here on behalf of my Dad and figured I'd make an introductory post. Dad had the flu in January and afterwards he had some rib pain. The NP he had been using as his defacto GP diagnosed him with broken ribs. Fast forward to March, he has his medicare physical and…
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so scared
At the age of 46, my husband was diagnosed with clear cell kidney cancer last March and had a partial in April. He suffered internal bleeding after the surgery and had to go through an angioembolization procedure to fix the blood vessels. His tumor was 3*4, in the center of the kidney with invasion to the surrounding fat…
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Canada day, July 4th, 16 years ago
One month before my neph. Time to relax on the Canadian side of Lake Huron. Why not take in a British Pub while your at it. That cart which brings you the offerings is a nice touch. The Kidney Pie was not. Its the little things you remember. icemantoo
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Open, Robotic, Cryo...oh my!
Hi I had posted back in February (can't find that post) when it was discovered incidentally that I have a 1.7cm RCC on the lower right lobe of my kidney. I went in becuase I'd been having intermittent severe right side stomach pain which they thought might be gall stones. No stones. I do have an umbilical hernia 7cm x 4cm…
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Thank you 'all
I hope all of you can appreciate the support you give me. Sorry I can't email everyone but the karma is so thick I remain in a very good place. It always comes down to counting blessings and not wasting opportunities. I hope I send that message loud and clear. No one can be prepared to face cancer without help. By…
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Bloating and gaining weight
I’m 8 months post op. after surgery I weighed about 157 I’m now at 165 pounds. I’ve been working out but still feel very bloated and like I have a full belly. Anyone else have any issues with this? Been trying to watch what I eat and become more active but still feel like Im 4 months pregnant
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A Farewell Tour - of sorts
Many of you may remember that the band The Who had a "Farewell Tour" in 1982. They had another one a few years later, and then later a "Final Farewell Tour." And they're still touring and playing today. With that in mind, I decided to do something while I'm still healthy enough to pull it off. I'm calling it my "First…
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Opdivo/Yervoy side effects
My dad had his first infusion of opdivo/yervoy 2 weeks ago. About five days after the infusion he began to get extremely fatigued and weak. Has anyone else experienced this with this drug combo? He didn’t have a whole lot of energy before the infusion but now his fatigue is to a whole new level.
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Inspiration
The latest post by Fox made me cry. This is increadably inspirational, something which will be burned into me forever. Its a celebration of human strength and love of life. It made me think of how I feel about life. I'm a very positive person despite health anxiety. But I still worry about totally insignificant things…
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Emotionally draining day at work.
A little back ground, I was diagnosed with RCC middle of May this year, had a partial lap nephrectomy April. I am an ER nurse. I went back to work 4 weeks ago and was put on light duty. Yesterday was my first day having my own patients again. My first patient came in shortly after 0700 and it was a cardiac arrest. A young…
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sensitive scar question
I had open total neph. on right kidney 3 weeks ago and the wound site is extremely sensitive, what can I do???? I can't were a shirt w/o covering wound with bandage, I've read tapping on it constantly helps some but is there anything else I can do. my scar is healing very well.
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MMJ
Since Fox brought it up, I've always wondered. Any supporters here? I used to not believe in it, for the moral reasons Fox mentions, but cancer changed me. Quick poll, who's down? I know I am.
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you cannot kill a Fox
I've been unable to post due to my health and computer issues. I will try again. Folks, I've been doing this 7 1/2 years. Stage 4. Life expectancy was June 2011. Long time ago. I've made a few mistakes but have played almost every hand close to perfect. I responded to drugs, radiation, surgical intervention, and I have an…
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Well its done
Well the third time was a charm. Procedure is finally done. Should have pathology back by end of week. I'm home but very very sore. Hope all is well with everyone! Cin
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NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot rule out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
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NED ?
