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Kidney Cancer

Archives for April 2018

Hi.
Good morning guys, my name is Jay, I'm an ER nurse. I went for my annual physical March 7, found microscopic hematuria with no clear source. I had no symptoms whatsoever. I was sent for a ct scan to r/o kidney stone. Had it done March 10 and March 11 I was told that I have a 5.3 cm mass in my right kdiney. Needless to say,…
Prayers please ...... Amy_Jo
I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday…
Did I Cause This?
Hi all! Quick question... Almost 6 mths post radical and my creatinine keeps going up and my eGFR down. I have had 3 blood tests. Things were improving on the 2nd one, but now are worse as of yesterday. Here are the results: Dec 21 - Creatinine 130 gfr 45 Feb 15 - Creatinine 127 gfr 46 Apr 27 - Creatinine 139 gfr 41 Is it…
Back from Seattle
I met with an oncologist ...wasn't super impressed. She was informative but basically since I'm not at the point of needing systemic treatment she didn't really seem interested in my case. So my response to that was.. look I am at this referral because insurance requires it but should I need systemic treatment I will be…
Clear chest X-ray why am I in a funk
So, hope you all are doing ok. Dec had partial nephrectomy to remove clear cell carcinoma. stage 1. Easy back to life. I’ve been super busy. All of a sudden time for 1st chest X-ray and blood work. All is fine. I wasn’t worried really. I only had stage 1 after all. All of a sudden I’m in a funk. I mean fine I work I’m…
Any experience with Hyperbaric treatment?
It's being recommended for John as a accompanying treatment along with his Opdivo. It sounds like the jury is out whether it actually does any good or not, but we're more concerned about the side effect potential of the air pressure itself...ear drums, eye pressure, lung issues, etc. And with his weak trachea due to the…
26 years old facing nephrectomy
Hello, I am new to both major surgeries and blogs. On April 19 I was told I have a 3.7cm tumor on my right kidney. The initial urologist recommended a robotic partial nephrectomy. I am set for surgery on May 7. I went in for a second opinion as I am still in disbelief. The second urologist/oncologist stated the tumor has a…
Follow up
So my appt for my refferal to Seattle is tomorrow. I would be lying if I said I wasn't nervous. I will meet an Oncologist for the first time (up till now I have been seeing just a urologist) and I will consult with a new Urologist. My Urologist that performed my surgery and has been my DR so far on this journey has spoken…
5.8 centimeter mass
Hello: I've attemtped at posting this message more than a few times. Its very hard to belive that I am even needing this kind of support. Nevertheless I'm here so let me start at the beginning. Last year (February) we lived in San Deigo and my husband had complained about his stomach. He was a little constipated, gassy and…
6 weeks post-op
Well, it's been 6 weeks since the surgery, and I am feeling quite well, but... I have noticed that since the surgery I have been urinating a whole lot more than I did before. My urine is always fairly light colored, with minimal to no concentration. I seem to have a whole lot more edema in my legs than I did pre-op also. I…
Much ado about Pancreatic Lesions
About a month ago I posted a question about my CT scan that showed two small pancreatic lesions. I'm four years past my partial nephrectomy for a stage 1, 2 cm tumor, and have had relatively clean scans in the interim. Of course, my urologist was on Spring break vacation, so it took a few weeks to get in to see him. His…
Amy Jo
Amy Jo is not having a good time now we are praying for you and here whenever you need anything Please keep in contact so we can help Annie
Back to back surgeries
Hi Folks - I'm a 41 year old male, who recently found out that I have a leaky heart valve (mitral) and needed to undergo mitral valve repair to fix my severe regurgitation. The surgery for that is scheduled for next week (3rd May) and as part of the pre-op workup, a CT of the chest revealed the presence of a 4.8cm tumor on…
Probability of stage1 recurrence
Hello What are the stats of stage1 recurrence? Thanks Justin
If you would like to look at any results on various clinical trials, here's the link: https://www.cl
If you would like to look at any results on various clinical trials: Here's the link: https://www.clinicaltrials.gov/
almost 6 weeks Post surgery
