-
Husband got staples out and kidney doctor started talking surgery for lymph nodes
I am so mad. Husband just got the staples out today after 8 days, and kidney doctor said he has two lymph glands in his lower spine area that are slightly enlarged and we should schedule surgery to remove them. He is still healing, this is crazy. The oncologist follow up is not for another 2.5 weeks and he said no more…
-
new here, need help
I just got my husbands US report.... RT kidney exophytic lesion with internal low level echoes extending from the midpole, 4.2 x 3.5 x 3.0 Lt kidney.... upper pole CYST 1.8 x 2.4 x 1.7 other.....oviod hypo echoic vascular lesion medial to the left kidney possibly an enlarged retroperitoneal lymph node we will be going for…
-
Renal cell carcinoma
I have RCC had a kidney removed in 2015 it came back in 2018 on my right lung now it’s stage 4 cancer just started immune therapy I hope this work. What is the life expectancy for this cancer
-
ASCO Highlights from the International Kidney Cancer Coalition (IKCC)
The American Society of Clinical Oncology (ASCO) Conference in Chicago June 1-5 2018 brought together oncology professionals, patient advocates, and organisations from around the world. For kidney cancer specifically, the conference included the presentation of results from one large blockbuster surgical trial, and several…
-
Fox
I apologize for not being active lately. This exhaustion is kicking my behind (but all is well). I read Fox's post and I just wanna say....I would love for you all to encourage him the best you can on here. No matter how terrible he has felt he has always been here for us. He has used wisdom and humor and is just amazing.…
-
Open Partial Nephrectomy
I’m scheduled for surgery on June 22nd. Now I’m getting a little nervous.
-
RCC Specialist in Atlanta
I have been recently diagnosed with Clear RCC, 11cm on left kidney and smaller Mets in two other spots. I received my diagnosis at N Ga Medical Center and am now considering a trip to MD Anderson for a second treatment opinion as recommended by my Urologist. My question is can anyone recommend an RCC specialist here in the…
-
Scan tomorrow
Arrived in Iowa last night - yearly visit to see family, retreat, jazz camp, and... preventive maintenance medical appointments. This year is a big one - tomorrow morning I have CT scan and meet with surgeoun for 2-year followup. Have been nervous about it for weeks. Oh, who am I kidding - months. It's comforting to know…
-
Immunotherapy Starts Tomorrow
Tomorrow I get my first infusion of Yervoy & Opdivo. I am excited to get started and of course nervous about how I will respond. I am ready to start fighting back against this nasty cancer. I can't wait for my immune system to kick in and start kicking some cancer **** . One day at a time and tomorrow is a BIG day.
-
Hounsfield Units and Disappearing Devils
After a recent US for an unrelated issue I was referred for a CT due to a complex cyst on the left kidney. I have received the report from the CT scan and I believe everything looks okay. The report indicates nothing at all about the left kidney (the cyst in question from the US) but advises that there is a small cyst (no…
-
Enlarged neck nodes
Have had enlarged lymph nodes on the left side of my neck for several weeks. Consistent dull ache at most times also a tight feeling that radiates from below my ear down to my collarbone. I’ve been waiting to see if the swelling would go down. It has not, ugh. Has anyone experienced something similar? Have reached out to…
-
Cancer is sneaky
Just thought I'd share some feedback from the tumor board reviewing my case. So I've got a met in my adrenal gland detected in latest PET/CT. When asked about potential symptoms, the answer was "none", a benign tumor, yes, but not cancer. What a insidious and sneaky disease!
-
60 Mg cabo is brutal and we are running out of options
Hi. I haven't been very active on here. I lurk from time to time. My husband was taking 40MG cabo. They determined it wasn't enough. 60MG is brutal on his health and well-being. He now rotates them 40mg one day 60 mg the next. He just took a week off both after a trip to the emergency room. We had scans recently and all…
-
Dromedary hump or kidney mass?
Hello, I'm Marcelo from Brazil. I did a Unenhanced CT a month ago and the results were: Kidneys of position, dimensions and parenchymal thickness within normality, identifying nodular image hypodense and heterogeneous in the anterior cortical of the middle / lower third of the left kidney, measuring 1.5 cm, indeterminate…
-
On Pazopanib for 5 years with Stage 4 Renal Cancer
Hi to you all I was wondering if there are other people using Pazopanib for a longer time, my kidney with tumour was removed April 2011 and I was diagnosed stage 4 in December 2012. My oncologist used to ask me for feedback on my side effects to compare with other people in the USA who had been using the drug about 9…
-
been taking a major hit
I may not be posting much. Hold the fort. Build the karma. FLY!
