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Almost 4 months post-op radical nephrectomy
Hello all.....so I am now almost 4 months following a hand assisted laparoscopic radical nephrectomy. I experienced hardly any pain from the surgery, except for some twisting cramp feeling in my belly (like a leg cramp except in my belly). Other than that I rest when I need too and I am resuming college this fall along…
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My Story...
Hello to my fellow survivors and survivors to be! I just joined this site. This is the first time I have EVER posted about my journey with the cowardly kidney cancer RCC that I was diagnosed with in November of 2005. Before I joined I read just about every post regarding our specific journey with this disease. I was…
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Very Hard Indeed
Life I mean. Here we are, mostly a bunch of emotional roller coasters.. In the last week, I heard of not one but six guys, yes SIX that have passed. Here I sit, like some of you wondering why and of course when is my (our) turn.. Last night it was Jim, a gentle giant of a man. But, I must go on... Time for me to say that I…
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checking in to say hi
Hello all. Just dropping by to say hello and let you know I have been checking to see how all of you are doing. It's been 2 1/2 months since my surgery (laparoscopic right) and things are progressing great. Went through as tough stretch that required pills from the doctor. (anxiety and depression) But again, right now…
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I had my MRI. Techs comments
Okay, I am a nurse so the MRI tech may have said some things that she wouldn't have ordinarily shared. I have to say that I really feel as though it is RCC. The tech said to me that they saw a lot of them. She said they can tell what is simple cysts and those that are more complicated by how they filled with the GAD from…
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Mouth Sores - CHRCC - One cycle (12 Weeks) of Torisel done!
Hi all - I know its been a long time since I posted! I have just completed my first 12 week cycle of Torisel. I've felt really good throughout and this week I had my first set of scans after treatment and the results were very good! Nothing new in th CT scan and no new legions shown in the bone scan - and there is bone…
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how would you know?
hi all, is there any signs that would kinda let you know if your remaining kidney wasn't working the way it should? eims x
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Newly found lesions. Waiting is hard.
Hello, In 2009, I had a partial pancreatectomy for a benign cyst. I have been having some left flank pain, and had a CT scan done yesterday. I found out that I have a small heterogenous lesion in both kidneys, which the Radiologist (board certified and experienced) says is suspicious for cancer. Due to my pancreas problem,…
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Gene Breakthroughs Spark a Revolution in Cancer Treatment
http://online.wsj.com/article/SB10001424127887323300004578557473861805376.html
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Could I just be over reacting too soon?
I went in Tuesday for my 8th treatment. Had to skip one week because I have been getting severe rashes, Dr had me miss it for fear my skin would peel, bleed and I could end up with an infection. Last week I began having rather strong pains on my right side. Radiating from my back to my belly button. Could it be…
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bye bye Votrient
Yes, no more Votrient.. Next up is Inlyta. More to follow when I get home tonight.. Ron
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Second biopsy attempt looming on Friday
Well, it's been a while since I logged in to update. I've been pretty busy all summer with company visiting, being out of town and zillions of Dr appts. At last posting, I think I was nearing my first biopsy date of May 27th. Well that didn't go off like it should. The radiologist refused to do it, as my tumor is in a…
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3 weeks post radical nephrectomy-feeling emotional
Hi everyone, I've read many posts on people's physical journeys from discovering cancer and the resulting rush for major surgery. I am now 3 weeks post radical nephrectomy for a 4cm chrcc. The pain had eased up and I'm getting out and about, although I still tire easily. I have been really positive and dealt with each…
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partial nephrectomy post-op issues
I am 2 weeks out from a partial nephrectomy on the right side. My recovery has been pretty typical until a few days ago when I started to have some diarrhea. It has persisted for about 5 days now. Also, I had some oozing from one of my incisions. I called the doctor who had me send him a picture and he wasn't too concerned…
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New Member: My Story
Hi. My name is Emily. I am a 26 year old teacher living in PA. I had a partial nephrectomy on the right side 2 weeks ago today. My doctor told me the 2.3 cm mass turned out to be a chromophobe. Everything has happened incredibly fast and I've found myself at a loss for how to process it all. Here's my story. About two…
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Scan date getting closer!!
