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A Support Web Site To Check Out
I have come across this site at different times in my research for support and information on cancer-related H&N subjects and I think it is a very helpful site with Blogs and Webinars and a Webinar Library where you can access past webinars on many subjects related to cancer, you may find something helpful. More…
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Wishing Everyone A Happy And Blessed New Year And Great Hope for The Future-Add Your Hopes & Helps
Hello everyone, we are about to turn over a new year and are looking to the positive as much as we can I am sure. I know we are all in different phases of treatment and recovery and or dealing with the after-effects of treatment to some degree. May we continue to work together on here for the good of each other to help and…
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TSH
IS elevated TSH normal with HEAD & NECK cancer. I am almost 4 years post and my TSH has risen from 5.7 to 7.2 in 2 weeks. TS4 free is normal. I know when i see my oncologist he always makes sure my Thyroid is checked... I have read that about 30% who have had this type of cancer and radiation that this is common side effect
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…
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My radiation mask is too tight....what can I do
Hello I'm so glad I found this site. I have head and neck cancer and I'm currently getting radiation treatments. Two weeks in and my mask has become extremely tight....especially choking me and crushing my already sore adam's apple. It's excruciating and I just can't endure it anymore. My oncologist cut a hole next to my…
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Need advice: Does anyone have COPD and throat cancer?
m y 65yo boyfriend has had COPD for several years and it was managed well. Two months ago after some suspicious symptoms, he was diagnosed with stage 3 throat cancer. Last week, he began chemo 1x/week of cisplatin for 6-7 weeks, and radiation 5x/week for 6 weeks. Two weeks ago he had his port put in. About 4 days later his…
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Merry Christmas
Merry Christmas to all on here. This was a gift from my wife. She had an incredibly talented artist paint it as a Phoenix. She said the quote, "In order to rise from it's own ashes, a Phoenix first must burn" really spoke to her in relation to my experience. I hope each of you have found some peace and rest during the…
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Finally an explanation of WHY the long term Rad damage
Went to the U of Iowa ENT Dr. on the 21st. He explained that the reason my larynx folds are coming together, blocking my air passage, is due to Rad damage on the the little blood vessels in otherwise okay soft tissue- eventually leading said tissue to die/turn into scar tissue over time. I said, "The same principle as…
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Success of radiation only without any surgery after 2-3 years?
Hello, I have cancer (squamous cell carcinoma) of the larynx on my right vocal cord. I’m about to be treated with radiation. Has this worked for anyone on this forum with this type of cancer? In other words, have you been treated with radiation for this cancer and survived for 2-3 years without having any surgeries? Have…
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Pain medication for Stage IV NCP SCC, HPV neg, mets/ lymph nodes & lungs
My husband was recently diagnosed with Stage IV Nasopharyngeal cancer with mets to the lymph nodes and lungs. He has his first chemo treatment two weeks ago and goes back on the 27th. Last week he asked me to call his oncologist to see if he could get any medication for pain. He has a tumor at the upper left back of his…
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Had Radical Neck Dissection May 26.22, BUT now a small Fistula had opened
Any of you experienced vets encountered this? It started out early Dec as a pus-filled abscess that eventually erupted voluntarily. Took one antibiotic for a week. Drainage reduced 95% but not completely. Then surgeon put me on AUGMENTIN 875, 2/day for 14 days, now on DAY 4. THEN, to complicate matters, here in the last…
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I Am Wishing Everyone A Blessed And Joyous Christmas And Hope For Tomorrow-Add Yours
Christmas is Upon Us Once Again It is once again Christmas and time for family gatherings, food, gifting others and extending goodwill to all. This is certainly a wonderful time of the year that can fill us with hope. Because Christmas is the story of hope and hopes eternal. Christmas is a time of great joy and celebration…
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Coughing that doesn't stop
I finished my treatment back in July I have this cough that just doesn't stop it keeps me up all night I prop myself up sleeping or I just sleep sitting up on the couch my Dr's have prescribed hycodan, codeine, numerous magic mouth washes, guafesin syrup, I've tried a couple Over the counter cough syrup that don't have…
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Therapy for Vertigo
It's been 2 years since I completed my chemo and radiation treatments for cancer in left tonsil and lymph nodes in left neck. My surgery was in June 2020. My neck scar is still sensitive at times and I have slight numbness around my ear. None of that bothers me. My last scan in Sept 2022 shows no cancer. I've done a bit of…
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Numbness in chin and tongue
Well folks, Stage 4 tonsil cancer, 1 node removed, surgery, chemo, rad. 10/2003. Here I am 19 years out, living my life, just became a grandparent. About a month ago I started feeling a tingling on the right tip of my tongue (cancer side) that has spread to my chin. Went straight to my Oncologist. He told me it could be…
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4 weeks out of treatments
Hi, I'm new to the group. My name is Scott and I was diagnosed in August of 2022 with Metastatic Squamous Cell pos. P16. It has been 4 weeks since I finished 35 rounds of radiation and 6 of chemo. I am wondering if there is anyone on here who have went through this and how they are doing after treatments.
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Tongue radiation
I didn’t realize it would be so slow and every day would have new symptoms. The treatment stopped after 6 weeks and doctors said everything is owing great. I don’t feel so great. Every day it’s either my mouth is extremely dry or the next day it’s full of heart saliva. Does it get any better. It’s already seven weeks after…
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Too much mucus and excessive cough
It's been 6 months post radiation of my throat and I'm just miserable. I have so much mucus I'm spitting up will it ever stop? And a constant cough nothing helps I can't use cough drops because now I have dysphagia so if my liquids aren't thick I choke n my food has to he mashed I feel Like I'm living in hell I have no…
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Searching for a close friend
Hello everyone. I am a member of this site, and connected with a lady named Constance Hammond. I dont remember her code name, but she had sinus cancer, and wound up having a permanent trach in her neck, as I do. She is married and resides in Indiana. For some unknown reason she stopped emailing me. She said she was having…
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Treatment Delayed Due to Shingles
Hi all, My mother (61) was supposed to have her radiation mask fitted Monday with treatment starting in a couple weeks for HPV 16+ oral cancer. That’s now been delayed because she has shingles. It seems she caught it early and is on antiviral medication and a cream now for the next 10 days, which I hope clears it all up.…
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Mouth sores and sleeping problems while undergoing chemo/radiation
Hi all! I am posting in the hopes of finding some helpful tips to share with my dad who is currently finishing his 3rd week of daily radiation treatments and 1x/week chemo to treat H&N cancer. His most persistent problem right now seems to be that he's barely able to sleep at all because during the night he is waking up…
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52 year old Male, Diagnosed 11/23/2022 with HPV+ p16 p40 cancer
I’m in the club no-one wants to be in as a newly diagnosed cancer patient. I’m a former smoker who quit daily 1/2 pack a day habit 19 years ago but still smoked socially up until diagnosis about 4-5 packs a year. Otherwise healthy and on no medications. My details are a mildly painful mass in my left neck just under…