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Kidney Cancer

Archives for October 2016

Incidental finding of Renal Cell Carcimnoma
What started off as a pain in my knee and leg, led to the discovery that I had renal cell carcinoma. I am now starting week 4 after having had cryoablation of a tumor that was about 3.5 cm, Furman Nuclear Grade 2. Am doing great now, just still getting naps in the afternoon. Follow-up CT scan in Jan. In November I will get…
2nd set of scans
The waiting on the results is awful. NEVER EVER have scans on a Friday and have to go through an entire weekend without word. Uggh! My bonescans were good, NED! Kidney function - good. Now waiting on CT results. Trusting and believing in God for good results. I will come back and update.
2006 HAD KIDNEY REMOVED-IT'S BACK
Okay, I'm new here, but not to kidney cancer. In March 2006 mine was left kidney. I had it removed and it was 12cm. I was 54 at the time. After 5 years on the program, I thought I had clear sailing ahead. May 2015 I received a call from my doctor and something showed on my right lung in my annual CT scan. It was RCC and…
Post Surgery/It's Out
Hello All, I had surgery on October 12. and am now at home recovering. They took out my right kidney and the tumor. It was a hell of a thing to go through, but I did it. I am now at home suffering from bloating and constipation (they gave me Norco for pain which has constipated me). I am not feeling a lot of pain and will…
New Normal
Hi everyone - so grateful to have found this site. Have been reading and learning and trying to adjust to new normal. Diagnosed on July 16th - radical nephrectomy on August 4th. Stage 3 / Grade 3 RCC. Surgery went really well - surgeons feel they got all of the cancer. I am grateful to be back to work, exercising, living.…
After all you can kill cancer
http://www.collective-evolution.com/2016/10/09/so-it-turns-out-you-can-kill-cancer-after-all/
Node behind ear
Hi, i had my 2 years CT scan last week, did'nt receive the results, but it should looks good since nobody called yet. Scheduled for a meeting to review it with urologist in early november. The problem i have now, is that i have a lump behind my left year that appeared 4 days ago. It is 1/2" and don't seem to grow more. I…
Urethra cancer
This may not be the place to post thisbut I don't see abetter place. My wife was diagnosed with low level cancer in the urethra from the kidney to the bladder. She is scheduled for surgery Nov. 18. They don't think there is cancer in the kidney or bladder but they expect to take the kidney. She is 83 yrs. old. Anyone that…
Second opinion Tuesday
Tomorrow is the day I go for my second opinion. Funny, this is the first appointment I've been nervous about. I'm driving there with a friend this evening because the appointment is: (1) Far away; and (2) Very early. I think the nervousness is due to the distance and not being familiar with the area, the university medical…
Little off topic, liver biopsy
I have to have one done because i have one gene for hemachromatosis. A genetic blood thing, people with two of the genes have it. I am questionable so between gi, gp and hematologist drs I'm getting biopsy done to look for it. Also have non alcholic fatty liver seen on all the imaging I have had done with rcc. Anyone have…
Game changer?
From the BBC http://www.bbc.com/news/health-37601508 The link at the bottom is worth following too
7cm Cyst on right kidney
I've been diagnosed with a 7cm cyst on my right kidney. Based on 2 ct-scans and a few ultrasounds over the years it does not appear to be cancer but cancer cannot be ruled out either. I will be talking to a urologist oncologist who specializes in robotic arthroscopic surgery on Monday to determine if I have the option of…
Opioid addiction
Serious topic isn't it? So anyway read my latest report. Great results. However, even at what I consider low dose opioid use, I have felt like crap for a week. A bit anxious. Maybe. More like too much coffee man. Unable to eat. Weight loss. My pre-cancer bod of 200# muscle is now about 143# of marshmellow. Could sleep all…
Winter of Fox? Really?
Ok, Results are in. It still just blows my mind that the nivo didn't work. Anyway radiation and cabozantinib on the other hand work real good. I think that I mentioned that I am currently painless. Radiation needs to not scare people so much. Lately the radiation has whippped me out. Almost like a milder IL-2. But it has…
Typing Hurts
