-
TUMOR
Hi All, Last Thursday my mother got some bad news that she has a tumor that is rapid growing tumor located on her kidney (it has grown 1cm between scans within a 4 week peroid). Mum has been told that she will need to wait until the 26.04.2018 for the next board meeting so they can discuss where to go from here. They did…
-
Thank you!!
Thank you ! Thank you! You people are amazing. Your experience and knowledge is pricelss. There is a certain comfort in reading all your posts and the caring and hand holding is the BEST!!!! Continue doing what you do-I'm learning from a great group of people and hope I can help as well.
-
Tumor invades into renal parenchyma, focally. What does this mean?
Tumor invades into renal parenchyma. What does this mean? Also, what do they mean by focally? I think my husband's staging would have been a 1 or 2 if that wasn't present. So, his stage is PT3. Maybe I'm basically asking "how bad is this" or "how worried should I be"?
-
Woo hoo
So I finally heard back from my surgeon and praise the Lord...there is no second Tumor! My scans were reviewed by 3 urologist and 3 radiologist and it was a mistake by the original radiologist. So I still have the original "spot" 1.5 cm that hasn't moved or grown at all and the plan is still in place to burn that sucker…
-
PT3, NX Pathology Report - anyone else out there with PT3 - how are you doing?
Hi everyone: I have been reading over the message boards for quite some time now but have never participated. I find everyone's comments to be very helpful. Sometimes I leave the messages boards (or the entire Internet) feeling a little optimistic and then other times (most times) I have to close the lap top lid and walk…
-
Second opinions?
So, I had my 2 week post-op today. I wasn't really impressed with the Urologist. (The same one who downplayed the mass last summer and said it was probably just benign). I got my pathology report from him today and I could tell he was a little annoyed with my questions. It's a Type 2 Papillary RCC 4.5cm x 3.2 cm T1b NX The…
-
Cystoscopy and urethral dilation
Anyone have to do this before? Since my partial last september, I keep getting UTI's and have to keep taking antibiotics. Its a never ending cycle and the infections are hard on me. They make me tired and nauseated and my left kidney area hurts. My urology doctor wants to do a cystoscopy and urethral dilation so I was…
-
And round 2
Dr just called I go in today at 4 for a follow up CT. What are the chances of it being a mistake? I've been up all night. I haven't cried this much since this all began. I'm sad, scared and just plain pissed off! I feel so defeated. I feel like a Teflon pan that has none of the non sticky stuff left.
-
What in the HELL!!!
No procedure today they found another tumor. Waiting to hear from surgeon. Sounds like I will be headed down to Seattle soon for a major procedure. How in the hell can something grow that fast. I can't even breathe right now. The hits keep coming... Cin
-
NED
Had my scans and blood work last week. Talked to the oncologist yesterday. No changes. That's good news. I was a little more anxious this time just because I've been sick alot (flu, shingles, two colds in succession) and just tired all the time. Just a bit worried thinking my immune system is down and wondering what that's…
-
Best scan news in almost a year!
Saw the doc today to follow up last week's scans. Tumors are either showing no progression, or they're shrinking. Some of the smaller, newer ones weren't visible at all. The Votrient appears to be off to a great start! Thank you, everyone, for the support and feedback along the way. This is a fantastic group of people, and…
-
Fatigue after surgery. How long does it last?
I had an open partial last september. I thought 7 months was plenty of time to heal, but the fatigue has not gone away. Some days are worse than others, but I literally feel like my body is just so tired sometimes. I get plenty of sleep, had a comfortable bed...etc.. My rcc was stage 1 so I didn't figure I would have many…
-
Tomorrow is the Day!
So tomorrow is the day for my Ablation. I have to be at the hospital at 6:30 am for an 8 am procedure. I am just praying this works. So everyone please start sending good vibes, positive energy, prayers or whatever you believe on my way. I hope you all are well and happy. Anyone else that have had this done please feel…
-
Brand new to group - today's diagnosis
Hey everyone - a little life curveball thrown my way today with the (official) diagnosis - although I've known in my mind for a little while now. Still strange to get the official word. I became super sick last June following a business trip to Mexico and ended up going into completely-unrelated kidney failure. During that…
-
Husband diagnosed with 6 cm kidney cancer
I'm still kinda shaken. Husband was diagnosed tonight with a 6cm solid mass kidney cancer by our family doctor. He is sending him to a specialist to have his kidney removed.the test showed everything was clean around it and it is still in kidney.my question is is this very far advanced and does this sound promising ? Thank…
-
Stupid question?
