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MRI and CAT Scan on Feb 7
Hi everyone, It is time for my MRI and Cat Scan and it seems like the time has flown since the removal of my brain tumor on November 13. I still get a little anxious thinking about the results, but I have to tell everyone, I have been feeling extemely well and so happy and thankful for every morning that I wake up feeling…
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HD IL-2 scheduled for February
So my first treatment since my September nephrectomy will be HD IL2 at UVa's Emily Couric Cancer Center. My doc was a pioneer in this procedure and this center does several patients every week so I was glad to hear that I'm getting an experienced team. I've got four or five small lung mets (largest 1 cm) to deal with. Feb…
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(BBPD) Funny Bonz 2014
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ms and rcc, all dx'd since november
hey everyone! i got here incidentally.. went to a chiro in august for my back pain that i thought was causing my little finger numbness..he sent me (via my pcp) to have an MRI...got referred to a neurologist specializing in MS when a big spinal lesion was found...he had another mri done which located a brain lesion…
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IV Contrast
I know this topic has been discussed 'ad nauseum' but sometimes it's good to bring things back in view for newbies. I've been doing a 1/2 dose [ 50ML ] instead of the normal 100ML dose of IV Contrast 'I think' - On my 1st scan, post-surgery I took N-acetylcysteine but it's hard to find. Now just hydrate very well. I've…
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Roseann Rosannadanna
For you SNL fans of way back, "If it's not one thing, it's another." I'm back to a waiting game, again. My PC received the results of my last CT, which found a polyp in my stomach. I see the PC on Friday to discuss all the fun we'll have doing a gastroscopy and a colonoscopy. The tests aren't bad, it's the exciting time…
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RIP Texas_Wedge
I was informed last night that Mr. Wedge is no longer with us. I'm not on the site as much as I used to be. I wanted to personally thank him for his bravery and personal support the past 18+ months. I'm sorry we never got to play golf together, that would have been fun. I will play in Scotland one day in your honor, my…
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Survey: Partial Laporscopic Nephrectomey for small Tumor
Hi, How long do you think it will be before I could return to work? If anyone had a simillar procedure and would care to share their recovery experience, I would really appreciate it. Thanks! Diana
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Hyponatremia .
I have hyponatremia which translates to low serum sodium levels . Normal is 135-145 . Mine is around 125 - 126 . In order to keep my sodium levels up I have to include a truly large amount of salt in my diet . In order to achive a level above 130 I have to eat on the order of 16,000 mg of sodium . After consumning that…
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open partial nephrectomy bloat?
I have read quite a few posts and some horor stories and all that but to be honest I am tired, and finally decided to just post my issue and see what help I can get. I had open partial nephrectomy removed part on the right side. after reading I feel lucky to only have a 9 inch incision site. This was done back on Jan 8th…
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Some good news!
In the early hours of May 1, 2012, (4:45 AM), the ER physician told me that there was a large mass on my kidney, and it was probably cancer. About 3 hours later, one of my neighbors picked up her 18 month old, and felt something in her belly, which turned out to be neuroblastoma. At least I am old enough to understand what…
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3rd time - Stage 4 in 2007
Hi all, I am new to this forum. I was on another forum off and on since 2007 but I can't find it anymore and am so glad to find this one! Short version of my story: June 2007 - 15.5cm RCC RIGHT kidney. / 1.5cm mets to right lung. Age 49. Both resected (radical nephrectomy) at Lankenau Hospital in suburban Philadelphia.…
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Some of us are pushy
Hi All.. just saw this article on SP and thought it would be good to share it here as well. Did you know we Americans are pushy..?? http://news.uk.msn.com/uk/patients-must-be-more-pushy-2#tscptme Ron
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Headache
Does anyone have any ideas on how to get rid of a headache I've had for over a month now? It's not bad, and not constant, but keeps nudging me every. single. day. and. night. I've taken Tramadol every day, sometimes 2-3 times a day and the danged thing won't go away. I have several spots that are sore to touch now on my…
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Afinitor trial @ MD Anderson
Diagnosed now with stage 4 with mets everywhere. Only option is clinical trial using Afinitor. Return week after next for 8 week checkup. prayng for good result, but doc says he can only add months to my life, no surgery option, very aggressive and mets on outside kidney also in liver and maybe lung.. anyone ever do a…
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PET scan results show lung mets
I had my first post surgery scan on 1/16 but didn't see the doc until today. I have four or five small nodules. Largest in one lung is 7-8 mm and in the other 10 mm. My oncologist has referred me to a Dr. Weiss at the Emily Couric Cancer Center at UVA hospital for possible IL-2 treatment. He described it as two five day…
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Views from 2 survivors
Today, I had brunch with my dearest friend, who recently underwent a double mastectomy. The doctor had been monitoring something on one side and then found the tumor on the other. She's still experiencing post surgical "problems" that time should resolve. We agreed that perhaps our age, and the life threatening diagnoses…
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Ibuprofin
Hi, I started taking ibuprobin regularly 2 years ago. I took about 6 a day which is the maximum dosage. I took 3 in the morning and 3 at night for back and joint pains. I'm wondering if this contributed to my condition. I also in the past few weeks since my "cyst" or whatever it is was discovered I have stopped almost…
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GaryM
Am I the only one wondering why GaryM is so quiet? Time for Funny Bonz 2014.