I had my robotic partial Neph on 3-21 around 1pm. Got to a room around 8 that night. Stayed in the hospital until around 12 the next day and then they sent me home. I was pretty tender but able to move around fine. Had my follow up on April 10th, got the pathology that confirmed it was RCC but they got it all. I am back to…
Kidney cancer
Stage 4 Renal Cell Carcinoma
My husband is in stage 4 kidney cancer that has spread to his lungs and lymph nodes by his trachea. We have made the difficult desicion to stop treatment. We have been doing this for 4 years now and he is sick and tired of being sick and tired. He is only 47, and he wants to enjoy what time he has left feeling better. The…
There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
Almost three weeks since surgery
Had my surgery on April 3 and everything went well. My surgeon utilizeses the Da Vinci robot and it was quite intimidating being wheeled into the OR and seeing this massive machine in the corner...then it was sleepy time. I was originally supposed to have a partial nephrectomy, but because of the tumor size (larger than…
How to find me
So a couple of us thought it might be a good idea to get to know each other a little better outside of this forum so I thought I would let you all know that you can reach me here by sending me a private message or I am on Facebook as well under Cinammen Townsend Zeilstra. Hope you all are well! Cin
Renal Cystic Lesion
Hello all, I got an ultrasound about a week ago and while waiting for my doctor to call me, I went to get the report from the radiologist and this is what the report indicated: Large cystic structure, mid-left kidney, 7cm x 7cm x 6cm containing several internal septations and thickening of the wall. I am very worried,…
Seeking inexpensive partial nephrectomy
I am self pay, no insurance, so obviously I wish not to pay an exhorbinate sum for my operation. I have a 2 cm growth on my kidney. I am a 56 years old man in otherwise good health. I have been told I need a partial laprascopic nephrectomy. I have a couple appointments with local doctors scheduled, but I am thinking this…
When you have 20 minutes, watch this video! I felt optimistic after watching it and that is why I wa
When you have 20 minutes, watch this video (see below link)! The video might start off really slow and boring but then it picks up and you'll be interested. Give it a chance and watch the whole thing. I don't think you'll be disappointed. I felt optimistic after watching it and that is why I want to share with you. It…
THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME
THE 10 GREAT LIFE LESSONS CANCER HAS TAUGHT ME Go to this below link to read: https://www.linkedin.com/pulse/10-great-life-lessons-cancer-has-taught-me-liam-ryan ============================================================== Liam Ryan can be found on this Cancer Survivors Network site:…
How long has it been since your kidney surgery? What stage were you? Any recurrences of cancer?
April 18, 2018 Hi: 1. How long has it been since your kidney surgery? My husband's kidney removal was on Feb. 14, 2018. So, around 2 months! 2. What was your staging? His was/is PT3. (I never know if I say 'was' or 'is' when it comes to the staging) Tumor size: 5 cm. 3. After you had your kidney removal surgery, did you go…
Is there a kidney "cancer survivors network" facebook group?
Are any of you in a kidney "cancer survivors network" facebook group? I don't know of any groups. If so, please share the group name or link so that I (and others) could find it and join. Thank you.
cyberknife
So, I have stage 4 RCC that has moved into my spine. I have a tumor at my L3/L4 spine that is crushing the nerves in that area. One of the issues that causes is that I can't lay down flat for any length of time without immense, intractable pain in that area. Well, I need to lay on my back in order to do the CT Sim…
2nd Visit to Oncologist today - Scan results
I'm a little nervous, not too bad. This is my first scan post-op and I can't wait to see what they've found. Or not found! I had quite an extensive, 10 hour surgery and I have 16 1/2" of cuts. An upside down "Y" it is. Quite the battle scar. Surgery was Mar. 8th and doing good from that. At age 63 it was not a picnic in…
Blood in urine
I am trying not to worry but my husband became really ill about 2 weeks ago. We thought it was the flu- fever, cold, enlarged lymph nodes and at the same time had quite a bit of blood in his urine. (may have nothing to do with each other but happened at the same time) He does not have a UTI, blood work all looks good but…

Kidney Cancer

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