Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for January 2023

Negative Pressure Wound Therapy for a small fistula located in the RND scar
Has anyone had experience with NPWT? I have a very small fistula that developed after an abscess formed and eventually erupted at the upper end of my Radical Neck Dissection scar. Augmentin took care of the infection but the fistula continues to leak now almost 7 weeks after eruption. I am hoping for a non-surgical…
2023 Roll Call??
I may have missed it but are we still doing an annual Roll Call?
Cramping and Kinks
I am 4 plus post and now I get these awful cramps in back of head, arms, thighs, feet, legs and back.My oncologist said this is another side affect. I talk to primary care and she said take magnesium but this didn't help much. She suggested vitamin B which I havent tried yet. Was wondering who else has these symptoms and…
Stress and its affect on our immune system - hpv+
Approximately one year, or more, prior to my diagnosis, I experienced an extremely stressful time that lasted for some duration. I have always felt that this extraordinary stress was the trigger that started my whole ordeal. The doctors don't seem to want to engage in speculation as to the cause... other than asking about…
Tooth Extraction For H&N Patients Is Always A Major Risk Event
Anyone who has had head and Neck cancer and had radiation treatment in the head and neck area could be at risk for osteoradionecrosis (ORN), or bone death depending on where the radiation fields were and how strong the radiation was. Please be extremely aware of oral and dental care moving forward after treatment. It is…
Radiation side effects 1 1/2 year after treatment.
Good day all . My treatment 1 1/2 years ago was surgery followed by 33 days of radiation and 3 doses of chemo. Of course had the usual side effects....difficulty eating / lack of saliva / loss of taste etc but after 1 1/2 yrs I felt I had largely recovered maybe back to 80% normal. Now though, a new wrinkle and I was…
migraine-type headaches
Hi all. I finished my treatment about 12 years ago for Stage-4 oropharyngeal cancer (HPV16), and have few long-term side effects. Lucky boy, as my wife says. I had my treatment in Tokyo University Hospital, where they gave me 24/7 chemo (three types, second round cut short after anaphylactic shock), and then 35 doses of…
Possible throat cancer.
First of all I wanted to say that for all of you here who have been diagnosed with this horrible disease, my thoughts and my prayers are with you and never give up. Keep fighting. As for me ive stumbled upon this forum because I have a few questions and concerns. I’m a 28 year old male, obese. Never smoker never drinker…
Has anyone had eye pressure issues, post-tx?
Strangest thing, but over the course of the past 8 months the pressure behind my left eye, only, has been high. Now knowing that Rads damage blood vessels and takes years to manifest symptoms, and my getting 56Gys above the chin, I cannot help but wonder-especially since I got photon Rads from an older machine back in…
Tonsil cancer
Has anybody after radiation and Chemo treatment for tonsil cancer Had a biopsy come back suspicious for cancer in the same lymph node from the start of this process.
New Year
Happy New Year H&N Members, Not to be too confusing to the (current and active) H&N members but, back in 2013 I came across the following post by a 2010 H&N member known as nkimber. I found it to be very heartfelt and I have been re-posting it back to the top of the H&N forum (most) every January since. Many H&N members…
Mask anxiety medication
Hello. Does anyone take anything during treatment mask anxiety/claustrophobia? What do you take and what dosage? My doctor prescribed .5 mg of Ativan and it’s not effective at all. A Psychiatrist friend said the starting effective dose of Ativan is 2 mg. I really wish my doc would give me something that works. Thanks
ATTN: All military veterans on this forum... new VA PACT Act passed 2022
I have not yet contacted any veterans organizations to get the ball rolling; however, as a former Marine '88-'93 (12 months of that in the gulf.. so, I should be covered by what have read so far), I am going to start making some calls asap. If any other veteran has had any experience with this new PACT Act, please let us…
Radiation mask accident
Hello. During this mornings treatment the radiation techs first struggled to attach my mask. Once attached the automatic table I was laying on moved quickly towards the scanner and my head crashed directly into and under the scanner. Then it moved quickly again and for a second time my head crashed into the scanner. My…
Coughing up blood
I had bot cancer stage 3 treated with radiation in December 2021. I suffer from a lot of phlegm and I usually clear this by vigorously coughing or clearing my throat. Most mornings I suffer from a coughing fit and today I coughed up some blood. I can feel that where my cancer was is now a little sore, this area is also…
Just dropping by to say hello …
Hey folks. Another year has passed, since my operation in 2019, and I'm dropping by to wish everyone the best in life. This place has been so invaluable for support, both technically and mentally. Still getting very tired, during the day, but that's basically it, so far. I want to thank everybody once again, and perhaps…

Head and Neck Cancer

Discussion List