-
Crippling pain
Hi I was just wondering if anyone has crippling pain in side especially when u wake up. That' when it' the worst. I have a 1.1 mass on my right kidney. Not big at all but could that be causing my pain. I need answers that Drs cannot give me. And was wondering if anyone else as had pain like this.
-
Looks like mets for me
I found out today that my 9mm nodule on my lung has grown to 1.4cm in 1 month. We did extra scans to see if I could get in a drug trial. Not going to get in this drug trial, obviously. There are a few other tiny spots nearby in my lung. No other spots so far. Biopsy will be very soon and my Oncologist is researching drug…
-
surveillance protocol for stage 2, grade 3
Hello to all. I am wondering what the follow up protocol is for pT2aN0M0, grade 3, 10% necrosis 10% sarcomotoid. My surgical oncologist wants to do the usual CT’s once a year with bloodwork every 6 mo. While I’m happy not to have scans every 6 mo, I thought it was recommended for the first few years.
-
Hello NED!
6 month post op CT came back NED! Woo hoo! Having this parasite grow inside me has been an interesting experience. It has taught me that life is short, do what you love and follow your passion . I start school in the fall for an LPN program. Nursing is something I love but I was too scared to go back to school for. I just…
-
Scared and alone
Hi I'm knew to this forum. I' just looking for answers and a little relief. 2 weeks ago I found out that I have a mass on my right kidney. Sympoms I have are pain flank and weight oss which my Dr is not concerned about cause I'm overweight. And I am vomiting. Now this mass is not very big only 1.1 centimeter. But they…
-
Husband had surgery today 6-6-18
Radical nephrectomy with tumor on the kidney. Tumor was encapsulated and nothing found in general area. Surgery went well only 75 minutes. I finally got home after a long day at hospital. We got the big mother out, next step recovery, then start working on the mother's children on his ribs.
-
When a Double Ear Infection is actually a Good Thing
Before having cancer touch your life, little aches and pains go mostly unnoticed or can be put out of our minds with the help of a little ibuprofen. After having cancer touch your life, every feeling is a "What if" or "Maybe I should be worried". My husband started getting bumps up and down his neck a while ago. He had…
-
Pain Question
I am 7 months post nephrectomy. The past month or so I’ll have a pain On my left side where my only remaining kidney is. It comes and goes. It’s not double over pain or stop me in my tracks pain it but I notice it now because of what I’ve been through. If I’m doing something and not thinking about it I dont notice it. I…
-
Partial Nephrectomy
Hello all. I was just diagnosed with a 2.4cm mass on my left kidney a couple of weeks ago. I will be scheduled for surgery in a few weeks. I am 41 and this is my first surgery. Of course I'm nervous about the whole process and it's mostly about what happens after surgery. Is the pain level extremely bad after surgery and…
-
Just been diagnosed
Hi i was diagnosed just over a week ago with a 5cm on my left kidney. A ct scan confirmed it is cancer. Today I got a call from my cons to say he wants to do a biopsy and put a camera in to have a better look because he is not sure if it is in the tube or not. He mentioned that sometimes chemo is needed before surgery. I…
-
Three months post partial...
Hello friends. So, I had the partial nephrectomy Feb 26 and I was the one who may have overdid it on elliptical and swinging a golf club a few weeks after surgery. :( ( My lesion was cancerous but small, margins great, cancer free, etc. I guess my question to the wonderful people on this forum involves the soreness that…
-
Third times a charm???
Ok so we will be trying for a biopsy with CT GUIDED cyroablation again on the 25th of June. Hopefully we will accomplish our goal this time! Hope everyone is well!
-
Amy Jo
Hey guys sorry I have been quite it's been a tough month. Unfortunately radiation did not work on the Mets on my spine. So I was hospitalized with a compression fractue to my spine. I received an ablation and kyphoplasty and I'm up walking again although it's not like before I'm moving. I received my first treatment of…
-
First Post - Just had my nephrectomy and got pathology report
At the beginning of May I found out that I had a large mass in my left kidney I had a radical laproscopic nephrectomy last Wednesday. I got the the pathology report today and it turns out that it was ccRCC but stage 3 because the tumor had invaded the perirenal fat a little bit. We had been anticipating stage 2 based on…