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Blood Pressure Medication and Renal Impairment
My doctor recently put me on a fairly popular blood pressure medication, HCTZ. He selected the lowest dose, 12.5 mg/day. He'd told me that at this dosage it was not diuretic. However, when I started taking it, I definitely felt the effects and my blood tests appeared to show that it had had a diuretic effect (my RBC and…
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19th CT...but who's counting
I did...plus numerous X-ray/US combinations, 1 bone scan, 1 PET scan, 2 biopsies, 3 surgeries, and too many vials of blood to count. Saw my ONC nurse this morning and overall report looks standard and unremarkable. It was recommended I see my PC and have an endoscopy for possible polyp in the stomach; plus come back in 3…
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Both Kidneys?
Hi, Does anyone here have issues in both kidneys? I was feeling good when I was told the CT scan indicated a 1.6 cm BosniakIII cyst on outside of R kidney that should come off and that a 2.6 cm BosniakII cyst in the middle of my L kidney didn't look worrisome but after processing all of this I'm feeling really concerned…
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Has anyone heard anything from Djinnie?
I know she was doing some biopsies and such, but haven't seen her on the forum at all. Anyone know anything? Jojo
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CVS Fired me for being "sick" :(
CVS corporate in Woonsocket, RI fired me from my IT specialist position, and told me I was welcome to come back when I was healthy. They told me that they had not been informed of any health issues before they hired me, and that they were not willing to work with me in my "current condition". Though I scheduled my surgery…
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I have a date with a robot
Had my CT this morning. Good news is no immediate evidence of lymphnode involvement. Just one small lonely tumor on my left kidney, positioned just perfectly for partial nephrectomy. Just hope it behaves for now until I have surgery, which is still about a month away. Doc felt very certain it was RCC. Won't know for…
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Good News (I think)
I had my CT Scan with contrast today and took the results to the doctor. Aparently the 3cm complex cyst they saw on my Left Kidney is a Bosniak II and he says I should just moniotor it. They found another cyst on my Right Kidney. This was concerning to me but the doctor said it was small but a Bosniak III and should come…
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New in town
Hello all, I am new to this board, but not new to RCC. I am 51 years old and at age 45 discovered a lesion incidentally on one kidney. I had it removed in 2010 (2 cm, clear cell, pT1NxMx) and am receiving annual renal, CT scans, and bloodwork. NED so far. I am reminded daily of, and humbled at, my good fortune. Although my…
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Having unusual pains past few days.
Its been about a month since my tumor was discovered, and about 7 months since my dramatic unintentional weightloss began. Over the past few days new pains have cropped up and I don't know what to attribute it to. I've been getting some stabbing pains on both sides of my lower back and on both sides of my groin. Also after…
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that's ok...
does anyone know what this means? it is on my ultrasound report. thanks
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First CT Tomorrow
Hi, I'm not sure if I belong here or on the Bladder Cancer boards but I'll tell you one thing. They don't respond on the bladder board. I have my CT tomorrow morning and I meet with a urologist surgeon in the afternoon. Unfortunately I'm bringing my disc without a radiologist report. I hope he knows how to read them. I…