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Friendly Reminder
I want to take this opportunity to welcome all the new members that have joined us the past couple months. In order for members to give advice it helps having a good understanding of your journey. At the top of the page you will see.... "Click here" to create or update your member "About Me" page. Follow those instructions…
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sick with worry
I'm 38 yrs old and went to the doctor for lower back pain and intermittent pain in the pelvic area. The doctor ordered a pelvic and abdominal ultrasound. All symptoms pointed to the ovaries. Well, pelvic came back normal but showed an isoechoic lesion in the mid left kidney measuring 3cm and an isoechoic lesion in the left…
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Pre-Surgery (Nephrectomy) recommendations
I'm 10 days post right kidney removal. I can not believe how well I feel today compared to a week ago. My surgery was supposed to last 2-3 hours and it turned out to be a little gnarly. My right kidney with a 10cm mass had developed its own vascular system. It was tangled in a web of veins and arteries which turned out to…
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Cabo week two
Well week two is complete, and I have decided this is no fun!!! I've been nauseous, constipated, feel like I got ran over by a truck and my taste buds are shot. Not to mention I really have no appetite. Thankfully my side effects just really started this week and I was able to go to my daughters college graduation. That…
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Relay for Life Soon + A Walker = Happy
Relay is coming up soon. My boyfriend purchased a walker with wheels and a seat for me. I will make a ton of laps! Well, I'll make at least two laps. Any more Relay people? Kidney_Cancer_Kid
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Question about NED...
I had kidney cancer last summer and caught it early. I had to have an MRI on back today because it's hurting really Bad. I think it's from lifting kids at work. The top of my report says IMPRESSION: 1. No definite evidence of metastatic disease. mine never spread and I'm confused why it didn't just say no evidence of…
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Sensible fingers
Hi all, I've started the combination of Pembrolizumab + Axitinib recently (my first treatment, via clinical trial KEYNOTE 426, 4th cycle started on monday), and managed side-effects well so far. Recenlty though, the top of my fingers (near the nails) became really sensible - that's painful when I do buttons or manipulate…
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Am I Jumping the Gun?
A few days ago I had an MRI ordered by my pain management doc. I have experienced severe lower back pain for a number of years due to a combat injury (IED) and have gone through numerous Prolotherapy, RFA and Epidural injection treatments. The pain has not diminished. So, the doc ordered an MRI to determine his next…
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Beemurguia?
Just wondering if anyone has heard how she is doing.
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Abunai update
I should have thought of having just one thread for myself to keep updated as my journey progressed, but I must have had other things on my mind when I first joined this forum. After being dxed in Sept. of 2016, I had a radical nephrectomy to remove an 11.5 cm tumor on my left kidney. Several other mets were missed and/or…
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Clear cell RCC 1.2 cm
Hello, Just looking for some clarification. My initial MRI reports showed that I had a Bosniak 2f cyst that was 1.2 cm. Really none of the urologist were in a hurry to take it out, they wanted to watch it. We watched it for almost 2 years until I finally told them to remove it. The pathology did not say anything about a…
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Happy Mothers Day to all!!
I am wishing a Happy Mother's Day to all early. If you are a Survivor or Caregiver know that we love you, even if we don't say it enough. Enjoy the Day.
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Foxhd
just wanted to say, that's an awesome jacket.
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NED but !
I had the report of my CT scan today and every things normal only in the report I found this... if any one have any idea or had the same please explain It says: mildly enlarged spleen ! Other than that every thing perfect
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Things have taken a turn for the worse.
In March 2014 I met with Doctor Hans Hammers at John Hopkins University Hospital to discuss treatment options. Doctor Hammers said something to me that I have never forgotten - “That once I stopped treatment, I would be taking the brakes off your cancer”. My March 15th scans revealed a liver lesion in the right posterior…
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Stereotactic radiation highly effective for kidney cancer
Read this a few days ago and it seems pretty good for advanced patients. Especially when I read this https://www.sciencedaily.com/releases/2017/05/170502113808.htm "... According to Dr. Hannan, the new study shows that patients with metastatic kidney cancer can be treated with stereotactic radiation therapy with the goal…
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New here! Looking for some clarity.
