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Kidney Cancer

Archives for March 2017

dying from cancer
Recent deaths hurt me. A few members have been here longer than me. But I'm sort of the last dinosaur. I started as the "Poster Boy" for potential to beat rcc. I have seen death and survived. Now it is like being in the final four. Scheduled to play against UConn. I manage to find ways to postpone the series but it is…
Trial
Just got the news that I start the clinica trial at MGH 4/6/17 with Varliumab and Nivoulmab. Every other Thursday. Looking forward to starting this journey.
Anyone with similar overwhelming health situation
Just trying to get a handle on my husband's situation.. so overwhelming..I am going to list his situation below..can anyone relate or has same health conditions as this and had kidney removed: Age: 54 - never smoked, drank alcohol or done any recreational drugs type 2 diabetes - 25 years Arial fibilliation - has pacemaker…
living with 1 kidney
what are the repercussions of living with 1 kidney.. my husband will probably be having one removed as he has stage 3 and the tumor is 4" long.. We are still waiting on tests and xray results to come back to see if anything has spread.. His other kidney has slight damage from diabetes but otherwise is OK. We know eating…
Medications post radical nephrectomy?
Hello all who have had a radical nephrectomy! Im scheduled for mine on 5/9/17...not soon enough! My doctor has not really had a discussion with me if any meds such as chemo or immuno therapy will be necessary after surgery. Im assuming that will be determined after the staging is complete. Have any of you had to follow up…
Stage 3 kidney cancer with diabetes/afib
My husband was just diganosed yesterday with stage 3 kidney cancer - tumor is 4" long. He is 54 years old and also has diabetes and afib.. we are curently waiting for more test results to see if the cancer has spread. Because he has had diabetes for 20 years he already had a little kidney damage. The Dr said they will…
High Blood Pressure?
Just wanted to know if anyone else with rcc had their blood pressure go very high. My BP has spiked since rcc was discovered on my right kidney. My surgery is not until 28 April. Don't want to have a coronery waiting for my surgery. GATOR
Got Surgery Date
April 17th is the day. I remembered Calvin & Hobbes when he says I think nightime is dark so you can imagine your fears with less distractions. I am now laser focused. I have watched the Surgical Videos to get a better understanding of whats going to happen. There are over 80 Forum pages. They are filled with…
Almost 4 months post surgery
And got my first post-surgery scan. My urologist sent me to an oncologist for genetic testing to see if I have a syndrome which could be causing all of my issues- thryoid disease, pituitary tumor and the kidney cancer. I guess they wanted some answers since at 43 I am considered "young" for kidney cancer. My kids still…
HELP - Overwhelmed with Clinic Options
Two weeks ago tomorrow my husband was diagnosed with sarcomatoid renal cell carcinoma. As a young wife and mother of a seven month old, we have been struggling hard to accept this news. From what we have been told it is a very aggressive form of kidney cancer that does not respond well to chemo or radiation. We spent the…
Just diagnosed
Hi all...just got back from the dr after being diagnosed with the dreaded "C" word. So my journey started in Oct 2016 with a ct scan to find the cause of blood in the urine. Drs couldn't tell anything definite with the ct, so I had an Mri done. The Mri showed an approx 2 cm mass but it was not dense and they said to wait…
Losses
I am just heading out to an appointment, but got notice of this news...I had to reach out to everyone here and say something. I cannot believe that we have received news of the passing of two very special friends here on CSN. This reminds me of when Djinnie and Neil passed...their losses were close in date, and we greatly…
Surgery tomorrow scared
tomorrow is doomsday how my husband calls it! We are to arrive at 7.30 to have the embolization done and then his surgery to remove his kidney and that nasty evil 15cm tumour! we are both scared! He keeps crying and I am just secretly hiding my tears cause I am trying to be strong for him and our 3 kids! I will be waiting…
Thank you all.........
The cancer forum gave me Mark's info so I could write to all of you. First of all I want to thank you all for your kind words. It's so tough to know that he is not here. I appreciate all of your support over the years. As I was reading the post, I cried too as Footstomper was the other person I was trying to get a hold of.…
