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It's Official...
2 YEARS CANCER FREE!! I now go down to a scan cycle every year... the best part was that my urologist actually said that he's "amazed" at how well my one kidney is keeping up with things. He's used to seeing at least a small dip in kidney function, but he said everything looks completely normal. That's some good stuff,…
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Lifestyle changes
I got a letter from the urology clinic. They have reviewed my case and will give me an appointment. They will contact me six weeks before the appointment date. I don't have money to see a urologist privately so I will just have to wait. Actually I don't really mind (as long as it IS a slow growing thing) since it gives me…
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Gallbladder: Insight on post (or pre) nephrectomy issues
So while my husband is "no evidence of malignancy" on his CT scans, his gall bladder wall is "thickening." He also has gallstones. Of course, we don't see the oncologist until December, but I was wondering for those of you who had your gall bladder scanned, know anything about this. I looked it up, of course, and found a…
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Post op Day 3
Good evening all! I was recently diagnosed with RCC and had a partial nephrectomy-laparoscopic hand assist on 10/27. My surgeon removed the 3cm tumor along with part of my kidney. My margins were clear and the pathology confirmed the Malignancy. I am 37 and have no family history of renal cancer. I was told this is quite…
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How Careful to Be While Around Votrient Patient
My husband is currently taking Votrient for RCC. I was wondering how careful everyone is while being around their loved one. For instance, it has been suggested to wash his clothes separately and to wear gloves when handling his sheets etc. I want to handle this situation in the most loving way posssible but am also…
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1st Ultrasound since initial finding....
Hi all.... I haven't posted the last few months but I do come on here everyday to read your posts and wanted to update you on things and say hi. So, yesterday I had my 3 month ultrasound appt. since they found the 9mm lesion on my left kidney back in July during a CT scan for unrelated issues. Well, after over 1/2 hr.…
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Not Diagnosed but have questionsf
I am a 52 year old woman, very active, very healthy. First had blood in my urine 2 years ago (August 2014) - went to doctor and they gave me antibiotics. April 2015 had blood in urine but only saw it one time. August 2015 started peeing blood clots one night - gone by next morning. Saw urologist 2 days later, he put me on…
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3 years, still surviving!!! I think Uncle Ned is joining us for dinner
The impression of my husband's report was NED but of course I'll need to review it myself for it to be true, LOL!!! We were a little concerned with the non-specific finding of increased bone density (not sure which bone, lol!!!) but I"m sure it's nothing. I think we move to yearly scans, to be determined. Still in shock. 3…
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stroke during cancer treatment
i would like to hear the experiences from anyone who had a stroke during stage 4 rcc treatment. thanks
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No Longer in Limbo
I've hijacked a few threads of other people in the past couple of weeks since I've joined the site. Finally got to talk to a medical oncologist today and have a path forward, so I'll start my own thread with my own story. My left kidney tumor was discovered, by ultrasound, on Sept. 1st. It measured 14cm. It wasn't until…
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Should have listened
I should have listened to the advice from each of you. I had a laparoscopic partial nephrectomy on August 26 and recovery was uneventful---my wife made sure that I took it easy. The doctor recommended 6 weeks without lifting and running. Well, at exactly six weeks (a week ago Saturday)I laced up my running shoes and went…
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Um.....
Hey, all, Had my Ultrasound, X-ray and blood work done this morning. But now I just received a call from the imaging department and they want me to come back tomorrow morning so the doctor can get a "live look" at something.... obviously this has me concerned. They wouldn't really say where or what but she did tell me not…
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Off topic - World Series Anyone?
Personally, we're flyin the W. Needless to say, hoping for a win here in Chicago. It's only been 108 years!! So many of my relatives that have passed on were die-hard Cubs fans and can legitimately say it's a family tradition. Unfortunately, with tickets costing $1900 for standing room only at the "friendly confines",…
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Advice
Does anyone know of a good RCC specialist in Pittsburgh,Pennsylvania? Thank you,
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Open Partial Nephrectomy on a Cystic Renal Cell Carcinoma
Hi all, just want to share my story with everyone here. I was diagnosed with a complex renal cyst on my left kidney with the size of 3.2 by 3.6 cm during an unrelated ultrasound. Later CT confirmed that it is a 3.4 cm Bosniak Category III cyst, my family doctor referred me to the specialist. My urologist/Surgeon said based…
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2 Years Ago...
