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Laughter the best medicine
Hi Everyone, I just wanted to share a book that has helped me tremendously through this cancer journey...it is called "Cancer on 5 $ a Day" by Robert Schimmel. He is a comedian and he fought lymphoma stage 3 I believe. Warning or trigger alert, he is a very "blue" comedian so be ready for lots of sex jokes and some…
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28 months passed and I'm NED
Friends, my 28 month scans' report is NED. Thank you all for being best cheerleaders and supporters. May everyone gets good news especially my other Tuesday group member, Jersygrrl, my happiness is completed once you send us good news too. Footstomper I'm really happy for your boring report. Forough
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Tuesday Group 2.0
So, I see quite a few of us were getting results today (Tuesday). I guess I missed being in the club by a week. Got my first scan this Friday and the BIG REVEAL will be Tuesday (a week from today). I have to admit, the anxiety is slowly but surley starting to build. You guys have all been helpful and supportive, but for…
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Panicking!
Hoping you guys can reassure me a bit. A bit if backstory, for the last 20 or more years I have had migraine headaches. These haven't changed and I would even say are a bit better now than in years prior. Additionally, I have something called Meniere's which is a balance disorder that can cause vertigo. I was diagnosed…
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husband had 4cm lesion waiting to see specialist
Hi, new here and first post. My husband had an MRI for other reasons and they found a 4.1 x 2.5 x 4.2 lesion on his rght kidney and other small lesions they didnt measure. The Dr referred him to a Urologic Onchologist - that alone freaked us out, then because the first availalble appt is not until January I have called…
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Stage IV DNR form
Has any of the stage IV people filled out their DNR form (Do Not Resuscitate) yet. My doctor told me last week that even though I had good news it was time to get that filled out. I filled it out today and took it in to the office to get signed and it was so surreal. I have always known what the end results of this are…
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Anyone had cryoablation of lung mets?
I had my Dec. CT scans w and w/o contrast and a bone scan that came back clear everywhere except my left lung, which now has two small mets (5mm and 6mm) in the upper left lobe, had a 2nd opinion and the concensous is get them out asap, with the preffered options being 1. surgery, 2. cryoablation or 3. sbrt. Im scheduled…
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I need advice....
Hello, Ive come one here from time to time. My brother was diagnosed with Stage IV RCC (clear cell) in September of this year with mets to the lungs and spine. After nephrecgtomy, spinal surgery, rehab and radiaition to spine, he was readmitted to the hospital with low blood pressure, heart rate and pleural effusion It…
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Scanxiety til Tuesday
So on tuesday we will find out if my lung mets have really increased in size, or if they were merely swollen by my immune systems production of T cells on the road to the abscopal effect and remission. Ah, experimental science, dontcha love it!
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First meeting with urlogist
I had my first meeting with the urlogist on Wednesday (7th Dec.) I'll be getting a bone scan and a 'telescope' inserted to check my ureter and another meeting with the urologist in about a month. That's when the big decisions are made, I guess. Though I also guess that the big decisions are made for me, more or less. The…
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CT scan and CABO
After along and disturbing conversation about the cancer and what it is doing to me last week and what would happen if I went off of chemo (the chemo has been making me very sick) we finally got some good news today. The chemo that is making me sick is working my latest CT scan shows all tumors in my lungs, lymph nodes,…
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I like it
Some guy suggested that I swallow a bag of popcorn kernals right before I die. Then when I'm creamated I can go out with a bang. If only I could pull it off.....hmmmm..
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Anyone get genetic testing
Just wondering if anyone got tested? I am 56 and never thought about needing it till my 32 year old daughter had colonoscopy and had 2 medium pre cancerous serrated adenoma sessile polyps. lynch syndrome is genetic syndrome that is hereditary for colon cancer and other cancers.. kidney cancer is one of the familiar…
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Ct scan results it's back. Advice please
Hi everyone am a regular here but not a contributor my knowledge is limited But learning everyday. my diagnosis oct 2013 chromophobe rcc. 10cm T2 nxm0 I have had ct scans with contrast all NED till my last one today. The report as follow enlarged node 2cm at axilla confirmed as metastasis. Low volume slightly enlarge nodes…
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Pain
I was just wondering if you all still get pain on occasion? Nothing major but little pinches and stabs briefly here and there? I am ten months out from partial nephrectomy. I just had my CT and got the all clear a little over a month ago.
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Complex Renal Cyst...Questions
I had a CT w/ contrast preformed about six months ago, which showed what they called a complex renal cyst in the upper portion of what remains of my left kidney. It showed several septations and calcifications, and measured around 4.6 cm. I got a call from the nurse, following the CT, stating that my urologist wanted to…
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New here; surgery on Tuesday
Hello. My husband (57yo) will be undergoing a radical nephrectomy of his right kidney this Tuesday. This is all happening quite rapidly, and I would love any advice that you all could provide to help us prepare for the surgery. After about 3 or 4 months of constant weight loss, lack of energy, sleeping all of the time,…
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What to give doctor and staff for Christmas?
My oncologist and her staff at the county hospital are GREAT! They are so friendly and caring--I look forward to every visit. Any ideas what I could/should give them for Christmas? -- Bruce
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Collecting Duct Carcinoma
Hi there. I wish I had properly learned how to use this network when my husband was sick. He was diagnosed with kidney cancer in April 2015. Stage IV. It was very, very bad. After his nephrectomy he was told "Oops. We were wrong. Its not kidney cancer, its actually Collecting Duct Carcinoma, which is worse." At that moment…