Had my (almost) 1 year CT Chest, Abdomen and Pelvis. All clear! Until the end of the report which states an enlarged lymph node, cannot ruke out metastatic disease. Urologist says no worries it is less then 1 cm and “we don’t worry unless larger then 1 cm”. Report also states unchanged from previous CT. However on previous…
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Introduction and my kidney cancer story
In June of 2014, a year and a half after my first child was born, I went back to my obstetrician and asked when the troublesome uterin fibroid I had was ever going to go away as she said it would. Well, it wasn’t a fibroid, but a grapefruit sized tumor on my right kidney. A few weeks later my right kidney was removed at…
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RCC at 28 years
Hi everyone, My 28 year old wife has been diagnosed in December 2017 with a big kidney tumour (12cm/5inches). This happend after she experienced some pain on the right side of her abdomen (found out later it was gallblader issue), made an MRI and we were shocked about the presence of this tumour. She didn't experience any…
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possibility recurrence will happen
On my pathology report show the following: Clear Cell 4.6 cm tumor Stage 1 Grade 4 Clear margin Sarcomatoid present- No percentage giving Necrosis present What is the possibility of recurrence?
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Tell me something good.
It's no doubt that cancer is terrible and has effected us all. But, I have noticed that it has changed the way I see life and living. I now live with more urgency and abandon. We live 4 hours from the Smoky Mountains. We now take more trips as a family and see more and do more. I have probaby been to the mounatins 6 times…
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Stem Cell and other Nontraditional Options
My Husband is being treated at MD Anderson and it is the best (or one of the best) cancer treatment centers in our nation. Right now his tumors are stable and the onc calls that successful treatment. I feel like I trust MD Anderson. If there comes a time that they say "there is nothing more we can do for you" maybe then I…
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I'm new...2weeks post partial nephrectomy
Sooooo... This recovery is rough... Found out about my tumor in late April, they removed "the passenger" two weeks tomorrow. Pain comes and goes, I've tried off and on pain meds but as I've got 3&2 year old kids I'm a bit scared to mask the pain and over do it- can't turn off being a Mom and this is heartbreaking to not be…
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Wound leaking clear with blood
Should my husband's wound from nephrectomy be leaking bloody fluid? Not pure blood just clear fluid with blood in it? It has been a week and a half post surgery. Is not bad, just is.
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back after 3 months and have questions
Well , I'm back on here, after 3 months, to see if anyone can shed some light on what my wife might be in for. ANY informative feedback is greatly appreciated . The oncologists, after 2 different biopsies, determined she has stage 4 Papillary Renal Cell Carcinoma (nncRCC). She has a small tumor on one kidney. With no mets…
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2 years down
I had my 2 year scans this morning (well--I was diagnosed in July 2016, but this is close enough) and met with a doctor from the surgical team this afternoon--everything is clear. They have made the recommendation to move to annual scans and I agreed. I feel completely overwhelmed with joy and excitement about the NED, but…
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Guess what???
Yes, it's scan week! You guys know how much I love scanning. Fun fact, you really only hear from me every 6 months during scan week! Hate it. It's Friday, so you know I'm already stressing. Did bloodwork on Friday, videoed the whole thing and didn't flinch. Freaked the girl out. My scan is early like 9am and I've taken the…
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Newbie-Postop 6 days partial nephrectomy w/DaVinci Robotic System
Thanks to everyone who take their time to read and respond to posts here. I was diagnosed 6 weeks ago with RCC and the tumor located on uper pole right kidney was approx. 5.7 X 3.7. I was told they think they discovered it early because a year ago I had an MRI from a previous back surgery and there were just clear cysts…
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Observances, rash on legs and other symptoms pre diagnosis... hmmm.
My husband got a rash on his legs and went to doctor Nov 2015. Three months later they came back saying it was a fungal thing. He also had a big toenail with a long dark lines down it. After the kidney removal last week, the rash has completely gone away and the toenail dark lins have disappeared. I assume his kidney tumor…
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Got another NED today....
Thats 18 months now since my last lung surgery in Jan of 2017. Good luck to everyone.