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Kidney Cancer

Archives for December 2016

RCC
God bless all of you, Michael
Happy New Year
Hello all, I wanted to wish everyone a Happy New Year and say thank you for being here for me during a scary time in my life. I appreciated all your experiences and advice which helped me get through my diagnosis and surgery. It has been 2 1/2 months since my right kidney was removed and I am getting stronger and getting…
Happy New Year Everyone!!
Here's hoping that we all are blessed with a happy, productive, loving year and never left wanting for anything other than a visit from NED. For those wondering: NED = No Evidence of Disease Cheers! Donna~
My husband was diagnosed this morning
my husband was just diagnosed this morning and I'm a mess. The mass is on his fight kidney and is 9 cm. We now have to wait until Tuesday to speak with a specialist. Super scared. He's 41 and is typically super healthy. I'm not sure what to expect and go through moments of crying and then back to diligently searching for…
Another lung surgery..........
Tuesday Jan 3rd going in again to have two more RCC lung mets removed, a 5mm and 6mm in the upper left lobe left lung this time (wedge resections again), traditional lateral thoracotmy. It seems my surgeon likes to get his hands dirty and feel the lung while he has it deflated outside the rib cage and make sure there are…
Musculoskeletal Pain from Votrient- remedy
Hi everyone, my husband had incredible pain with Votrient which he has been on for 6 months. He was taking up to 30 mg of morphine a day. a friend of mine told me to have him take Claritin. something about histamines being released when you are on chemo. He has been taking it for two weeks now and HAS NO PAIN anymore. I am…
New to the group
Hello all, Im new to this group, I was diagnosed in July 2016 after removing a large tumor 17 cm and my right kidney. My markers were T3N0M0. My furman was grade 4 and necrosis was 50%. I am think about taking the drug Sutent (Sunitinib) but have read some disturbing things about it. Anyone taking this drug? Can you give…
Is this normal?
Hi guys, sorry but this is another complainy post. But I need to know if what I am going through is normal, or if I should go see my doctor. I am now 25 days post surgery. I returned to work after 11 days, and that has been fine, as I work from home and I would be sitting in front of the TV anyway, so sitting in front of a…
First my right boob, then my right kidney....
Just when you think life couldn't get any more surreal in 2016, I was diagnosed in June with Invasive Ductal Carcinoma, Stage IIB, Grade 3 cancer cells and lymph node involvement to boot. During snowball of further testings (MRIs, ultrasounds and a full body PET scan woo hoo!), a 6.3 cm suspicious mass was located in my…
Depression
Hi everyone, wondering what you all do to fight the dreaded depression that comes with this disease? My husband is 6 months into Votrient, and his scans are great. He goes to work everyday and walks the dog three times a day....but he says he has been in this great "funk" the past week. Doesn't want to go anywhere or do…
Update
I reached out to you guys on Friday and I have new information. My husband's details are as follows: Tumor is 9.4 cm Mets to lungs (too numerous to count Is there hope?
Merry Chrismas, Happy Chanuka and a Happy Ned Year
To all, May each of you have the best for the holidays two of which start tonight and the third we hope will continue throuhout the year. Icemantoo
CABO?????
I am being pulled off of CABO again, I wound up in the hospital emergency room last week with severe chest pains and breathing issues. The doctors pulled the numbrs on my heart blood work, ekg, x ray etc. My heart turned out to be fine and in great shape so the ER doctor sent me home. They pain in my chest continued and…
Terrified
Hello - My husband noticed urine in his blood last week. He saw his primary care doctor this week, who prescribed him antibiotics and advised him to get a CT Scan. He had the CT Scan today @ 1:30. At 2:20, the doctor called to say he had kidney cancer. The technician saw a large mass on his kidney and let the doctor know…
Uncle NED is spending Christmas with us this year.
Just found out Uncle NED is paying us a visit after yesterdays Ct scan. As we are going to yearly scans we are inviting him for next Christmas too. Really hope all of you get a visit from him soon too. Merry Christmas Melissa xox
calcium in artery found same time as Kidney tumor
hi all - first, best to all this holiday season...so many here are dealing with a tough hand... me, I am NED for almost 2.5 years after a full nephrectomy on the right side...when they did the scans to find the tumor, one surgeon noted significant calcium in my left descending artery (referrred to as LAD) ...follow up…
