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What questions should I ask / what do I need to know?
Hi! I’m new here. Im 29 years old and went to the ER with extreme abdominal pain which ended up being diverticulitis but a lesion was found on my right kidney during a CT scan. Anyways, I was referred to a urologist who got me in immediately and ordered another CT scan with and without contrast. He gave me his cell phone…
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New'ish Member
Hi all, I'm a new'ish member to this board. I have updated my profile for those who may be interested in my story. The quick summary is I was diagnosed a little more than a year ago, had a radical nephrectomy, gone through a couple rounds of scans and am very thankful to be doing well. I will try to stay up-to-date on the…
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Changes in your routine/nutrition
I'm just curious how you changed your routines and nutrition after surgery. I've always been very healthy and for the past year have been into juicing and eating much healthier. I've read many different things about eating cancer fighting foods and juices as the best way to minimize reoccurance of cancer. But for every…
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Needing Support
In March I had a partial nephrectomy. My 3 month scan showed that it was possible that RCC came back. My 6th month scan showed that it had probably matastasized to my liver. Today I got the results back that it had mets there. I'm just wanting to know how people who have been in my shoes and taking the medication have…
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My annual check up
Hi everyone I had my 3 1/4 year check up yesterday and got the report today. Thanks heaven All is fine. I had a 10 cm grade two stage two tumor removed in August 2014. Sending you all positive thoughts and prayers for your coming surgeries, next check ups and treatments especially to you Apny.
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Tomorrow is the day
So I am due for surgery tommorrow. I was hoping to get my procedure done at the Cleveland Clinic since it is the best facility near me. But I was not able to get it to work out its 3 1/2 hours away and had some travel issues and insurance blips. I am pretty confident the local urologist, the first doctor seen will do well,…
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Recent diagnosis
Hi recently diagnosed RCC with surgery pls g-d on 11/27. Dr put my mind at ease after appt. Spend too much time on google not understabding what i was reading but panicing and thinking the worst all the same. 3.8 size mass on left kidney extension into renal sinus. Dr. Says they treat this the same ad T1-I hope so. Anyone…
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Bump in the Road with Votrient
I know there are a lot of threads on Votrient and have tried looking through a lot of them. Many are several years old. After a right kidney nephrectomy, spinal tumor ablation and various other treatments, I was put on Votrient in May. The first scan showed a reduction in all lesions, including the three in my lungs. One…
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Opinions on laproscopic or partial
Hello, i was recently diagnosed with a 5cm renal mass located centrally in my right kidney.The urologist wants to order an mri to determine if its malignant. My question to you all, are their any surgeons who would try a partial given the location of the mass?
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Just saying hi
Fall is the absolute busiest semester of the year for me so I haven't been able to spend much time here. So, I wanted to say hi to all the new members! I hope you are all navigating this journey with as much ease as possible. Also, a big hi and lots of love to all of the usual crew that I've come to care for, I hope you…
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Need a Little Help
Well, I was really trying to put on my big girl pants this time but I am such a worrier. My husband had his second set of scans after his surgery on Monday. His first scans in July were clear and also done on a Monday. The results were available on Wednesday evening through the patient portal for those. Does that mean they…
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Well...not out of the woods yet I think
My surgeon called today to talk about the results of my tumor. Here is the path: T3a NO M0...The tumor was 2.7cm and had broken containment of the kidney and into the renal vein. My margins are negative... He was very positive saying even though it's graded as a T3a, he doesn't think I'm going to have much chance of…
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Perhaps I spoke too soon...?
As I had posted earlier, I had a PET scan for my lung nodules; scan didn't show any uptake, which we were very happy to hear. While I knew there was a chance that the lung nodules might be too small for the PET to pick anything up, I remained optimistic - and am still working on keeping that attitude. However, I met with…
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Surgery Scheduled
We met with the MD Anderson team yesterday and have been scheduled for surgery next Wednesday (11/1/17). The plan is to have a partial nephrectomy but I have also consented for a radical if it is determined to be the best route once he is in there. The wording 'inseparable from diaphragm' that had us so worried didn't seem…
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Finally surgery date
Here we go...11/14/17. I will be having an open partial Neph. MY mass is small but in a tough location in the middle of my kidney and they cannot get to it with laprosocip so the surgeon will have to use his hands..I guess i will lose a rib as well so I have been told..I'm anxious about the surgery and recovery of the open…
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Recommendations
All, My birthday is coming up in November... I am thinking of doing a fund raiser on FB with proceeeds going to Kidney cancer in lieu of gifts. Any recommendations on what organization to list as the benefactor of these funds? Thank you, Angie
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I made it thru...now on to healing
Well, it's over and now I'm on to recovery....I'm not gong to lie, it was tougher than I expected, but not what you think. I went into surgery last Thursday morning, they had me prepped and under anesthesia. My heart then started doing weird rhythms so they stopped, pulled me out of surgery and called in a cariologist.…
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Any others with Unclassified Renal Cell Carcinoma?
