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Concerned about lesion in remaining kidney
Since my CT scan last week, I am concerned about the diagnosis of my remaining kidney having a low density round mass of 6mm, preferably cyst. This was on my original CT scan 6 months ago showing it was unremarkable. Since I was diagnosed at Stage 1 grade 2, is it a high possibility this is another cancer? I did have a Pet…
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My Journey
I will never forget March 13, 2017 at 3:00 p.m. That's the exact time I received the call from my PCP telling me that they had found RCC on a routine CT scan. When I heard the PCP's voice on the other end of the phone I knew something serious was up. My PCP had never called me in all the years I have been seeing him. I…
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Cystoscopy Question
Hello.....my husband is scheduled to have cystoscopy next week with his urologic oncologist. At that time, we will also discuss how to proceed with the 2 cm kidney tumor that was an incidental finding. Since this was discovered around two weeks ago, he noticed a small amount of blood in his urine (only once). Is this test…
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Lymph node ??
Hi all! I am 7 months post op from a right partial nephrectomy. Had a CT done due to flank pain and a cyst was discovered on my left kidney Dr stated it was benign but there was a 6.6mm node found near the main vein in my right kidney. My PCP wanted to do a repeat CT scan in 8 weeks but my urologist opted for a Petscan.…
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6 weeks post op
Saw my Surgeon today for a 6 week follow up today. We went over my treatment that follows the National Comprehensive Cancer Network for Stage 2 RCC. Blood work today for Kidney function, 6 month appointment for MRI. No restrictions for gym or normal daily activities. He gave some literature for diet and nutrition. I feel…
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Here we go again
Recently there has been a lot of conversation around scans. My second set is tomorrow with my first appointment at 6:40 am. I meet with one of the PA's on my doctor's staff at 11:00 am. Hoping Uncle NED visits! Stub
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Rt. Flank bulge / Hernia (?) following robotic nephrectomy
My surgeon seemed surprised that I had the 15cm by 6 cm rt. flank bulge AFTER SURGERY. They opened me up for removal after not being able to get it out through laproscope. He originally said "the swelling would go down"... It hasn't and the hernia specialist said the muscle nerves have been cut... and a screen wouldn't…
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What a kick in the ****!!
I've waited all this time only to find out MRI doesn't she defentive c characteristic of a cyst or cyst area tried of being in pain & not knowing what's going on
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Repost about thinking about cancer
With many new people here, I thought this repost might make sense. (from a couple years back) Did you ever get a song in your head and you can't get it out? This weekend I had another experience that we have all had. Some good intentioned person was asking me how I'm doing. During our conversation they uttered that…
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Bumpy ride 2 weeks post Radical Nephrectomy
Hello all...well just when I thought I was feeling better and more energetic 10 days post surgery my energy level plummeted and the day that I went for my 2 week follow-up, reported having a weird deep pain at my right side. I can describe the pain as trapped air...everytime I breathed i would feel the stab of pain. My…
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Renal cell carcinoma treatment options (current and future practise)
Read a new article about treatment of RCC and believe it can help some new members to understand the process and treatment options. Carmen ----------------------------------------------------------------------------------------------------- Given the increasing understanding of tumour biology and the increasing number of…
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Something weighing on me
This post has been brewing in my head for the last couple of days and I finally decided I wanted to post it. We all need to maintain a lighthearted mentality in the face of cancer. A good attitude and positive mindset go a long way. However, as someone that has spent my career in and as a professor of medical imaging, the…
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Got to fight
So I've been on here for close to three months and I have had lots of ups and downs. Today I saw a childhood friend in the food store and I filled him in on all that I've been dealing with. Now I've literally known him since kindergarten. What he said to me really hit me hard. He said that I am a fighter . Not to let this…
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Passed Out and Now Have Abdominal Pain After Robotic Partial Nephrectomy
I am a fit 56 year old male and on May 16, 2017 I underwent a robotic partial nephrectomy to remove a 4 cm renal cell carcinoma from the upper pole of the left kidney. Recovery up until post-op day 9 on May 25th was going very well and was walking several miles per day....feeling pretty good. On post-op day 9 I was sitting…
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Best therapy options for mets?
My step-father was diagnosed with renal cancer with mets to the bone, lungs, and regional lymph nodes a week ago. He had a radical nephrectomy three days ago to remove a 7cm tumor along with his entire right kidney. We do not have the pathology report back yet (we expect it hopefully by next Tuesday) because we are in…
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Help me understand biopsy report and what should I do next?
