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Morcellation
Howdy, folks. I've been kind of disappeared for a while. I was terribly depressed for a while, but seem to be coming out of it. Made it through my one year scans--no evidence of recurrence or metastases. Yay! Anyhow, I've been reading with interest the news about the recommendations not to use morcellation for…
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Thought for the day
"Life is like a roll of toilet paper. The closer to the end, the faster it goes."
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Partial Robotic-An unusual experience.
I suppose I grew up thinking cancer meant death and if anyone ever told me I had cancer, that I would freak out, act differently, change something and be terribly emotional. My experience seems somewhat surreal, even now 4 months after surgery. In February, I had blood in my urine and did my doctors visits and CAT scan,…
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Post op recovery
Hi all, i am today 6 days post op partial neprectomy and its kicking my butt. Low level nausea and sickness are the ones doing the kicking and it's making me feel so low. On a brighter note ok have had no pain at all from the insision site or kidney. Did anyone else have this nausea and how long does it last? It also could…
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Back for more IL-2
Back at UVa hospital for another week of IL-2. The two weeks in March have given me 4 months of stable disease. Yesterday's scan showed a few mm growth. I got one dose last night and another one this morning and so far not too many bad SEs. I had a small case of the rigors this morming a full four hours after my dose.…
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Very nervous!
So I just had a ct scan and ili just found out that I have bilateral renal cysts. I have a 17mm wall calcification on my left kidney. I also have scoliosis so I always thought that i have lower back pain due to the scoliosis and now to find this out, im really nervous and not sure what to expext.I go to my urologist…
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Cancer Rally
Hi All... FYI. In case any of you can attend.. Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September 17-18, 2014…
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Whoa
Remember when I was all freaked out because I thought two months was to long to wait for surgery. I just looked at the calender and realized now it is only two weeks out. Haven't heard a peep out of the doctors office. They said the hospital would call to schedule pre-op I am waiting to hear from them.
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Scared.....
A year or so ago I had a huge amount of blood in my urine on several occasions. It appeared to me to be UTI'S. I went to my PCP and they tested my urine and after giving me antiiotics, they later told me i never had a UTI. They referred me to a urologist and by the time I saw her the bleeding had stopped. I had a procedure…
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Checking In
Hi All, Back in June, I posted that I was going in for surgery for a colon resection, due to diverticulitis and a malignant polyp. Well I had the surgery June 19. And to make an incredibly long story short, I just got home July 24th. Took doc five hours to do the simple lap surgery due to all th adhesions/scar tissue from…
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How to calculate tumor size when there are three measurements
Please forgive my math skills. But I was reading some journal articles about tumor size and prognosis. How does one get one round number to determine overall size of a tumor (e.g., 7.5X6X6). I just want to confirm that you either perform a calculation or just report on largest measurement (e.g., tumor was 7.5 CM, if…
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Adrenal gland...I should know this but...
...is the adrenal gland always removed when the whole kidney is removed?
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day to day normal stress of what people deal with
On 6/11/14 we met with an oncologist and she "said" my husband has stage 1 recurring kidney cancer that has metastasized (he has 2 tumors in the lungs and several in the abdomen). On 6/17/2014 we went to MD Anderson to get a second opinion because what I have learned online is that you can't be both "Stage 1" and…
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Cyberknife
I decided to start a new post. I am on my second week of Afinitor, and overall feeling a lot better. Right now I am to meet a new doctor. He will set up the Cyberknife treatments. Don't let the name fool you, there is no knife or cutting. This is a special type of radiation treatment. I may have up to 5 treatments.…
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Kidney Mass
Hello, I am new to this group and this is my first post. I wanted to get some advice. I went to the VA for my anual exam and they saw blood in my urine. They sent me to get a sonogram and it came back with a mass in each of my kidneys. one was 9.4cm and the other was 10cm. They told me not to worry BUT if there was blood…
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KCA Conference Northern California
Hi All..! I thought I had posted this here.. but could not find it... there is still time to register, it is FREE..!! Spend the day at Stanford with a bunch of like minded people... and then there is me.. OK, so I just read the agenda and my Surgeon and my Oncologist are two of the speakers, plus one of the researchers I…
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docs that specialize in Renal Cell Carcinoma Sarcomatoid.