4 days since surgery - first post
i found this forum last month after diagnosis, looked around a little and got freaked out. Now that the surgery is over I feel so much better ano a little braver to read about everybody's stories. I had a radical nephrectomy on my right kidney Thursday. My surgeon used the DaVinci method so I have 8 incisions, but I am…
Nervous, surgery tomorrow afternoon
Hi everyone!! Hope you all are doing well! I am getting anxious for my robotic laparsocpic partial nephrectomy that is taking place tomorrow. Part of me is so scared, but another part is so damn excited to get this nasty little invader out of me. I know I am good hands and just praying for a smooth surgery and a speedy…
How Long Is Your Scar/Incision for those with Open Nephrectomys
I see in the literature that there is a newer mini-flank incision of 3-4 inches but I believe mine will be about 7 when I have the surgery on April 6. Anyone get the mini-flank version?
Hernia Disc = Kidney Cancer- Incidental find
Hello to all. I am so glad I found This Forum on Google. I have read so many stories this weekend that has ease some anxiety. I had to join to ease the stress Where to start. I am a 56 yo Male in pretty good health or so I thought. I shoveled the snow in early February and had some back pain. Nothing out of the ordinary.…
An incidental finding=RCC
I just found out that I have RCC. I originally hurt my lower back by lifting a heavy object. I began to experience pain in my abdomen, mainly left side of abdomen to the rib cage. Although the pain was along the left side the CT scan did not show muscle tear or any anomoly in that area but a 7cm size tumor at my right…
Mark, (mrou50) wife wrote to me.
Mark's last topic was "Hey Cabo, you win" written on Feb 22, with his last response to that post on Feb 23rd. He was going to stop CABO, even though it was working as he was so miserable. Remember? Well a few moments ago, his wife just wrote to me to announce that he passed away. She wanted me to tell FoxHD and the rest of…
another ct scan please help.
Day 7 on votrient, only side effects are fatigue
Is this to good to be true???? Just fatigue??? I'm not complaining, but seems strange from everything I have read. I called my oncologist and he said they may still come or I'm very lucky. Luck? dont know what to think really . Anyone else have little or no side effects.
Sutent and Rashes
I ma on Sutent 50 mg, 14 on and 7 off. I have developed a nasty rash on the insides of my arms and thighs. First thought it was jock itch but fungus cream caused a bad chemical/burn reaction. Has anyone experienced this?
Clear Margins?
I have a question that I forgot to ask the doctor yesterday when we found out my husband's pathology results. There was one microscopic area where there were a few cells on the outer wall of the kidney in the fat, which makes it stage 3 automatically. However, he said that he removed all of the fat along with the kidney…
New CSN pictures in Spotlight
Congrats to Jan4you and domma_lee for havind their pitures in the CSN spotlight after others including APny and myself were rotated out. Icemantoo
On Sutent , lost all taste
i am taking sunitinib (Sutent) and for the second time have lost all taste, sometimes a metal taste . I read on this forum that taking Lglutamine might help. I have been taking 5grams /day for 2 weeks to no avail. I'm not sure if the dosage is right or not. Anyone out there with this problem?
Find Out the Pathology Report Results Tomorrow
Oh, the nerves are back in full force!! Not that they ever left. I have been trying to keep busy. First my son had the flu for a week and then my daughter for a week so that has filled the two week's time since my husband's surgery. He is doing really well. His biggest complaint by far was the gas. I have said all along…
1 year since relapse diagnosed
Hello, I am new to the blog. In early Dec '05 I was diagnosed with Renal Cell Carcinoma, a 6.8cm tumor on my left kidney. I had a radical Nephectomy 10 days later. It was performed Laparoscpically. 5+ years of scans all fine. In March of 2016 (10+ years later) I asked my PCP about a lump on right flank that had recently…
Footstomper?
Hello, Haven't seen Footstomper for a while. His profile says he was last active on 03MAR. Have anybody heard anything, how is he doing? Alla
No side effects
So it's day 4 with votrient and still no side effects. Is that normal? I'm not complaining but it's just strange. Does it take a while to get them? Just curious, thank you all for listening to my questions.

Kidney Cancer

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