Hi Friends- I am a 26 yrs old female. I had a gross hematuria (sometimes blood clots) 1 month ago. I ultrasound and subsequent ct scan I was diognised with possible renal carcinoma. Had a radical left nephrectomy 10 days ago. My biopsy reports details below: Gross description: Kidney with perinephric fat – 14X9X6 cm ;…
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Worries about health 6 months after surgery
Hello everyone! I have learned a lot from reading your posts since my own experiences with kidney cancer began and finally found the courage to join you all a few days ago. My own kidney cancer journey began several months ago when an ultrasound revealed a small mass on my kidney. The mass turned out to be a 1.2cm clear…
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Bad news on CT scan (good update)
Since I got the report from Hospital Patient Portal on my phone this morning showing that I had bone cancer...I got ahold of the nurse who had called me the day before telling me I was free of disease on scan. I told her what had come across in my portal and she said that she was looking at my scan results showing no…
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Bad news on CT scan
Yesterday the nurse called and gave me a report that everything was clear on the scan results but the doctor wanted to see me in 3 months and to have another CT scan because of a small spot that was probably a cyst. I got my report this morning...shows I have another mass in my remaining kidney plus a malignant neoplasm in…
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Scanning.
after my next scan, I'm thinking about not scanning anymore. It's been over a year, I'll have 3 good scans behind me. It just seems like an unnecessary money drain. What's your opinion?
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Everything tastes like nothing
Been on Cabo for like 3 weeks and my taste buds are non existent! I'm very nauseous, going to get something for that in a couple of days. Ive lost 10 lbs probably because I rarely have an appetite. I even have been buying my favorite foods and still the are tasteless. This is absolutely horrible, I eat just because my…
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New to the Forum
Hello everybody! Papillary RCC is what I have. Right kidney was roboticly removed in January 2016. CT Scan followup 6 months later showed mysterious nodules in lungs began growing. Uh oh! Biopsy of two in right lung resulted one benign, one malignant. Got into a clinical trial at MSK end of 2016. February CT Scan showed…
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Hole In My Soul
Hello everyone! Let me introduce myself. My name is Debbie and I have joined this network because my husband, Mike, was just told that he most likely has renal cell carcinoma. I have never been so terrified in my life! Our whole world was just turned upside down. Twelve days ago, my husband went to the ER for something…
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Results
So while the MRI radiologist thinks my 2.9 cm mass is a large cyst in my left kidney, my doctor wants me to have several doctors confirming this, which is why I like my doctor. I got the MRI film after the procedure and sent it to my mom's oncologist, a top kidney oncologist. There are cystic renal cell carcinomas too. I…
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Delayed Response?
My husband had his left kidney removed along with a 13cm tumor and 27 cancerous lymph nodes in November 2016. He has remaining mets in some neck lymph nodes and chest area lymph nodes, he is Stage 4 (5% sarcomotoid). He started a trial at UT Southwestern that incorporated 5 doses of SBRT on one lymph node and four doses of…
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Recent scan results
Update on my son-in-law John (stage IV, grade 4, 60% sarcomatoid features, dx last summer). After a week of SBRT last month on the tracheal/aorta tumor and probably six months so far on Opdivo he had another set of scans last week and met with the Onc on Friday. We're happy to report that the chest tumor has shrunk by half…
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RCC stage 4. Tumor in last remaining kidney
Hi all. I posted here maybe five months ago when I was just in the process of gathering information about a recurrence of RCC, after 4 years of clear scans on follow up. This is an update. As a recap, a pulmonary node and lymph node showed up in my lungs via a CT scan for my heart in December, flagged as RCC. I was…
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pancreatitis after surgery ?
I had surgery about 2 weeks ago to remove my spleen / left kidney / 4 lyph nodes and gland. Last thursday i was in a lot of pain so i went to the ER which at that time they did a CT of my chest and abodem. They found that my pancreatitis was inflammed and that my white cell count was extermly high. The surgian removed 4…
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One Year
Saturday was one year since I lost my kidney, since cancer entered my life. It's been a heck of a year. I've learned alot, about life, about myself, about others. Cried alot, laughed alot. Lost friends, gained friends. It's weird that someone will quit being your friend, because you have cancer. As far as I know, I'm NED,…
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Chromophobe RCC - my experience
It has been nearly half a year since my right kidney was removed, and as my first follow-up scan approaches next month I thought I would share my experience. I live in the Atlanta area and am male, age 42 (was 41 at the time of my procedure), about 6'1"/145 lbs and a lifelong non-smoker and non-drinker in pretty good shape…