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Open Surgery planned
I have a small 1.5 cm in the upper left pole of the kidney, the urologist said that he is more than 85% positive that it is RCC. YES, I know it is fully treatable with surgery. I am not ready to jump off a brige or have a breakdown. I do have a normal amount of anxiety related to the C word and major surgery. I know so…
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Post operative check up 6mm lesion
Hi guys,just got my ultrasound result . There was a 6mm partly solid partly cystic residual lesion found at the margin of my surgery site .This is my six month check up and this lesion was also showed on my three month follow up. I had partial kidney removed and pathology report showed stage one grade one rcc. My gp…
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Cyber radiation to spine?
Has anyone here experience with cyber radiation to one met on the spine? Thanks, Sarah
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Surgery date scheduled
Met with urologist at Moffitt Cancer Center Tuesday. He reviewed results of MRI: right kidney has 2.5 centimeter soft tissue mass. Left kidey looks fine. He plans to do the procedure robotically. He was not in the best of moods, probably because he was scheduled to see 41 patients that day. I have confidence that he will…
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Kidney Transplant and Kidney Cancer?
Hello, I am a kidney transplant recipient and was recently diagnosed with Renal Cell Carcinoma. I will be having a radical nephrectomy on Friday 08/30. I am just wondering if anyone else here has had a kidney transplant and been diagnosed with kidney cancer? Looking at the CT scan the doctor doesn't think it has spread…
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Italy
Although I write little, I read you all always from Italy I want to say to all you who you are an incredible resource of solidarity. God bless you all
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PET/CT scan!
My Rad Onc today took pity on me with all I'm going through and finally agreed to a Pet scan, with Thryogen stimulation to look for any metabolic activity pertaining to my thyroid cancer, and look closer at my kidney tumor. I started to cry with relief when she mentioned it. It's been a struggle to get them to do the…
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Angiogenesis inhibitor foods
Hi everyone, just happened to find this Ted talk and thought I'd share it here in case anyone is interested in watching it: http://www.ted.com/talks/william_li.html interesting, it's a talk by the president of the angiogenesis foundation, about how we can also help starve our cancers in what we eat.
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Block center for integrative cancer treatment in skokie, Illinois
Hi everyone, I was just wondering if anyone here has been to the block center in Illinois? My mom is 50, with stage iv cc rcc, mets to liver and lungs. Our oncologist is dr.robert motzer at mskcc, who had done lots and lots for rcc. We are very confident being in his care, but we are looking for something a bit more…
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When do you start feeling better
I'm 52 year old male, 15 months post op for stage 3 tumor. Had 6cm tumor removed( laparoscopic partial ) in April 2012. Major urinoma problems from September 2012 through January 2013.multiple nephrostomy tubes. Ablation surgeries weekly for 3+ months.. still feeling terrible, severe hot flashes, sweats, lethargic. Doctors…
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Info please...Newbie: pT3, Fuhrman grade 2, papillary type
Dear All, I have been reading the posts published in this website and I find it very supportive and encouraging. Last month my dad underwent a radical nephrectomy due to a tumor in his left kidney. The pathology report showed that the tumor was 4cm, pt3, fuhrman grade 2, papillary type (got into the fatty tissue, but not…
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Clear Cell Renal Carcinoma
I had a radical Nephrecomy on my right kidney on Aug. 2. I had a 9.8cm tumor and was diagnoised as Clear Cell renal Carcinoma Grade IV. The have found no other cancer but the Lymphovascular was suspicious for invasion. Becaue of this I have to have CT Scans every three months. We were told that Clear Cell is least likely…
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newly diagnosed
my 50 year old husband was recently diagnosed with right kidney cancer 2 weeks ago its stage 4 with multiple mets to pelvis, spine and lungs. biopsy has been done but while he is waiting for the results they have started him on sutent 25mg daily, steroids, just completed 5 rounds of radiation on his spine can anyone tell…
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Yup, it's CCRCC
I was called into my GP's office today for the biopsy results. Apparently the results were back Tues night, but she was unable to reach the Urologist who ordered it, and he's "out of the office" until at least Monday. So my poor GP had to do the dirty deed :( . Anyway, yes, I officially have RCC. That makes 2 confirmed…
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Wilms tumor & my child
Hello my 4 almost 5 year old daughter was diagnosed with Wilms tumor o. July 8th 2013. She went through 6 weeks if chemo and is scheduled for surgery next week. She was diagnosed with a bilateral Wilms tumor. Since chemo her very large kidney tumor has reduced in size by over 50% but the very small one in her right kidney…