Hey, all, Apologies for not being able to post to this group as often as I'd like. I started a new job back in June (went from 20 years at McDonald's to WAWA- LOVE it so far) and Jacob is quickly approaching his first birthday on November 2nd. Lot happening right now but I wouldn't trade it for anything. I realize my 2…
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Newly diagnosed
Hi all... Actually i have not yet been diagnosed... I only have a radiologists's report and a referral to a urologist. I will make an appointment tomorrow (Monday) morning. 10 days ago I had urine like red wine and on Wednesday I had a delayed phase contrast CT scan. I have a 5cm mass at the bottom my right kidney which is…
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Pathology Report in for Iggy
Hello All, I finally saw my Urologist who went over the pathology report with me. I had Stage One RCC that was confined to my kidney only. The size was 5.5cm, not 6cm as believed. Also, nothing had gone into the lymp nodes. I am meeting with my Oncologist this week to follow up. In the meantime, I am recovering from sugery…
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2 Years Ago...
Hello, all, Sorry to say that it's been a little while since I've posted... I've been busy with my son and a new job that I'm loving. (Left McDonald's for Wawa) But today is the 2-year anny of my surgery... Can't "officially" say I'm 2 years cancer free because my scans are next week and I see my doctor on the 31st to go…
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I have to share my good news
But I do it with mixed feelings. There are so many of you dealing with so much pain and misery with this horrible disease that I have really conflicting feelings about saying how happy I am that I had a visit from Uncle Ned and I don’t have to go for tests every six months anymore. I can now go to once a year. Which makes…
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Looks great!
My urologist said everything looks great and he will see me in 6 months. At that point, assuming all looks good, we move to yearly scans! Thanks for all the well wishes and good thoughts!
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Useful Videos from Kidney Cancer Canada
Hi all, I have found that these videos from Kidney Cancer Canada are very useful and informative for new patients and veteran fighters :) The Q&A sections with the well known Uro-Oncologists answered a lot of my questions which I didn't have a chance to ask my urologist (Because I don't even know I should ask). Hope you…
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heart surgery and cancer
My husband has had a checkup one month ago and they found out that he had a severe heart condition, he was rushed for an angioplasty and they placed 2 stents. two weeks later when getting back to the doctor, as the results from the checkup came out, we found out he had a mass in his left kidney. We were sent to have a scan…
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is anyone on votrient and an antidepressant?
Is anyone using Votrient and on an antidepressant? My husband had to go off of his Lexapro due to some interactions with his antinausea meds. I have tried googling it today and all the antidepressants I tried have dangerous interactions with his med list. Of course he will be seeing his family doc to get something…
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Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?
Hi all, I am new here and I have read a lot of papers claiming Cystic Renal Cell Carcinomas (CRCC) has better prognosis, have we seen anyone recurr/met with CRCC? <a href="http://www.ajronline.org/doi/pdf/10.2214/AJR.12.9414">Cystic Renal Cell Carcinomas: Do They Grow, Metastasize, or Recur?</a> Also, I have seem quite a…
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Scanxiety
Follow-up CT and appointment with urologist on Wednesday. MAJOR scan anxiety setting in!
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Mononephrite Club
There's a fellow at church who, like me, had a radical nephrectomy. We call ourselves the Mononephrites.
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help please.....
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
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pain on Votrient
Hi everyone. My husband has stage IV kidney cancer...had his left kidney removed 5 years ago and was "cured" ....then it popped up in his lungs and on his scalp by his five year check. We did high dose IL II....horrible treatment and didn't do a thing. In fact, he now has three lesions on his liver, one on his thyroid, one…
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Scan Results - No Worries
Just an update. Got my PET/CT scan results recently -- no change: nothing shrank, nothing grew. Four months ago a PET/CT shows some activity in the lungs, so we upped the Votrient from 400mg to 600mg. Seems to be working. So, will stick it out with current 600mg Votrient regiment. Another scan in three months. An aside.…