I am a 38 yo female. I have always had bladder and kidney problems from a young age. Had kidney stones a time or two and way to many to count uti infections. last fall I had 6 uti infections in 4 months or possibly just one that never went away. My primary dr sent me to a urologist to make sure there wasn't something going…
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Thoughts
Hi, i am a new silent member of this group. My husband ,37 yr old ,got diagnosed with RCC just a day after we got to know that we r expecting our third baby. Fast forward he has his open radical nephrectomy on 11th of April and they removed his left kidney . We received his pathology report which says clear cell carcinoma…
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A Dinner with my favorite Uncle, Uncle Ned (sorry Uncle Jimmy and Marc)
Five years from diagnosis, the nerves between the CT scan and the results continue. I hate that. But, then, I get a visit from my Uncle, NED. We go out to dinner with my family, but I pick up the check. NED has been here for 4 years; Hopefully, he comes again in November. Then, I will only see hime once a year. How did I…
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Afinitor and Lenvema
I am a chromophobe who has been on the combination of Afinitor and Lenvema since August - so far pretty positive results with few to no side effects. Anyone else on this treatment??? Just curious...
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1.2 cm Renal Cell Carcinoma(low grade and dormant)
About a week ago, I had surgery to remove a 1.2 cm cyst that turned out to be a small cancer. The doctors had been watching it for almost 2 years, and it had done nothing. With all the anxiety and stress, I just wanted it removed. I am glad I did. The surgeon told me it was remove, and told me it was curative surgery, and…
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Today is my day to join the ranks of Nephrectomy!
Please accept my apologies. I have been MIA. This day seemed to never arrive and then it hit me two weeks ago...I found myself lost in thought and then as of last weWek was a frantic mess cooking, cleaning, making to do lists for my family to follow and so they can keep my two boys on target with school and after school…
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Cryoablation and Open Partial Nephrectomy
Hello all, I was diagnosed with RCC about 9 months ago, and with the advice of my urologist had cryoablation done. I am 59 and healthy. All went well. On my second CT scan (6 months after the procedure) an anomoly showed up, so my urologist sent me to the head urologist at the univerisity medical center. The issue my first…
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In so much pain
I am in so much pain, this has literally been a very bad week. Doctor prescribed tramadol 50 mg 4 x a day, it's not working , I called today and I was told to try Percocet, which also doesn't work. My original oncologist called me this evening because I emailed him my scary catscan from the other day . He is glad I am…
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Interesting potential treatment
Come across this new interesting potential treatment which is like delivering a bomb directly to the tumour (I like this idea). Wondering if this method can be used over and over again whenever the tumour grow. If so, then it will definately prolong the survival of the patients.…
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Cabozantinib
Hi, I’m a 47 male from the Uk, and I was diagnosed in december2016 with Renal Cell Cancer, with secondary’s spread to my right arm and a spot on my Vertebrae. My left kidney was removed followed by two week’s radiotherapy. I then started on Sutent 37.5mg 4-2 cycle. After 2 cycles, I was scanned and the cancer has now…
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Lab results
we got my husbands regular labwork back from his dr electronically but he is out of his office for over a week and no one will tell us what these results mean. i associate high blood counts to cancer- but that could be simply my ignorance to the disease. he is a healthy man in his 40's with no symptoms - no medications…
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Complex Regional Pain Syndrome after RCC
How many of you developed CRPS or fibromyalgia after the renal cell carcinoma? What are you doing to deal with those horrors? I wish I had the power to remove cancer and other terrible conditions from our human experience. I hate…
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I'm ashamed of myself
Too many recent deaths. They impact me for the obvious reasons. It isn't fair and it will not be. One person dies and another lives. Same dx. and treatment. I'll never be ned, but I've always been a partial responder to treatments, so as long as new options become available, I may be ok. There is some survivors guilt but…
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Cabo
Is Cabo that bad? I keep hearing about this hand and foot thing and I'm getting nervous.