Breathalyzer Can Detect 17 Diseases, Including Kidney Cancer
Well, THIS would have been helpful a few years ago... Link to story (you may have to cut and paste...the "insert link" function doesn't appear to be working)
I'd Like to Give a Big Shout Out to Everyone and Say THANK YOU!
A couple of days ago when I wrote my first post, I was terrified by this barrage of information I was receiving from my doctors about my newly mestastized Kidney Cancer, at least that's how it seemed to me. I really didn't have anyone else to talk to - my friends aren't good at handling bad news, and I'm not that close…
What should we wear?
What did you wear when you went for your MRI? What about your going-home from the hospital post-surgery? Then there's the lounge-at-home and early-ventures-into-public outfits. What's worked for you? Here's my report from last week of my wore-it-home from the hospital outfit -- Fashion Report: My apres-surgery ensemble…
Also new to discussons
ultrasound yesterday showed a mass on right kidney, 4x9 4x8 4x6. Due for CT scan in the morning.The anxiety through all of this can be devastating. I am 64, no family history of kidney cancer. Dull ache in the side is what took me to the doctor last week. I am so glad I found this discussion group. The internet info is…
Milestones....
I had a moderately big milestone yesterday. And I ignored it. (I had forgotten it; facebook reminded me). Your years ago yesterday, they found a metastisis to my cancer. Because of the agressive nature of my primary tumor, etc, I was told that the odds of disease free survival was low -- 3 years, was 25%. 5 Years, about…
17 days post sugery
And I guess I am getting my sense of humor back!! I was discussing my hospital stay with my sister and husband and although I vaguely remember, I had totally forgotten. Apparently after surgery I was asking every doctor, nurse, maid and food service employee that walked into my room to, "PLEASE euthanize me, put me out of…
Hi. I'm new here, I'm scared and I need support.
Hello. The past few months have been one hell of a roller coaster for me. I'm ready to get off the ride but it doesn't seem to ever end! In the begining of September of this year, I was diagnosed with Kidney Cancer. The Urologist told me I had a large tumor on my right kidney, and that it, and the kidney, would have to be…
New here
Hi I stumbled upon this forum trying to do research about what to expect over the next few months. I just had a laproscopic radical right nephrectomy on December 14, 2016. I was sent home from the hospital on the 16th. I had a mass in the right kidney that was originally noted when the ER doctor found a tumor blocking 95%…
The Universe (or at least Tylenol)
Dang! What did I just say about the Universe having a better imagination than I have? Tonight I was (re)introduced to the reason I haven't taken Tylenol for over 30 years. After I'm on it for a few days, I get headaches, chills, sweats, feel feverish. I haven't gotten joint pain or a sore throat, but those would be…
Well ! Not what we expected...
Met my new Oncologist... Dr. Primo "Lucky" Lara.... now the Acting Director Comprehensive Cancer Center here at UC Davis in Sacramento. Seems to be a busy man around here.... Since all my scans since Feb. 2014 have shown stable or small growth... and the Opvido scans since starting Opvido this past Feb. (have had 21…
Back Home / Post Op
The surgery was uneventful, aside from the events that needed to take place. It really does get better each day. I got home yesterday. They kept me over an extra day, because I kept dozing off while sitting on the side of the bed, waiting to go for a walk. Such a class act. The first day, the night after sugery, I felt as…
keeping copies of reports.
One of the most common recommendations is to get copies of all your scans and reports for future need. Believe me it's true. After 5 years I have put them into good use. They have all been rolled into logs and fed into the wood stove. It may be 9 degrees outdoors but it is 75 in my house! Actually with computer access to…
Hello
This is my first time ever posting anything like this anywhere. I found this website and this board last night in the middle of a mini melt down when my husband suggested I find people to talk to who may understand what I am going through right now. I am kind of depserate for someone to talk to who does understand, so here…
2 year anniversary
Hello everyone, today is a second anniversary of surgery which saved my husband's life! He was Stage 1, Grade 1 and is currently NED! I remember this time 2 years ago - pregnant, with husband just diagnosed with Hep C and couple of weeks later - with kidney cancer.... Hell of a time for me. This place was the only thing…

Kidney Cancer

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