I am trying to find surgeons who are on the cutting edge dealing with Renal Cell Carcinoma Sarcomatoid. I am also looking for hospitals that specialize in Renal Cancer. Any and all help is greatly appreciated. Thank you . ,
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So, I'm going in.......
.... To hospital tomorrow for my partial nephrectomy. I will be a fully paid up member of the board and I feel strangely calm. Spent a few hours at the hospital today to discuss op and all I can remember is all the things that could go wrong! All being good I shall be home on the weekend. It's lovely to catch up on…
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Looking for physician in Northern California
I'm from the breast and uterine cancer boards. One of my bffs was dxd with kidney cancer 5 1/4 years ago. Now there is a mass in her left lung that cannot be accessed by biopsy (thoracic surgeon tried, he could not get to it). He feels the mass is renal cancer mets, not a primary lung cancer. We will visit her local…
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Getting Older-Reflections
I turned 71 today. Next week will be 12 years from ny NEPH and 12 years and 2 months from its discovery. I have not had a CT in about 7 years, just Utrasounds although I am scheduled for a CT (hopefully the last one) tomorrow. In the last year other issues have replaced any concern about RCC. Ihave Stage 3 Chronic Kidney…
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elevated heart rate
I am 3+ weeks out from a full kidney removal. Tumor was stage 1; grade 2 and i walk about 5 - 7, 000 steps a day but sometimes, my heart rate is hyper elevated - > 120 (normal resting for me is ~60). Anyone else experience this? I am meeting with my surgeon tomorrow and will bring it up. If it wasn't accompanied by chest…
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Partial Nephrectomy / Small RCC - Clear Cell
A week ago I had a partial nephrectomy and will be meeting with my Urologist tomorrow. Pathology confirmed the following to me: Clear Cell RCC (1.7cm) Rated a 2 for aggressiveness. Pathology confirmed negative margins. I have a perceived hermangioma in my liver and spleen. The spleen is somewhat abnormal according to the…
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Open Partial Nephrectomy--A Message of Inspiration
Hi All, I wanted to post my extremely positive experience I had with my open partial nephrectomy, which was performed on July 10. Prior to my surgery, I made the mistake of reading messages here, and I was pretty despondent. Keep in mind that everyone has a different situation and experience, and you cannot draw anything…
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Does anyone know how to look up clinical trial results of targeted therapy drugs?
I am wondering if someone can tell me where you get this type of information for drugs that are already FDA approved and for drugs that are in trial. I'm also a bit curious (as a side note), does anyone taking these drugs have any interest in knowing this type of data? I'm on the fence about whether or not I want to know.…
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Amazing comaraderie
I just want to take a moment and comment how impressive everyone is. Despite everyone experiencing life changing circumstances, the unselfish support of each other is mind blowing. At a time when being a bit ego-centric would be understandable, I have seen very few people be so. The character everyone demonstrates is…
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Bloating/gas pain at right partial nephrectomy site
Hi, I am new to this forum and am looking for advice. I had a partial nephrectomy performed on July 8th. I am having lots of pain (likely gas) at the surgical site and was wondering if others have had this problem as well? I have been walking as much as I can manage as the pain is worse when walking. Well, I must've done…
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Rhabdoid RCC
Hello, April 7th my father was diagnosed with kidney cancer. Our first opinion felt surgery was out of the question, so we got a second opinion. Our second opinion was optimistic, and he was scheduled for a radical nephrectomy. The recovery after surgery was rough and he was back in and out of the hospital. Finally after…
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Nivolumab approved in Japan
Just wanted to keep others up to date.. This has to be good news! http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/anti-pd1-opdivo-nivo-approved
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Cancer Hospital Ratings
I brought this over from another forum, but thought you may wish to see the ratings of where you are going... Ron http://health.usnews.com/best-hospitals/rankings/cancer
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Scan
Scan tomorrow with dye. its been 6 months since last......Damn I hate scanaxiety ;) Hope all you motherfluffers are doing well. I took a little break from the site as we PCS'd to Alaska caught my first King fish too. Again i hope all of you are doimg well.