I have been neglecting my messages because quite honestly it hurts to type since I broke my shoulder. I am not seeing any real side effects of the CABO so I am afraid it may not be working. I just finished radiation on my shoulders yesterday, the doctors are holding off on radiating more bones for a while at this time, we…
The Continuing Adventures of a Lab Rat.
Clinical Trial - Calithera’s glutaminase inhibitor, CB-839 in combination with Everolimus (Afinitor) at Penn Medicine in Philadelphia. I was previously enrolled in a clinical trial with Keytruda (Pembrolizumab) and Incyte’s INCB24360 for the past year and a half. Unfortunately, in June I started to show progression and it…
Scheduled for Surgery
Hello all, After a three weeks of CT scans, and a Colonocopy (no issues), I have been scheduled for Surgery on 10/12/16. I decided on staying with my Urologist after speaking to my doctors who all spoke highly of him. I also feel comfortable with my current health care group and hospital, so I am good. It was gonna take…
Cancer Fatigue
Hello everybody. This is probably a silly question, but one I want to ask. I'm a little over one week out of my second surgery in a month (chRCC removal end of August and Thyroid cancer removal last week). As I recover my body is starting to feel better than it has in years. As you know, one of the symptoms of cancer is…
I'm New ...
Hi All, I write from Overseas, Italy to be exact. My dad was diagnosed with RCC in 2014 (the same week my mom died from another cancer), at 61 years of age. His cancer was 10cm in the left kidney. He underwent radical nephrectomy in April 2014 and the cancer came back as clear cell Stage IIIa with no lymphnode affected,…
Stable
Hi everyone, It looks like the scan for my body is good with no mets, and the three tumors in my head are stable. I will not go back for CT Scans of the body for 6 months and head MRI in three months. It looks like the Cyber knife did shrink the tumors some and they were showing no signs of new growth. Hopefully I will…
Four year checkup tomorrow
Well, my wife is going in for her four year checkup tomorrow after a full nephrectomy on her right kidney in 2012. She is at annual checkups at this time and has been clear everytime. We still pray for everyone on this board. You guys really helped us out when she was first diagnosed. God bless. Tom and Holly
Update and looking for advise and some serious hope
Hi all, Sorry that I haven't been around for a while - life has gotten a little busy! So a quick catch up on what has been happening before I get to the sticky stuff. I have made the move from Singapore back to Australia, have given up my job as an English teacher (and my identity?), found an new oncology and palliative…
Reoccurence of cough and fever after three months of removing kidney
Hi guys my father was detected with kidney cancer stage 4 6 months back with symptoms if continous fever and cough. Then he got his kidney removed and having sutent since then. He was ok for four months but after four months cough Nd fever started reoccurring. Does anyone facing same issue
New to the Club - post op information
My internist ordered a Heart Scan for me, and when I called to make the appointment the woman doing the scheduling suggested that I "upgrade" and have a full body scan for an extra $500. I scheduled the full scan. Ironically, upon arrival at the facility, the young man doing the scans tried and tried to talk me out of it.…
Surgery...again
Here is an update on my continuing saga with cancer. Going through my initial scans for RCC, prior to setting a surgery date, the chest scan reveled a thyroid nodule on my lower left lobe with a couple nodes involved. Initially, I was pretty scared that my kidney cancer had traveled, but that was put to rest soon after…
Finally, my story briefly
I'll post on my "about me" page but I figured it was about time I posted a bit about my story. It's a bit convoluted so I'll keep it at a minimum. I'm a college professor that teaches in medical imaging (this includes CT, x-ray, and ultrasound) and I've actively worked in the hospital patient care setting for well over a…
Just diagnosed
I went in for a 6 month routine checkup with bloodwork. My liver enzymes were out of this world. So I had an ultrasound & it showed possible liver disease. It also detected in my R kidney a large mass "probably malignant" with a blood supply. The waiting is killing me! Nobody is in a hurry for anything. Two weeks after…

Kidney Cancer

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