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A little late asking - but
does anyone know just how they reconstruct our kidneys after a partial?
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Exercise post op
I'm 55 yrs old and had a robotic partial nephrectomy on May 8, 2014. I found out that I had a mass in my left Kidney as I was training for my first triathlon. It's in late June. I was in fairly good shape going into the operation but I'm concerned that I'm not going to be able to resume training for a while. At one week…
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It's been quite a week
Hi all! As some of you know, we have been doing some renovations in the house. For quite a while now we have had no water in the kitchen, no stove, no oven. Every inch on the main floor has junk on it. Lots of stress! Work has been insane as we are very short staffed and we are headed into super busy season. In addition,…
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Rapid Heartbeat
Since my partial nephrectomy in March I’ve developed periodic rapid heartbeat. I never had this issue. I could be just sitting or resting and wham, it starts speeding. My doc examined me today and said yes, it was beating too fast and wants me to see a cardiologist, which I’m going to do. Anyone experience anything like…
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Waiting and waiting.........
Hey all Had chest CT at beginning of week as a run up to op and I have been calling specialist nurse every day and results are not back. Also I have no date yet for op and no follow up appointment with urologist booked. I am stressing about all this, did you all have to wait and wait for any news? Perhaps I am being…
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Travel Insurance
Hi All... OK, just set up my summer travel... And I wanted to get the travel insurance. I know this has been brought up before... But, so I was reading the insurance policy info and the policy is available for people with pre-existing medical conditions. So, I called the 800 number.. The regular policy for my trip is like…
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Adhesions, neuropathy or is it just anxiety
Its been nearly 3 months since my partial nephrectomy and I find myself experiencing more pain in my torso than I ever did before I had the nephrectomy. These pains really only started to become bothersome over the past few weeks. Right after the surgery I didn't really hurt at all for several weeks. My brother thinks its…
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On the lighter note
Within two months following my surgery my hair turned white. I am not talkin grey here --I am talkin Santa Claus terrirtory. It was amazing just how many people remembered that TV show " Twin Peaks" from 20 years ago and gave me a hard time. This annoys me because while I may have been overweight I had a pretty good head…
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Just having a hard time right now
I first want to begin and tell you that this forum and you people lift my spirits all the time. I have some good laughs reading your stories and jokes. I appreciate you all. I have had pneumonia all of april into last week. My lungs are weak ,I have COPD, asthma, and I am seen every 3 months by my lung doc and my lung…
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2ND CT Scan-Prelim Results
This CT Scan compared to the first which is now 16 weeks old. right Lung- One nodule gone all others at or slightly smaller lymph nodes- same size or slightly smaller No new growth I guess the CT Scan now goes to a "specialist" who will actually measures out everything and gives me a final % but no new growth, no…
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Extreme Fatigue attacks under Sutent
Anyone else have a few days of extreme fatigue attacks during breaks in Sutent? I have been having them for months. I consulted with my oncs today and they have a theory I wanted to share with any other Sutent users who might have had the same problem. I may have been causing the attacks myself by stopping the blood…
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Remembering 8 years ago
This the anniversary of the "Cancer news." On 4/27/06, I had gone to my new PC for the annual check, which is required for any medication renewal. As an afterthought, I mentioned the periodic (every couple months) epicosedes of nausea and sometimes vomiting I'd been experiencing since the previous fall. There always seemed…
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Depression and Anxiety after Cancer Diagnosis
It's been 18 months since my diagnosis and 17 months since my nephrectomy. I'm finding that I'm still having trouble with depression and anxiety. I was wondering if any long-term survivors of this damn disease could talk about how long this lasts? Does it go away? What does it take to kick it? I saw my doctor's PA today,…
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Scanxiety May 2014: or where is it?