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Diet and medications after radical nephrectomy
Hi everyone. My mom has had a radical left nephrectomy done just under 3 weeks ago. I asked the doctors and nurses if there is a specific diet that she has to follow and they said no (Except low sugar, she is borderline type 2 diabetic with a hba1c of 7.2, diet controlled). I was very surprised to hear that she can be on a…
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15 Month Update - Scan Results - Sutent Patients Take Note
Hi, All. I always feel the need for apologizing when I post to the board. I should be on here more, I can add more value. I will try to do better at that, but I do make sure that at significant moments that I update you all. I promise to do that at minimum, and welcome any one of you to contact me via email. I believe you…
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Just a few days shy of on month
Today I had my Dr appointment to discuss my CT scan results. The good news is.... that the Torisel has gotten rid of the small tumors in my lung. The bad news is.... that the Torisel has not worked on the tumor in my liver. In fact, the tumor has grown. The pain I've been feeling is not because I'm a drama queen, although…
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All the best with your scan Eims:)
Hey My Friend, I wanted to wish you all the best with your 1st set of scans on Thursday. I know you've not been feeling too good lately, but once this is behind you I am sure those problems will calm down. You will be in my thoughts until I hear back from you. I will be taking my daughter to Paris Airport on Thursday, but…
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Gary!!!
Hey Gary, I am soooooo glad you are back...we missed you
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I have had some good news today!
I posted recently about my going in for an op to remove my lower bowel and repair my bladder. A little while ago it was discovered that I had a bowel infection, it had caused a perforation via a fistula into the bladder. I had been placed on antibiotics to clear the infection prior to surgery, but they caused issues, so I…
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Confirmation Call
Well, my doctor did confirm what she already told me.....my MRI was posiitve and the tumor is a little bigger than the CT scan showed. It didn't stage the tumor (or at least she didn't tell me) like she had originally told me it would.
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sorry so long since I posted..update on Chuck the Nivolumab+IPI trial
Sorry its been so long..daughter was home for the summer and we actually got to keep the grandbabies for longer than a few days for the first time in a year..then we took an actual vacation for the first time in 15 years :D was a busy summer.. Okay here goes I am almost afraid to say it...It looks like at least for now as…
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8-19-13
Hi All..!! I decided to start a new post... Today was one heck of a day... nice sunshine and all that... as perfect as perfect can be... So we finally got our first practice lap in... but I will digress with a bit of a tease. I have a new look... and I got a LOT of attention all day... many people took my picture but as of…
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HDIL2 Round 2 Delayed
To all, I apologise for not posting in a while but I had to take a break from all things cancer related. It was refreshing and sure makes you appreciate all of the survivors and caregivers that do not take a break and are on the site to help all of the newbies with their obvious concerns, you have a place in heaven. My…
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Thanks for your time...
A young man learns what's most important in life from the guy next door. Over the phone, his mother told him, "Mr. Belser died last night. The funeral is Wednesday." Memories flashed through his mind like an old newsreel as he sat quietly remembering his childhood days. "Jack, did you hear me?" "Oh, sorry, Mom . Yes, I…
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Bilateral Partial Nephrectomies
I was searching the boards, and noticed that people that had bilateral partial nephrectomies, had the operations separately. It sounded like that several of them were two months a part. Does anyone know if you can do them at the same time? Thanks!
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how long to return to work
Hi: I am 5 weeks post robotic laparascopic partial nephrectomy for 1.5 cm tumor. The surgeon never gave me an exact recovery time and I was laid off from my job a few weeks prior to surgery so I have to look for a job. I have no more surgerical pain, I do have exhaustion, GI problems. can't concentrate for long periods. I…
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Cedar Point Roll Call of interested survivors and family.
Over the past several months a number of us have expressed thoughts about meeting in Cedar Point next Summer and for those of us who are up to it try a roller coaster of two like the Geimini(not recommended unless a year past surgery). What are your thouths about doing this mid week towards the end of next August?
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new to this
I had a partial.. Tumor was 1.4 cm and patholgy showed papillary renal cell carcinoma.. Scared to death it will return... Advice please...