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Kidney Cancer

Archives for May 2014

Eating better with one kidney
My husband is a TROOPER. He has modified his diet in so many spectacular ways. But I'm struggling with the sodium aspect of things. It seems almost impossible to achieve the proper levels for 1 kidney. Does anyone have any tips on this? His creatinine level post surgery was 1.5 and remained the same 7 months after his…
My brain is "unremarkable"....
Normally I'd be offended by that. But, in the context of looking for mets - I'll gladly take it. I had my first post-op brain scan on Wed. Picked up my results on Thurs. Why does reading comprehension go to zero when you're anxiously reading your first results? From hanging around here - I was actully scanning the page for…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
mood changer
Not enough good news here. It's an old one I probably posted in the past, but it's time to share again. A scruffy old biker is sitting in Mcdonalds having lunch. He sees an old couple slowly walk in. The little old lady takes a seat next to him and the husband goes up to order some food. He returns and sits across from his…
Here we go again!
The waiting begins again. Had CT scan today to check status of current mets. I am hoping for at least stable with nothing new in the mix. I will know results Tuesday. Just hoping this once that I get a good report. If the report is not good not sure what happens next as far as treatment options go. my best wishes to…
Numb Thigh
My partial neph was on 5/8. A little less than 2 weeks post op I felt a burning sensation in my left thigh as I was getting dressed. The burning sensation happened several more times that day. And then my left thigh became numb the following day. I saw a neurologist today at Stanford Hospital to figure out what was going…
Feeling a bit fed up!
I had posted before about my liver enzymes being at the upper mark of level three. With it being highly toxic I had to stop the Votrient for a couple of weeks, recently starting at the lowest dose of 200mg. I was feeling hopeful; as my liver had improved slightly to accommodate the meds. I have just had my weekly blood…
SO AFRAID PLEASE HELP ABOUT MY 64yr old FATHER HELP ME PLEASE!!
Hello my name is Diana, my father Jesse who will be 64 July 29th, was in the Vietnam war and covered in agent orange, not sure if this means anything but up to now has been healthy and worked all his life. The worse thing he ever had was stitches or a toothache, I remember maybe 3 times in my life him having a touch of the…
Wisdom Needed
First of all, thank you to everyone who posts on this board. I have been a lurker on and off for a little over two years and have learned so much from all of you. I first came here when my dad was diagnosed with RCC in April of 2012. He had his kidney removed in May of 2012. I do not have the report, but I did get some…
It Never Gets Easier!
Hi Everyone, Had my CAT Scan and Head MRI last Friday and I am doing just great. I get my results on Monday, June 2. I know I have been feeling really well and everything has been going really great for my husband and I. We were at Ocean City for the car show a couple of weeks ago, my husband finally got to take his truck…
Time for me to vent some anger and anxiety again
It seems to me, that knowing that I had cancer, however insignificant it may have been, that it would make sense to do a full complete follow up to make certain that there wasn't any other asymptomatic cancer in other parts of my body. After all the whole deal about catching kidney cancers early, before they are…
New Member- any help appreciated
I have been having pain on the right side of my abdomen with a stabbing pain that radiates to my back. I was able to see a physcian and asked if I could have a ultrasound of my entire abdomen area but the physician felt I only needed an ultrasound of my Gallbadder. So to have the ultrasound I felt I needed I had to find…
NED
2 year 6 mouth scan todays and is NED,blood test result CEA went up to 5.27 ng/ml,red blood cell low at 4.4,white blood cell low at 3.6,DR advise is not to worrier,,,,
Quick Response, Please! Re: Steroids
Hi all, thoughts on steroid use for palliative care? Anyone ever been administered steroids before to alleviate pain? my husband is in the hospital for an infection in the lungs. He is at stage IV clear cell RCC. Surgery on left kidney is not an option at this point, so doctors are hoping to clear the infection and lower…
Alternative treatments
Have any of you left the country for alternative, non-FDA approved treatments - Mexico, Columbia, U.K.?? Living on the US/Mexico border there are nearby options - but they all seem to be "fluff" -- ozone, hydrogen peroxide, laetrile, etc., in nature. I'm not opposed to trying such, but it would be nice to have some…
It just doesn't end