Scans are tomorrow: CT of the chest and MRI of the abs and pelivis. For the first time, this is not the center of life right now...I will miss a few hours of work, and probably go back. I have no reason to suspect anything other than NED. I expect NED. Emotionally, for the first time, I am not treating this as a big…
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Everolimus update
Hi all haven't posted for a while. Further CT last week (4weeks after previous one) again showed some small increase in size of most mets (pancreas, spleen, liver) which would normally mean that I would be booted from the Meteor trial but there is a component which allows study doctor to make a call to continue on drug if…
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PET scan good report
My results at the oncologist were way better than expected. I have been on Sutent only two rounds of treatment, and the lung mets I did have are smaller.. and there are no new ones. The fatigue, nausea and intestinal upsets have been epic so with this good result I get to begin the 37.5 two weeks on, one week off. Oh…
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hoping for a fix
Hey y'all! I've been so busy lately...what with seeing Cher in Cleveland, and all. Yep, Cher. She was AMAZING! I saw Bruce Springsteen two weeks before Cher and Billy Joel two weeks before "The Boss". I'm hoping to be down and out for the next 2-3 months...literally speaking, so I'm doing all I can, while I can. Tomorrow…
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Hi...
Hello everyone.... I had a cyst found by accident during an ultra sound for stones approx 4-5yrs ago. At that time it was approx 3cm and the urologist classed it as a Bosniak 2F after a C Scan He's been following via a yearly ultra sound and the latest one a week ago indicates that it has grown. The radiologist also noted…
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Just want to say, "hello" and thank you
Even though have a good support system at home - I have never felt as alone as I have since finding out in January that I had a 5 cm growth and it was cancer. Had it removed by an open partial in early March and returned to work last month. But even with people saying they udnerstand... I don't think they really can. "Oh…
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Prayers, please!
Dave was admitted to the hospital on Sunday, May 4th, for extreme kidney pain and a low grade fever. He just finished round 3 of Sutent with no positive results...meaning, the tumor on his kidney grew a bit and there wasn't enough significant change in size of other growth to believe the sutent worked. tge first night of…
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Are there any runners?
Had a right partial 3/3 and have just started training for summer races and tris. again. Just wondering if anyone is as well.
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Hopefully, Just A Short Break From Votrient!
I had my first full MOT at the Cancer Clinic this mornng, It was a 2 1/2 hour appointment. Unfortunately my liver enzymes are out of wack, I have reached level three in toxicity. Anyway! I have to come off the Votrient for one week, then get retested. If there is little change I will be retested each week until I come up…
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Rib removal (Not talking about BBQ)
Has anyone else that had an open surgery had a rib removed? My 11th rib had a good portion of it removed during my surgery to allow better access to the kidney (I had a partial) My surgeon told me in advance that he might have to take all or part of it out based on how easily he could reach things. My understanding of…
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delayed postoperative hemorraghe after partial nephrectomy
Hi Everyone, I´m new here and have alot of questions. My husband Daniel was diagnosed with Stage 1Grade 2 RCC in February. After almost two months of agonising wait he had a partial nephrectomy on April 13th to remove the 3,5 cm tumor. No mets, no lymph node involvement. Everything went very well and he was released 12…
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Genetics
I was wondering if any of your kids have had kidney cancer. I have been told by some drs its not hereditary and some say it can be.
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Rumers
I ran into an old friend this weekend. He asked me how I was doing in such a way that he obviously knew that I have been sick. I clarified that I had kidney cancer, nephrectomy, and various treatments. He was a little surprised. He said that he was told that I had had a liver transplant due to alchoholism! WTF? How does…
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ipilimumab and nivolumab Trial Updates
As many of you know about 1 month ago I fractured my right arm and had to have a rod placed through what was at the time an un-diagnosed met of my RCC. The fracture went right through the area and well a 3-4 week period of pre and post surgery complications/testing with extreme pain was had. Not much fun at all. The good…
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Discomfort in area of removed kidney
Hello all, My name is Chris and I am new to the discussion boards. In June of 2013 I had a radical nephrectomy for my right kidey. Examination of the removed kidney indicated pT1a G3 RCC. Six months after surgery I began to feel a range of sensations from dull aches to sharp pains in the region of my lower rib cage to…
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What do bone mets feel like?
Can anyone describe what the pain from bone mets feels like? Having dull pain in my rib area that feels muscular but it has come and go over 5 or 6 weeks now...trying to figure out if I should contact my dr and get it checked out? The pain is not severe and if I hadn't had kidney cancer I wouldn't have thought so much…
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2.2 cm "nodule" on R Kidney, lower left Flank pain
I am new to this board and hoping for some support (I'm scared senseless right now). I am a 34 y/o who went to the ER in January with abdominal pain and lower flank pain. I had an US done and xrays of my abdomen and was referred to a OBGYN to have cysts and polyps on my ovaries and uterus checked out. I had exploratory…