I am trying to find others with this rare and aggressive RCC that I have been diagnosed with. There is not much information at there due to it's rarity. -Theresa
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RCC Research Study with Memorial Sloan Kettering Cancer Center
I found out about a study that is taking place for RCC and genetics at Memorial Sloan Kettering Cancer Center. They just have you fill out some questionnaires on your health and family history and collect a saliva sample that you can do at home and mail it in. They are trying to get 750 participants and your immediate…
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Bilateral RCC...updates - first surgery complete
Had been having abdominal pain for some time. PCP sent me for an abdominal ultrasound. Nothing of concern discovered in abdomen but a lesion on each kidney was incidentally discovered. PCP sent me to urologist who sent me for a CT scan and chest x-ray. I learned yesterday that the CT scans confirmed a “solid mass arising…
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Checking in
it has been a while but feeling good tonight after stress of scanxiety; my husband had MRI of his spine as well as CT scans and today we met with the radiation oncologist. He is stage 4 and other than a small spot on the adrenal gland, his sporadic mets have been to the spine and SBRT has been successful so that we have…
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Organisation Pre and Post Operation Partial Nephrectomy
Hi, firstly thank you to all the people old and new who post on the board. I hope to be a contributing and useful member. I am schedueld for a partial nephrectomy laproscopically on 9th November in Auckland, New Zealand. I am 50, female, good health and weight, husband, 3 teen kids and a dog. Is an incidentally found…
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28 yrs old possible Kidney Tumor
Hello Everyone: I am new here so I hope i get some replies back. I was diagnosed with Polycystic Kidney disease when I was 13 yrs old. Ever since than I've always had kidney infections and Kidney stones. However, this year has a been a tough year on my poor kidneys specially my left kidney. About a month ago I starting…
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Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases
Not sure if anyone have heard of this vaccine before, but the phase I/II result seems relatively good. Results of a Phase 1/2 Study in Metastatic Renal Cell Carcinoma Patients Treated with a Patient-specific Adjuvant Multi-peptide Vaccine after Resection of Metastases. https://www.ncbi.nlm.nih.gov/pubmed/28988765
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help on my results please? does anything stand out to you?
hello, i have a cyst in both my liver and kidney. the doctor has been keeping an eye on my kidney cysts since 2015. this year it grew .2 cm so now it's 2 cm in size. they were a little worried that it looked slightly complexed. i don't have any symptoms to worry about. but i'm just worried about what they said and how…
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Hospital Comfort
Hello everyone, I was happy to find this forum today. My 38 year old husband was diagnosed with Stage 1 RCC a week ago today. He went in for a routine scan of his kidney arteries, doctor was checking for blockages in his renal arteries because he has high blood pressure and that is how the mass was detected,…
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Tomorrow is the day...
Well, tomorrow I undergo a partial-neph to get this demon cut out of me. I've been waiting since July because I wanted a specific surgeon at Vanderbilt. It's been a little stressful and now that it's here I'm rather anxious. I've never had any symptoms, and my cancer was found by accident and luck, but these past couple of…
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Going to meet surgeon this morning
Headed to talk to my surgeon this morning feeling a little anxious and touch of relief. .Ready to get this 2.2 cm mass out of my body. I have been working through this since the end of august. NEED prayers hopefully we can get a partial Neph scheduled soon and move on with life!!! Thanks everyone on this site you have been…
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Complication
Just a random question (something I was wondering about). Did anyone have a laparascopic partial nephrectomy scheduled, but due to complications, etc. end up having a radical or open surgery? Just curious. I also wonder if anyone's tumor grew between finding out and surgery time. Thanks!!!
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Nervous Newbie
I am still waiting on my results from yesterday's bone scan and chest xray... But I have an appointment next week at MD Anderson and need to take all imaging and reports with me. While gathering the reports I was able to see the findings of my CT Scan from 9/29/17: There is a heterogeneous primarily solid enhancing mass…