What is the consensus on drinking coconut water? I love it but have steered clear of it because of the amount of potassium. To be honest I have not been put on any restrictions as far as diet except the usual watch your sodium and protein intake. My blood work is all normal. I do not drink anything (literally) except water…
-
Chromophobe.
My son just had his 6th year scans for renal cell chromophobe T1a. All has been well. His urologist told him he was done with yearly scans and tests. Have most you you with a stage 1 been followed longer?
-
Supplements
I am currently not taking any supplement except I do take tumeric I am considering adding bosmeric and maybe vitamin D. My Dr hasn't said one way or another that I should or should not take anything except to avoid multi vitamins. Any thoughts??? Cin
-
Post Op Kidney Function Percentages
How long after surgery has it taken for your kidney function to regulate? I'm almost seven weeks out now - right after surgery I was at 37% (a radical neph on my left kidney). Both myuruologist and nephrologist agreed that my number was low because of trauma I had during surgery complications and that it would rise. The…
-
Taking Cabometyx 60 mg day
EDITED: To remove post. I guess it was just a stupid question. Sorry.
-
Just random thoughts
So my ablation is scheduled for a week from today and I can't help but feel my anxiety growing. I am not fearful however I am nervous. Of course I have asked all the questions and weighed all the odds but yet the feelings still arise. During the last month I have had my first set of post op scans, a mammogram, my annual…
-
AnnissaP?, Jan4you?
Where are they? They both disappeared from here a couple weeks ago. Especially after Anissa proudly posted her videos. She was here every day. Jan never missed the chance to share someones stress. It doesn't feel right.
-
First scan out of the way...NED
I haven't posted for awhile...life kept punching me so I went into the fetal position for a month or so. I was diagnosed in August, had surgery in October, got the path report in November (T3A). As I was digesting all of that my Mom passed away unexpectedly in December, I came down witb pneumonia in January, then a friend…
-
Well Shoot
While I am virtually cetain this is not the result of my chromophobe RCC and resultant surgery, I figured I'd post it to just because it's another of life's frustrating moments. When I went to bed last night, little did I know I would wake up in the morning with a very plugged up ear and severe hearing loss. A similar…
-
Update on my son-in-law, John
As some of the longer-term members on this forum may know, my SIL was diagnosed with Stage IV, grade 4, 60% sarcomatoid RCC just about two years ago. He had a total left nephrectomy for a 13 cm tumor. After a nasty stint on Votrient he moved on to Opdivo which appeared to be keeping the beast away. His last three scans…
-
Accidental discovery of 6cm tumor
Dear All, First of all , Please excuse my English. My 34 years old husband has been disgnosed with 6cm tumor in his left kidney, the doctor proposed 2 options : * Surgery by Robot : Waiting list for 2 Months * Normal Surgery which can be done next week. The doctor prefers the robot procedure, but 2 months looks very far…
-
Cabo and bone Pain, anyone?
Hi all, my moms on her third week of Cabo 60mg. And she seems to be having increased pain . I know joint pain is a SE, but her pain seems to be in the areas of where she’s has or had metastasis . Does it mean the drug is attacking it? Or is it progression ??The pain is pretty bad to the point she’s having trouble walking (…
-
Diet and nutrition...
Hello all. I know many of you have sought out nutritionists in your post op kidney cancer lifestyles. I have also started researching things myself. Other than the obvious of leafy greens, lower sodium foods, etc., does anyone have any advice for some basic foods/dietary advice that are good for people who are in our…
-
Can't stand the waiting!
I had ultra sound because of blood in urine, I have a 8cm solid renal mass on left kindey and 3 small csyt on right Kidney. had MRI yesterday 3/31/2018. I have been having pain for 3-4 months and under left breast and middle of breast lower. Doctor said it was gerd and have been taking medicine for that for years. Im…