Oh here we go....1 week away and i am definitely suffering from scaniety!!! i always suffered with low blood pressure but it seems to have got worse the last few days and i keep getting blurred vision...its driving me nuts!! has anyone had this?? eims x
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Tyrosine kinase inhibitor and durable responses
Articles on that specific issue is rarely seen. This one isnt actually that new either, but since they are rare and I stumbled over it by accident I thought i would share it. Especially because even though the chances are small, we tend to forget in our debates here that tyrosine kinase inhibitors actually can lead to long…
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K.C. in the USA.
No, not a Springsteen song... but.. there is one bit of information you all should know. By U.S. Legal definition, Cancer is a registered Disability. This "MAY" mean you are able for Medicare and Social Security benefits at a younger age. Also, taking a leave from work is likely covered under the Family Leave Act. I am no…
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in the dark
Hello everyone. This is the 1st forum i've ever been in for any reason. My reason for joining this one is simple. My dad! After having congestive heart failure and being admitted into the hospital we found out that he had a mass on his right kidney. They were actually scanning his stomach to check for infection when the…
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Silly question...
My surgery was a month ago, incision healed, can I go swimming?
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chromophobe rcc
Hi Everyone, I wanted to know if there are any people with similar circumstances to me. I had severe stomach pain in April thisnyear andnthe dr sent me for an ultrasound suspicious it was my gall bladder. The ultrasound tech told me my gall bladder was fine so I didn't go back to collect results and put it down to a…
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Chris Battle has died
For those of you following Chris and Dena Battle's website, Kidney Cancer Chromicles, I am sad to tell you that Chris died this morning. Check out the post on Smartpatients.com
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Renal Vein Invasion
Hi All..! OK, so a few of us have had Renal Vein Invasion. So, I thought this should be discussed a bit and maybe we and others may learn about our experiences. First I will say that thanks to a great surgeon at Stanford, my surgery went well. What he did was to have me do multiple Scans so that as he said.. "not find any…
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Looking for feedback
My urologist is proposing that I have a repair of a small hernia and a partial nepherectomy done at the same time, laparoscopically. A general surgeon would fix the hernia after the urologist is done with the kidney. Met with the general surgeon yesterday, and she did not seem that motivated. For starters, she and her…
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New Member Struggling a bit....
Hello. I am from Portland Dorset UK. My name is Michelle. I am 52. I was diagnosed 6 weeks ago with a 6cm tumor on my left kidney, found by accident during a routine test for something else. I had the kidney removed 2 weeks ago. Not as bad as I thought it would be. I had good care and came home after 5 days. My pathology…
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New Member Struggling a bit....
Hello. I am from Portland Dorset UK. My name is Michelle. I am 52. I was diagnosed 6 weeks ago with a 6cm tumor on my left kidney, found by accident during a routine test for something else. I had the kidney removed 2 weeks ago. Not as bad as I thought it would be. I had good care and came home after 5 days. My pathology…
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Any suggestions on how to endure side effect of Sutent?
After two months of trying with 12.5mg dosage (4 weeks on 2 weeks off), Sutent failed. Now we decided to double it to 25mg after consulting 3 oncologists. Besides supplement, I wonder if there is anything I can do to help my 9-year-old son better fight the side effects. He is doing Yoga. I do juicing, smoothies. He takes…
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Advil
I noticed in the past day or two that their was some discussion with Advil on an unrelated forum topic. For what it is worth I will give my experiences. It seems that almost all of the doctors will not allow thier patients with Kidney issues to take Advil or other related drugs. And we all know that sometimes Advil works…
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8 months down the road from losing a kidney....
Well, it's been almost exactly 8 months. From discovery to surgery, took only 8 days! I recovered fast I think, able to go to work (desk) just a week after surgery for only 3-5 hours a day, took lots of naps haha. I had a 7cm/stage II/grade III in my right kidney, discovery was precipitated by massive pissing of blood out…