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Kidney Cancer

Archives for March 2017

Swelling in neck/clavicle following radical nephrectomy
Hi everyone, My stepmother recently had a radical nephrectomy to remove what the consultant originally believed to be a large tumour but contained to one kidney. Fairly sure it must have been at least a stage 3. Following the surgery (4 weeks ago) my stepmother has had terrible pain in both her back and now her tummy, the…
Short
Not just my height.... I'm done on the phase 2 trial with Ibrunitib and Nivolumab. Lasted 56 days whooptie Doo I lasted for 2 cycles of 28 days each, 4 more Nivo injections, got scanned... and now have a big fat liver met, and a little larger lung mets since I began the trial, 56 days ago. And I might add, 18 more big fat…
5-year milestone
Hello all, It's been quite awhile since I've posted here. Yesterday was my 5-year anniversary for my nephrectomy. I went in for blood tests this morning and go for CT scan in another week. I'm feeling great (getting tired of the Oregon rain this winter;-)) and doing everything that my artificial knees allow me to do! Well,…
Trial
Anyone in this trial? Lirilumab plus Nivolumab.
Here's a switch: Freaking out the physician(s)
Before I had my surgery, I realized that the copy of my Advance Directive that most of my regular medical team had was -- oops -- just a tad out-of-date. As in, the people they were encouraged to chat with, should the need arise, had already gone on to their rewards (I'd encourage you to pause here and look on YouTube for…
A couple of questions for current or past votrient users
I had a couple of questions in regard to votrient, I started today . I'm taking it at 7 am on an empty stomach, can I have coffee prior or wait the hour after. Also I take zanax usually only before bed, I am prescribed 4 a day .25 but I don't take them ( dr said I really should ) I'm pretty sure I discussed it with dr ,…
Update on Son-in-Law
Next week John begins six weeks of radiation condensensed into five days using SBRT. He was accepted into the study because he has fewer than 3 mets and is young and healthy. (Reminder...he is 42 years old, stage IV, grade 4, 60% sarcomatoid RCC). For those not familiar with SBRT (Stereotactic Body Radiation Therapy), it…
Good News for all at Coffee this morning
We call ourselves the Bakery Family, because that's where we see one another...or all at the same time. If one is there, the next one joins in. Kathy had good results on her follow up CT scan for lung cancer treatment, which she has been undergoing for a year. Letha (age 84) had skin cancers on her scalp removed a week…
Not sure what to do, hoping for some suggestions
I'm 50 and had an ultrasound for upper left abdominal/ flank pain. " Indeterminate nodule adjacent to the left kidney, extending towards the spleen". It is 1.5 cm. They suggested CT or MRI. I went with MRI, but because I have alergies, no contrast. MRI : "There are mulple tiny round, T2 high signal lesions throughout the…
My Partial Nephrectomy Too Complex for da Vinci?
Scheduled for an OPEN left partial nephrectomy for a 4cm renal cell carcinoma in a few weeks. Really like my urologist. He is very skilled surgeon, listens to my questions and has a great bedside manor. He is telling me that he recommends that I have an open procedure instead of robotic because of the complexity of the…
That black cloud keeps following me
So I posted something the other day about my concern with starting votrient and returning to work. Well work is not going to happen yet. I saw my doctors the other day after he read my scans from hospital visit this past Sunday I also have a metastatic lesion on my liver. So i am now stage 4, was told to still start the…
Newbe
Good day. I am a newbe to this forum. I am scheduled for surgery Apr 11th. Still trying to wrap my hands around this entire thing. It is good to hear the stories from you all and to hear that things will get better. Just wish it was tomorrow. The waiting and the unknown is the worst part of all. My emotions are all over…
Scans Tomorrow
My quarterly scans are coming up tomorrow. These days I get my results a week after, but not this time because I have a business trip that came up next week. This business trip is going to put me right back where I was 4 1/2 years ago when my first tumor was found. I'm even staying at the same hotel. I did that on purpose.…
Single Kidney Long Term
To all of you long term nephrectomees... I am very curious to know how your single kidney function has held up over time. Does it hold steady or decline slowly? I always assumed, and I think it is a common assumption, that people get along just fine with only one kidney and it is just as though they had never lost or…
So much anxiety
Hey guys, hope you all are doing well. Since my diagnosis of Clear Cell Renal Carcinoma on Tuesday I have had so much anxiety. I am really trying hard to stay positive and strong, but I have these bouts of anxiety that just overcome me and leave me so fearful of what my life ahead is going to be like. I am only 33 years…