So I was recovering great from my March partial neph and my follow up blood test on the 30th of April was just about perfect. Fast forward just 2 weeks and I feel run down, tired and draggy and my heart is racing from doing even very little. My internist does a blood test and my hemoglobin dropped from 12.8 two weeks prior…
understanding your MD
So often our doctors either don't explain things well or don't explain enough. We leave our visits dazed and confused. Scared and un-releaved.(is that a word?) Who doesn't hate this? I had a follow up today. Just blood work and a zometa infusion. No other diagnostic or prognostic indicators except a couple. First when she…
New Tumour . Oh ***bother!
Hi all. Just got back from Mr Phreds Radiation oncology appt . Sadly more bad news. New tumour 4.3 by 4.3 by 4.3cm only 2 months after radical nephrectomy.Growing next to staples. Have to wait another week to see if more surgery is possible or maybe sutent. So sad.
Affraid
Hello, I'm 33 years old and had a radical nephrectomy of my right kidney in January 2013. It was stage 1 clear cell renal carcenoma.. My left kidney is functioning just fine right now. I've had 2 scans since surgery which were ok! I do however have a couple nodules on my lungs which my doctor said were " nothing" but this…
Results after Radical Nephrectomy
HI. I am a first time user. So please bare with me. Not sure if I have all the correct terms down yet! A family member has just been diagnosed with Stage T3b Grade 4 (10cm) clear cell cancer with sarcomatoid and rhabtoid features. Had RN and thrombectomy last month. They have been sent for follow up ct In 3 months. I…
Scans Again
Well tommorow morning I get my CT again. I took my blood test on Monday and my Creatin was sky high 1.77 and GFR 43 Just two weeks ago my Creatin was 1.52 and GFR was 48.....The clinic called and wanted me to come in for fluids but I was 10 mins from takeoff when they called so I promised to hydrate as well as possible. I…
waiting, waiting...
Scanxiety in effect! Had a core needle biopsy yesterday for a breast mass they've been ingoring for 2 years (and that had lit up on my PET last Oct), but my recent MRI showed growth, so Dr Evil stuck a staple gun in it yesterday (just kidding, was a special needle), and now it's off to path....and I wait most…
Wait and see approach? Thoughts?
Hi, all. I've been on the Colon Cancer board for Stage 3 Colorectal cancer diagnosed in December 2012. Lots has happened since then but original CT showed a mass (1.5 cm) on left kidney back in 2012. Follow-up CT six months ago (after completion of CRC surgery/chemo/stuff) showed slow growth to 1.75 cm. Urologist wanted to…
like father like son
There are words to describe my frustration at doctor's office this morning but they aren't suitable for social media. In fact, I'm sure I'd be banned from this site forever if I said what I am thinking. Suffice it to say, I could make a sailor blush. Today was to be my 1 year post-op with urologist. Per last visit, he said…
Follow up scans
Yesterday my husband had 2 month follow up Brain MRI and 4 month follow up Spine MRI...very happy to say that both scans came out good..no new spots in brain and swelling as compared to march MRI was very less. He had last cyber knife done in December 2013. Spot in Spine C1/C2 are was treated in last year February ( 3…
NED which is good....too busy to be sick...
I got the results from my most recent scans. Once again, they were NED. I expected that, but it is good to hear it. I am now dealing with all the non-cancer things wrong with the body. And the preventive stuff I ignored while dealing with the 800 lb gorillia of metastatic sRCC. But, the met was solitary. Some of the other…
Scans
my husband had his 3 month scans this morning; the doctor's office called to let us know that they look good. slightly elevated creatinine (probably the coffee he drank just before) but other than that (1.3 to 1.5), no evidence of disease. the appointment is on Thursday but the news was good; now, we can leave for Hawaii…
Help reading dad's path report.
The sample is largely necrotic with only rare epithelioid cells with malignant cytologic features. Immunohistochemical staining shows focal cytokeratin CAM 5.2 staining, and negative CK7 staining. A CD10 stain is non-contributory. The morphologic features are suggestive of a renal cell carcinoma primary, but given the lack…
Start Votrient Again Tomorrow!
I have just had my weekly liver check, it is recovering at less than a snails pace. It seems pretty clapped out to me, with an outside possibility that it's just thinking about getting better. As there is now a very small margin my Oncologist is starting me on 200mg of Votrient tomorrow. I will continue to have my…
New cancer diagnosis
Hi All, It's been awhile since I've posted here. My year has had a lot of changes for me. I had my usual CT scan back in early March. I had an "all clear" from my oncologist (I had stage 2, grade 3 cRCC back in 2010, with a 9cm tumor and left kidney removed). Two days after my appointment, he called me to tell me his…

Kidney Cancer

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