Bloodwork Questions
This is my first post to the Discussion Board. I was diagnosed with kidney cancer February 6, 2017 and had a successful left radical nephrectomy on Feb 20, 2017. The tumor was contained and was removed with the kidney without complications For which I am very thankfu. My recovery has gone great and I feel fantastic well…
Votrient
I have to start taking 800 mg of votrient this week when it gets delivered. I have been out of work on disability since January having had my kidney removed because I had stage 3 cancer. Should I wait to see if I have any side effects before returning to work. I was a healthy 49 year old until this was found by accident in…
lifetime of fun
I have access to my medical records through the "My Chart" online system. It eliminates the need of getting copies of everything as it is available on line. However, something truely mind boggling became apparent. I can not always remember all my treatments, results of tests, chronological order of my care, and more. Part…
Funny story...related to nephrectomy
I have had a bug for the last week or so. Tuesday of last week, I woke up in agony: extreme pain on my right side. So, I went to the local ER. Since I did not think it was cardiac (wrong location), I chose the hospital based on the ER wait. In the hospital, they did some tests and a CT scan to make sure there were no…
our nightmare continues
Well, where do I start! Two weeks ago my husband was sent home from the hospital after receiving 6 pints of blood! His tumor is 16 cm large, thats all we were told! It is pushing his mailn arteries aside, pushing is intestines out of the way and pushing on his spine! We know it ihas not spread as of now! His urologist said…
Hair problems with Votrient
I was diagnosed with kidney cancer in 2013 and after removing a 7 pound tumor and my kidney and spleen the doctors were sure they got it all and no follow up treatment was done. Three years later, almost to the date. I found out it was back in my lung and bones. After many test and a few months I was put on 800mg of…
33 diagnosed with 2.2cm Clear Cell Renal Carcinoma
Well never thought I would wind up here this early in my life! But Hi everyone, I was diagnosed with Clear Cell Renal Cell Carcinoma yesterday morning! I have cried and cried but I think I have cried all my tears out and now I am trying to be as positive as I can be about this whole situation that has been following me…
Worried sick
my husband was diagnosed with kidney cancer last week Tuesday! He received 8 blood transfusions and numerous ct scans to see if it has spread! As of now it is contained to his left kidney in a15cm large tumour! We are awaiting surgery this Friday or early next week to do an open kidney removal! His doctoe told us that the…
I got a NED today...............
First time since Dec of 2015 I got a NED, looks like the two seperate lung surgeries to remove the mets worked, here is to hoping it doesnt come back on me again. Good luck to all.
Antibiotic Use May Damper the Efficacy of Checkpoint Inhibitors
I am just reposting a post from another forum, thinking some of us might be interested. ------------------------------------------------------------------------------------------------------------------ I just thought I would share this information, In essence, the article states that gut bacteria plays a key role in the…
Long time listener, first time caller. Less that 24 hrs from surgery.
Well, I guess it's time we introduced ourselves. I am the husband 46 and my wife is 44 from Arkansas, married 21 yrs this June. First a brief history.....on Feb 8 my wife sent me a text saying thaqt she was in extreme pain in her right side and that she was going to the ER. While she was there the ER doctor who happened to…
RCC for just over 1 year now, what treatments have worked for you?
Hi, I just found this discussion board and have been reading some of the stories. I was diagnosed with RCC a little over a year ago and had a left nephrectomy in December 2015. I have mets to the lungs. My first treatment was high dose IL2. It didn't work. Second treatment Votrient which worked about 7 months. Now I'm…
Sitting here in the hospital
Well, we are sitting here after surgery and the surgeon said everything went perfectly. Am I worrying too much about something that he said? He said that they couldn't tell for sure if it was contained within the capsule. That only a pathologist can tell for sure. He even had the pathogist come into the OR. He said if…
Who also has Skin Cancer...
I have to have a Basel Cell growth on my face taken off this week; how many other of us are also dealing with Skin Cancer as well?
I'm CRash.
52 year old dude. Last year, I too pissed blood. No other symptoms. My tumor on my left kidney was as big as an eggplant, when they cut it out. 9 months and 3 scans later, just learning to live before it's too late. Definitely a wake up call. i live in the southeastern US.

Kidney Cancer

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